Posts belonging to Category 'Medical Case Studies Of Forteo Fosamax'

Where is the progress?

Question:

Year 1903, the Wright brothers performed the first powered flight. 1969, only 66 years later, man sat his foot on the moon. THAT’s progress! 1891, the fist prostatectomy was performed.

OOOOOO that REALLY has got to hurt! The single finger prostate check was painful enough for me!

Response:

You hit on the cure Curtis – space travel.  Just shoot all men over 40 up in space for awhile and the radiation will kill their prostate. Now that is settled.  What about eggs, are they okay to eat or not?

– Hide quoted text — Show quoted text – then another thought, if he got all that radiation in space, he would already have the treatment before he had pca….. go figure.. ~ curtis knowledge is power – growing old is mandatory – growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc

Response:

Right on, JK. It seems everyone feels entitled to live forever, at least ’til 100 or so unless they are 100 and then they want another year or two, and if medical science can’t get them there they feel slighted, insulted, "Why me?", dumb doctors, etc., etc..  Well, "Why not you?"  So many people blubber over a bad diagnosis at age 60 when they ought to be grateful they made it that far – a life longer than most people have ever had. Every time I hear a "Why me" whiner I suggest he visit a childrens’ cancer ward.  I’m going to delay the end as long as I can because I’m pretty sure there is nothing after but I go when I go and I hope I can be helpful and useful to others along the way.  We’re all playing the same game, we each are dealt a hand, and we do the best we can with it.  My greatest fear is that someone will come along with some kind of longevity pill that only the privileged few can have – politicians, priests, and a few mafia dons.  Now that would really fry my butt. Dave Perry

Response:

I kind of always thought that going was a part of the deal.  Like you say Dave, we are all dealt a hand and we have no choice but to play it.  But in this game we all reach a point where we have to fold.  There is no winning. Pass go.  Get a new life. As to the privileged and the politicians, as far as I am concerned they can stay here.  If there is an "up there" I would just as soon not have them there.

– Hide quoted text — Show quoted text – Right on, JK. It seems everyone feels entitled to live forever, at least ’til 100 or so unless they are 100 and then they want another year or two, and if medical science can’t get them there they feel slighted, insulted, "Why me?", dumb doctors, etc., etc..  Well, "Why not you?"  So many people blubber over a bad diagnosis at age 60 when they ought to be grateful they made it that far – a life longer than most people have ever had. Every time I hear a "Why me" whiner I suggest he visit a childrens’ cancer ward.  I’m going to delay the end as long as I can because I’m pretty sure there is nothing after but I go when I go and I hope I can be helpful and useful to others along the way.  We’re all playing the same game, we each are dealt a hand, and we do the best we can with it. My greatest fear is that someone will come along with some kind of longevity pill that only the privileged few can have – politicians, priests, and a few mafia dons.  Now that would really fry my butt. Dave Perry

Response:

Finding a cure for PC, THAT would be a leap for mankind rather than walking on the moon, but I guess the news-value wouldn’t be as "hip" huh? Some say the answer is around the corner, well, there’s apparently very big blocks here in PC-city… /Roger

Roger, You are being way to harsh in your assessment.  The problem is not that progress has not been made, but rather that the medical establishment is very slow to change their ways. If you want 0% chance of death from PC for early stage, check out: http://prostateweb.com/pdfs/ASCO_PCF_02_2005.pdf If you want 7.4% chance of death from PC for late stage, check out: http://www.asco.org/ac/1,1003,_12-002636-00_18-0034-00_19-0034127,00.asp I’d like to tell you that 0% chance of death from PC for late stage is just around the corner, but unfortunately, we have to wait for the FDA to approve estrogen receptor-alpha blocking drugs first.  Then, according to my model:  http://www.tbiomed.com/content/2/1/10 it should be possible to put an end to death from PC. Ed Friedman

Response:

Relax…… How many open up a human body and change it? It is easy to put together metal, and harware, crank it together , fly off. I love the new things that are happening. Anyway, cancer is inward, and not so well developed. Cancer is cell life, and hormone related, and also part parential involved. Many Dr.s I know want to fight this disease. So do I. Give them time! John Loomis, and also fixed, with a smart Dr. and such. Think about the Ford brother…. Do you think we need more cars, or highways……humn You are a good guy.

– Hide quoted text — Show quoted text – Year 1903, the Wright brothers performed the first powered flight. 1969, only 66 years later, man sat his foot on the moon. THAT’s progress! 1891, the fist prostatectomy was performed. Today 2005, 114 years later…well… There is still no way to tell if a man have PC other than with a biopsy, a method that can easily give a false negative answer, in which case the patient is happily leaping home from his doc, only to find himself back at the docs office a couple of years later with back pain and a PC, in maybe a terminal stage. The prostatectomy has developed a bit as such; laparoscopic, robotic, but basically the same method as 1891, with the same side-effects, with the same uncertainty if you are cured or not. Same goes for radiation of all its kinds. And the drugs still all seem to be of the palliative purpose. With this progress rate, there’s gonna be an other hundred years of research before we can properly diagnose and treat PC, at least! Gee… by then, we’ll have created an atmosphere on Mars! The planet Mars will be populated with emigrated families from the Earth, living in their Mars-cities. The kids will attend their Mars-schools. The husband will sit in his sofa watching Mars-television AND… I wouldn’t be surprised, if he still suffers from PC! Why is it so hard to deal with this disease? Where is the progress !? Finding a cure for PC, THAT would be a leap for mankind rather than walking on the moon, but I guess the news-value wouldn’t be as "hip" huh? Some say the answer is around the corner, well, there’s apparently very big blocks here in PC-city… /Roger Posted Via Usenet.com Premium Usenet Newsgroup Services    ** SPEED ** RETENTION ** COMPLETION ** ANONYMITY **                http://www.usenet.com

Response:

Year 1903, the Wright brothers performed the first powered flight. 1969, only 66 years later, man sat his foot on the moon. THAT’s progress! 1891, the fist prostatectomy was performed. Today 2005, 114 years later…well… There is still no way to tell if a man have PC other than with a biopsy, a method that can easily give a false negative answer, in which case the patient is happily leaping home from his doc, only to find himself back at the docs office a couple of years later with back pain and a PC, in maybe a terminal stage. The prostatectomy has developed a bit as such; laparoscopic, robotic, but basically the same method as 1891, with the same side-effects, with the same uncertainty if you are cured or not. Same goes for radiation of all its kinds. And the drugs still all seem to be of the palliative purpose. With this progress rate, there’s gonna be an other hundred years of research before we can properly diagnose and treat PC, at least! Gee… by then, we’ll have created an atmosphere on Mars! The planet Mars will be populated with emigrated families from the Earth, living in their Mars-cities. The kids will attend their Mars-schools. The husband will sit in his sofa watching Mars-television AND… I wouldn’t be surprised, if he still suffers from PC! Why is it so hard to deal with this disease? Where is the progress !? Finding a cure for PC, THAT would be a leap for mankind rather than walking on the moon, but I guess the news-value wouldn’t be as "hip" huh? Some say the answer is around the corner, well, there’s apparently very big blocks here in PC-city… /Roger  Posted Via Usenet.com Premium Usenet Newsgroup Services     ** SPEED ** RETENTION ** COMPLETION ** ANONYMITY **                 http://www.usenet.com

Response:

Hm…did I write "fist" prostatectomy… of course I mean FIRST never the less… – Hide quoted text — Show quoted text -Year 1903, the Wright brothers performed the first powered flight. 1969, only 66 years later, man sat his foot on the moon. THAT’s progress! 1891, the fist prostatectomy was performed. Today 2005, 114 years later…well… There is still no way to tell if a man have PC other than with a biopsy, a method that can easily give a false negative answer, in which case the patient is happily leaping home from his doc, only to find himself back at the docs office a couple of years later with back pain and a PC, in maybe a terminal stage. The prostatectomy has developed a bit as such; laparoscopic, robotic, but basically the same method as 1891, with the same side-effects, with the same uncertainty if you are cured or not. Same goes for radiation of all its kinds. And the drugs still all seem to be of the palliative purpose. With this progress rate, there’s gonna be an other hundred years of research before we can properly diagnose and treat PC, at least! Gee… by then, we’ll have created an atmosphere on Mars! The planet Mars will be populated with emigrated families from the Earth, living in their Mars-cities. The kids will attend their Mars-schools. The husband will sit in his sofa watching Mars-television AND… I wouldn’t be surprised, if he still suffers from PC! Why is it so hard to deal with this disease? Where is the progress !? Finding a cure for PC, THAT would be a leap for mankind rather than walking on the moon, but I guess the news-value wouldn’t be as "hip" huh? Some say the answer is around the corner, well, there’s apparently very big blocks here in PC-city… /Roger Posted Via Usenet.com Premium Usenet Newsgroup Services    ** SPEED ** RETENTION ** COMPLETION ** ANONYMITY **                http://www.usenet.com

 Posted Via Usenet.com Premium Usenet Newsgroup Services     ** SPEED ** RETENTION ** COMPLETION ** ANONYMITY **                 http://www.usenet.com

Response:

Engineering is just math and physics, well understood to the levels required to achieve your list and limited primarily by funding. OTOH, we just don’t understand the human body that well yet. Even if funding were much greater, medical science just isn’t as discrete. A set of equations devised by one person can prove or enable a physics or engineering challenge, but one medical case is just anecdotal, proving almost nothing because the variables are so numerous and unidentifiable. Until we can understand the body’s systems, functions, and minutest parts down to the molecular level and define them in equations, medicine remains "fuzzy studies" — empirical "data" – not engineering. After all, WE (including moi) built space hardware and Mars habitation is just civil enginering, but God or Mother Nature built mankind — and threw away the blueprints. I.P.

– Hide quoted text — Show quoted text – Year 1903, the Wright brothers performed the first powered flight. 1969, only 66 years later, man sat his foot on the moon. THAT’s progress! 1891, the fist prostatectomy was performed. Today 2005, 114 years later…well… There is still no way to tell if a man have PC other than with a biopsy, a method that can easily give a false negative answer, in which case the patient is happily leaping home from his doc, only to find himself back at the docs office a couple of years later with back pain and a PC, in maybe a terminal stage. The prostatectomy has developed a bit as such; laparoscopic, robotic, but basically the same method as 1891, with the same side-effects, with the same uncertainty if you are cured or not. Same goes for radiation of all its kinds. And the drugs still all seem to be of the palliative purpose. With this progress rate, there’s gonna be an other hundred years of research before we can properly diagnose and treat PC, at least! Gee… by then, we’ll have created an atmosphere on Mars! The planet Mars will be populated with emigrated families from the Earth, living in their Mars-cities. The kids will attend their Mars-schools. The husband will sit in his sofa watching Mars-television AND… I wouldn’t be surprised, if he still suffers from PC! Why is it so hard to deal with this disease? Where is the progress !? Finding a cure for PC, THAT would be a leap for mankind rather than walking on the moon, but I guess the news-value wouldn’t be as "hip" huh? Some say the answer is around the corner, well, there’s apparently very big blocks here in PC-city… /Roger Posted Via Usenet.com Premium Usenet Newsgroup Services    ** SPEED ** RETENTION ** COMPLETION ** ANONYMITY **                http://www.usenet.com

Response:

Well put! I’ve often wondered about that myself lately. It is not promoted much like some of the more "designer diseases" by the media either, with little attention given to it by comparison. I think that one of the ways to deal with this and most other diseases is on the cellular level. Stem cell research is an important step in that direction.

Response:

– Hide quoted text — Show quoted text – Year 1903, the Wright brothers performed the first powered flight. 1969, only 66 years later, man sat his foot on the moon. THAT’s progress! 1891, the fist prostatectomy was performed. Today 2005, 114 years later…well… There is still no way to tell if a man have PC other than with a biopsy, a method that can easily give a false negative answer, in which case the patient is happily leaping home from his doc, only to find himself back at the docs office a couple of years later with back pain and a PC, in maybe a terminal stage. The prostatectomy has developed a bit as such; laparoscopic, robotic, but basically the same method as 1891, with the same side-effects, with the same uncertainty if you are cured or not. Same goes for radiation of all its kinds. And the drugs still all seem to be of the palliative purpose. With this progress rate, there’s gonna be an other hundred years of research before we can properly diagnose and treat PC, at least! Gee… by then, we’ll have created an atmosphere on Mars! The planet Mars will be populated with emigrated families from the Earth, living in their Mars-cities. The kids will attend their Mars-schools. The husband will sit in his sofa watching Mars-television AND… I wouldn’t be surprised, if he still suffers from PC! Why is it so hard to deal with this disease? Where is the progress !? Finding a cure for PC, THAT would be a leap for mankind rather than walking on the moon, but I guess the news-value wouldn’t be as "hip" huh? Some say the answer is around the corner, well, there’s apparently very big blocks here in PC-city… /Roger

  Tell me which cancer has ever been really cured? Sure there are treatments and drugs and radiation, but cancer is for the most part natures way of telling us we’re living too long.  Our ancestors were eaten and slain, and died of exposure and common colds well before they were 30. We fight this battle to live forever with modern medicine, and for the most part have succeeded in extending our average lifetimes by 50 years.  Sorry but as much as I love life, I’m a fatalist and realist by nature. — JK Sinrod Sinrod Stained Glass Studios http://www.sinrodstudios.com/ Coney Island Memories www.sinrodstudios.com/coneymemories/

Response:

With this progress rate, there’s gonna be an other hundred years of research before we can properly diagnose and treat PC, at least! Gee… by then, we’ll have created an atmosphere on Mars! The planet Mars will be populated with emigrated families from the Earth, living in their Mars-cities. The kids will attend their Mars-schools. The husband will sit in his sofa watching Mars-television AND… I wouldn’t be surprised, if he still suffers from PC! yeah, it was all that eating the high caloried fat foods in space while waiting to land on a foreign planet, but look on the bright side.  he will be able to have the surgery there….. well, no, he won’t….. why? because of all the radiation he was exposed to in space…… then another thought, if he got all that radiation in space, he would already have the treatment before he had pca….. go figure.. ~ curtis knowledge is power – growing old is mandatory – growing wise is optional     "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc

Response:

On June 25, roger wrote, in pertinent part: (snip) 1891, the fist prostatectomy was performed.

That would be in Tucson, Arizona, by George Goodfellow (yup, that’s his name), a perineal approach. I dunno the result. This was the standard prostatectomy method until 1947, when an English surgeon, Terrence Millin, reported on the retropubic approach. There’s some fascinating history at http://www.prostate-cancer.org/education/localdis/brosman_RP2003.html One bit of fascinating history is that only 7% of men diagnosed with PCa were considered to be surgical candidates (and few of them were cured) until *1982* when Walsh came on the scene. Yes, *seven* percent. So I reckon that there has been some progress. But not enough. Why is it so hard to deal with this disease? Where is the progress !? Finding a cure for PC, THAT would be a leap for mankind rather than walking on the moon, but I guess the news-value wouldn’t be as "hip" huh?

It is extremely frustrating to see men who refuse even a PSA test ("my doc sez there are too many false positives"), who refuse even to consider the possibility (until too late) that there is something wrong "down there." It’s unmanly, so they just suck it up and soldier on — until it kills them after a bout of horror in the final stage. As as been said, unless there’s morphine enough, the patient will die screaming. Is that graphic enough? Is that manly enough? I’ve seen some discussion elsewhere on the question that Roger poses. One theory that seems to make sense is that men simply won’t deal with it as the ladies have dealt with BCa, and homosexuals have dealt with AIDS. Men have not pressed the issue with their legislators and others who control the allocation of research money. And in many cases we see right here on this NG dedicated and loving women who are trying to help their men. Where are the men, themselves?? In short, men have not raised the general and particular hell that has led to such progress in the BCa and AIDS fields (yes, there’s more yet to do). But I think I detect a glimmer of hope, and will try to help nurture it. For example, last week’s successful PCa conference in Washington. The final session last Sunday was devoted to a call to arms by, among others, Dr. Stephen B. Strum. Regards, Steve J "…..never send to know for whom the bell tolls; It tolls for thee." — John Donne

Response:

Homos are NOT being denied the right to marry

Question:

Because also, right now, Condi Rice is in North Korea, trying to convince them to abandon their nuclear program. She’s failing miserably – because the Koreans have no reason to give it

up. No,  they won’t listen to a nigger girl.    Neither will Arabs, or Jews. It is not the USA over there folks.

Response:

I don’t believe the Supreme Court would allow a law to stand that violates "equal protection".

    As long as they maintain the males-only Selective Service charade I would have to sadly disagree.

Response:

If an Amendment actually passed, SCOTUS wouldn’t have a say in the matter – unless maybe it was used against homosexuals who live together in common law marriages, and the scope would only be if their common law marriage violated the amendment. Sure they would! If congress passes an ammendment that violates the Equal Protection clause, SCOTUS can declare it uncostitutional. That’s that checks-and-balances thing. Ammendments can come and go – but the Consitution itself is written in stone, so to speak.

Boy you obviously need to take a refresher course on U.S. Government. Check out Article V of the constitution. You know the one written in stone? "The Congress, whenever two thirds of both Houses shall deem it necessary, shall propose Amendments to this Constitution, or, on the Application of the Legislatures of two thirds of the several States, shall call a Convention for proposing Amendments, which, in either Case, shall be valid to all Intents and Purposes, as Part of this Constitution, when ratified by the Legislatures of three fourths of the several States[...]" The applicable part there is where it says "[...]shall be valid to all Intents and Purposes, as Part of this Constitution[...]" The Supreme Court can’t declare it unconstitutional because it is part of the constitution. You may want to read the forward to Jon Stewarts "America: Democracy Inaction" for a greate rebuttal of your ignorant "the constitution itself is written in stone" verbiage. When you say this you are indicating that freedom of speech can be overturned by the Supreme Court. That freedom of religion is just a temporary thing until the Supreme Court gets around to declairing it unconstitutional. Womens right to vote? Unconstitutional. Says so right in the constitution. Women got the right to vote on August 18, 1920 when the 19th ammendment was ratified. If you state that the constitution is written in stone then slavery is still legal. George Bush can establish a state religion. You are going to have to board some soldiers at your home, whether you want to or not, and when you don’t you can be tortured and then all your family killed. Nothing against that in the constitution. Some laws prohibiting these are actually against specific parts of the constitution. Anyway, enough ranting for me. Whether you agree with the threads initial post or not, don’t make stupid posts like this without actually doing your homework.

Response:

    snip< Because also, right now, Condi Rice is in North Korea, trying to convince them to abandon their nuclear program. She’s failing miserably – because the Koreans have no reason to give it up.

    Actually she’s failing because NK is pissed at the Bush administration     for telling the world that NK sold uranium to Libya (which so far     appears to be a total fabrication), when all actual evidence points to     NK selling uranium to Pakistan (which has been long known about and     basically approved of), and likely Pakistan that then sold it (possibly     after enriching it themselves) to Libya.     NK is pissed that Pakistan gets a free pass from Bush on selling     enriched uranium to Libya, while Bush lies to the world about NK’s     involvement.     This was the reason why NK walked out of the talks and why Rice is     having almost no effect now.  The US has once again proven that under     the Bush administration it has no credibility. If congress passes an ammendment that violates the Equal Protection clause, SCOTUS can declare it uncostitutional. That’s that checks-and-balances thing. Ammendments can come and go – but the Consitution itself is written in stone, so to speak.

    The Consitution is not written in stone.  It is just very, very     difficult to change (by design).  It is changed by use of amendments.     An amendment to the Constitution can not be declared "unconstitutional"     for once they are enacted they *are* the Constitution.     That’s the entire point of pushing for an amendment instead of a law.     The anti-gay movement *knows* what they want violates the Constitution     as currently written (which is why they keep getting defeated by the     courts), thus they seek to change that writing.     The only way to overturn a constitutional amendment is to enact another     constitutional amendment. -Zenin

Response:

No – that’s a really bad example of what I was saying. In the case of prohibition, it was NOT unconstitutional – that’s why the law passed and stayed until a new law outlawing that law became law.    What you were saying was nonsense to begin.  Perhaps you should review    Article V.

That article deals with Ammendments to the Constitution – not the Constitution itself.    The notes are    largely a collection of examples where amendments either substantially    altered, superseded, or outright repealed sections of the original    Constitution.

No – those are simply Ammendments that ammend other Ammendments. The Constitution itself, in toto, remains intact. Am I *really* to believe so many computer literate Americans are *so* unaware of the Constitution?!

Response:

If Congress were to pass an Ammendment doing away with something in the actual Constitution itself (eliminating a branch of government for example, or doing away with the right to representation or due process) it would be declared unconstitutional. ….and one only needs to read the 18th and 21st Amendments to see how this works. http://www.house.gov/Constitution/Amend.html

No – that’s a really bad example of what I was saying. In the case of prohibition, it was NOT unconstitutional – that’s why the law passed and stayed until a new law outlawing that law became law.

Response:

– Hide quoted text — Show quoted text – If Congress were to pass an Ammendment doing away with something in the actual Constitution itself (eliminating a branch of government for example, or doing away with the right to representation or due process) it would be declared unconstitutional. ….and one only needs to read the 18th and 21st Amendments to see how this works. http://www.house.gov/Constitution/Amend.html No – that’s a really bad example of what I was saying. In the case of prohibition, it was NOT unconstitutional – that’s why the law passed and stayed until a new law outlawing that law became law.

What you were saying was a bit fuzzy, and it was only after I had sent it that I realized (also) that mine was a bad example. I’m no Constitutional scholar, so I’ll refrain from any further additions. Though it would certainly be interesting to see if a portion of the Constitution could be declared "unConstitutional." Seems contradictory to me…. — -Donald in Austin AA #2104 Apatriot #22 Atheist FF/EMT ….and ordained minister Stork pin recipient: May 1, 2003 -Madelyn

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– Hide quoted text — Show quoted text – If congress passes an ammendment that violates the Equal Protection clause, SCOTUS can declare it uncostitutional. That’s that checks-and-balances thing. Ammendments can come and go – but the Consitution itself is written in stone, so to speak.    The Consitution is not written in stone.  It is just very, very    difficult to change (by design).  It is changed by use of amendments.    An amendment to the Constitution can not be declared "unconstitutional"    for once they are enacted they *are* the Constitution. That is simply not true. If Congress were to pass an Ammendment doing away with something in the actual Constitution itself (eliminating a branch of government for example, or doing away with the right to representation or due process) it would be declared unconstitutional.

….and one only needs to read the 18th and 21st Amendments to see how this works. http://www.house.gov/Constitution/Amend.html — -Donald in Austin AA #2104 Apatriot #22 Atheist FF/EMT ….and ordained minister Stork pin recipient: May 1, 2003 -Madelyn

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– Hide quoted text — Show quoted text – If congress passes an ammendment that violates the Equal Protection clause, SCOTUS can declare it uncostitutional. That’s that checks-and-balances thing. Ammendments can come and go – but the Consitution itself is written in stone, so to speak.    The Consitution is not written in stone.  It is just very, very    difficult to change (by design).  It is changed by use of amendments.    An amendment to the Constitution can not be declared    "unconstitutional" for once they are enacted they *are* the    Constitution. That is simply not true. If Congress were to pass an Ammendment doing away with something in the actual Constitution itself (eliminating a branch of government for example, or doing away with the right to representation or due process) it would be declared unconstitutional.

    Since you obviously are so familiar with what the Constitution says     about itself, you shouldn’t have any problem directing us to the section     that states what you claim it does?     Or failing that simple task, perhaps you could point out even a single     case in the history of the USA where an amendment of the constitution     has been declared "unconstitutional"?     Yes Virginia, the constitution *IS* mutable.  With extreme difficultly,     but mutable.  By design.  Our forefathers knew enough to know they knew     not the future.  They knew they did not have all the answers the country     might ever need or be able to predict every possible history. -Zenin

Response:

The only way to bring this to a TOTAL end is if tow consenting adults keep their mouth shut and their bedroom door closed!!!!!!!

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If congress passes an ammendment that violates the Equal Protection clause, SCOTUS can declare it uncostitutional. That’s that checks-and-balances thing. Ammendments can come and go – but the Consitution itself is written in stone, so to speak.    The Consitution is not written in stone.  It is just very, very    difficult to change (by design).  It is changed by use of amendments.    An amendment to the Constitution can not be declared "unconstitutional"    for once they are enacted they *are* the Constitution.

That is simply not true. If Congress were to pass an Ammendment doing away with something in the actual Constitution itself (eliminating a branch of government for example, or doing away with the right to representation or due process) it would be declared unconstitutional.

Response:

When San Francisco trial judge Richard Kramer said in his March 14, 2005 ruling that it is unconstitutional for California to have a law banning gay marriage, he was framing the issue as one of civil rights. Marriage is not a civil right and even if it was, no one person is being denied marriage. Indeed homosexuals are still free to marry persons of the opposite sex.

But by denying them the right to marry the one they love, you are weakening the institute of marriage. That is, if you believe that anyone else’s marriage has an influence on your own commitment to your spouse.

Response:

When San Francisco trial judge Richard Kramer said in his March 14, 2005 ruling that it is unconstitutional for California to have a law banning gay marriage, he was framing the issue as one of civil rights. Marriage is not a civil right and even if it was, no one person is being denied marriage. Indeed homosexuals are still free to marry persons of the opposite sex.

It’s worth pointing out that very few the opponents of gay marriage aren’t oppposed to gay marriages at all. They just don’t want them called "marriages". They *totally* support Civil Unions – which is the same thing with a different name. It’s part of their tried-and-failed principle of "seperate but equal". NeoChristians are trying to restrict speach, not gay marriage.

Response:

wrote or quoted : Wow…the right to marry someone you DON’T WANT TO MARRY.  That’s the same tired old argument used 40 years to support laws banning inter-racial marriage…you aren’t denied the right to marry…as long as it’s someone of the SAME RACE.

If men are allowed to marry women, then so should women. What’s with these bigots? Gay marriage does not concern them.  It changes their lives in no way at all. The only reason to forbid it is to attempt to make gay lives miserable. It is pure spite. See http://mindprod.com/ggloss/gaymarriage.html "Never in human history have such genocide and cruelty been witnessed.  Such a genocide was never seen in the time of the pharaohs nor  of Hitler nor of Mussolini." ~ Mehmet Elkatmi, head of Turkish parliament’s human rights commission   on Bush’s genocide in the Iraq war. 2004-11-28 — Canadian Mind Products, Roedy Green. See http://mindprod.com/iraq.html photos of Bush’s war crimes

Response:

What’s with these bigots? Gay marriage does not concern them.  It changes their lives in no way at all. The only reason to forbid it is to attempt to make gay lives miserable. It is pure spite. See http://mindprod.com/ggloss/gaymarriage.html

The purpose of the Republican’s current Family Limitation intiatives is not to antagonize Gays. There are plenty of Gay republicans. It’s purpose is to energize the Religious debates – as a distraction from far more important issues. It’s a wag-the-dog strategy. Nobody with any sense thinks the Supreme Court could or would allow such an law to stand. But it gives the NeoCons something to talk about, instead of defending DeLay’s unethical and even criminal behaviour. They don’t have to defend him – if they can keep people from discussing him.

Response:

- Hide quoted text — Show quoted text – When San Francisco trial judge Richard Kramer said in his March 14, 2005 ruling that it is unconstitutional for California to have a law banning gay marriage, he was framing the issue as one of civil rights. Marriage is not a civil right and even if it was, no one person is being denied marriage. Indeed homosexuals are still free to marry persons of the opposite sex. It’s worth pointing out that very few the opponents of gay marriage aren’t oppposed to gay marriages at all. They just don’t want them called "marriages". They *totally* support Civil Unions – which is the same thing with a different name. It’s part of their tried-and-failed principle of "seperate but equal". NeoChristians are trying to restrict speach, not gay marriage.

That’s factually incorrect, no matter what side of the issue you are on. If civil unions are enacted, special laws governing civil unions will have to be created that duplicate all of the benefits that you get with marriage–survivor benefits and visitation rights and next-of-kin rights and so on. It will take a long time to enact all those new laws.  So for a while, a couple joined in civil unions will still be at a disadvantage compared to a couple joined in civil marriage. Finally, note that most gay activists have said recently that they are no longer content to accept civil unions.  They want full civil marriage, meaning they want the existing laws on the benefits of marriage to apply to gay and lesbian couples. So the issue is joined.  Civil unions have fallen by the wayside as an acceptable compromise to either side. — Steven D. Litvintchouk Remove the NOSPAM before replying to me.

Response:

They *totally* support Civil Unions – which is the same thing with a different name. It’s part of their tried-and-failed principle of "seperate but equal". NeoChristians are trying to restrict speach, not gay marriage. If civil unions are enacted, special laws governing civil unions will have to be created that duplicate all of the benefits that you get with marriage–survivor benefits and visitation rights and next-of-kin rights and so on.

Unless the enacting of the law provides for those benefits. I don’t believe the Supreme Court would allow a law to stand that violates "equal protection". Finally, note that most gay activists have said recently that they are no longer content to accept civil unions.  They want full civil marriage, meaning they want the existing laws on the benefits of marriage to apply to gay and lesbian couples.

Gay rights activists have *never* said they are willing to accept civil unions. CU’s are a "seperate but equal" proposal put forth by the NeoChristians.

Response:

– Hide quoted text — Show quoted text – What’s with these bigots? Gay marriage does not concern them.  It changes their lives in no way at all. The only reason to forbid it is to attempt to make gay lives miserable. It is pure spite. See http://mindprod.com/ggloss/gaymarriage.html The purpose of the Republican’s current Family Limitation intiatives is not to antagonize Gays. There are plenty of Gay republicans. It’s purpose is to energize the Religious debates – as a distraction from far more important issues. It’s a wag-the-dog strategy.

Nah, it’s a chicken/egg strategy. Either Karl Rove is manipulating the Gay-Lesbian-Transgendered Community political wing to his advantage, or the GLTC is politically inept (having mistaken Kansas for Amsterdam), or both. As for it being a "distraction from more important issues", it’s not working all that well. Maybe when the oppressed transgendered or reduntantly-titled Gay Lesbians start blowing some stuff up, then Kansas will come around. Nobody with any sense thinks the Supreme Court could or would allow such an law to stand. But it gives the NeoCons something to talk about, instead of defending DeLay’s unethical and even criminal behaviour.

When a Republican is subject to allegations of improprieties, gays suffer even before the women and children. They don’t have to defend him – if they can keep people from discussing him.

Yeah, in the context of a thread on gay marriage, watergate has relevance too, strawdog. — The Leftist impulse is at heart a longing to be rid of the burden of freedom.

Response:

– Hide quoted text — Show quoted text – What’s with these bigots? Gay marriage does not concern them.  It changes their lives in no way at all. The only reason to forbid it is to attempt to make gay lives miserable. It is pure spite. See http://mindprod.com/ggloss/gaymarriage.html The purpose of the Republican’s current Family Limitation intiatives is not to antagonize Gays. There are plenty of Gay republicans. It’s purpose is to energize the Religious debates – as a distraction from far more important issues. It’s a wag-the-dog strategy.

When Bush brought up the issue last year, I figured he was just trying to lock-in the anti-gay vote, but since he’s brought it up since the election I think you’re right. Nobody with any sense thinks the Supreme Court could or would allow such an law to stand.

If an Amendment actually passed, SCOTUS wouldn’t have a say in the matter – unless maybe it was used against homosexuals who live together in common law marriages, and the scope would only be if their common law marriage violated the amendment. – Hide quoted text — Show quoted text -But it gives the NeoCons something to talk about, instead of defending DeLay’s unethical and even criminal behaviour. They don’t have to defend him – if they can keep people from discussing him.

Response:

It’s purpose is to energize the Religious debates – as a distraction from far more important issues. It’s a wag-the-dog strategy. When Bush brought up the issue last year, I figured he was just trying to lock-in the anti-gay vote, but since he’s brought it up since the election I think you’re right.

Then you’ll be interested in today’s news. We all know that the NeoCons in the Senate are right now trying to legislate that one medical case in Florida. But the federal courts have already ruled – MANY times – on this issue. So why are the NeoCons SO focused on this one woman? Because also, right now, Condi Rice is in North Korea, trying to convince them to abandon their nuclear program. She’s failing miserably – because the Koreans have no reason to give it up. At the same time, Russia is almost done helping Iran build their nuclear tech as well. By mobilizing the Religious nuts, the NeoCons are hoping to distract attention from their TOTAL failure in preventing nuclear proliferation. Nobody with any sense thinks the Supreme Court could or would allow such an law to stand. If an Amendment actually passed, SCOTUS wouldn’t have a say in the matter – unless maybe it was used against homosexuals who live together in common law marriages, and the scope would only be if their common law marriage violated the amendment.

Sure they would! If congress passes an ammendment that violates the Equal Protection clause, SCOTUS can declare it uncostitutional. That’s that checks-and-balances thing. Ammendments can come and go – but the Consitution itself is written in stone, so to speak. But it gives the NeoCons something to talk about, instead of defending DeLay’s unethical and even criminal behaviour. They don’t have to defend him – if they can keep people from discussing him.

Mission accomplished.

Response:

When San Francisco trial judge Richard Kramer said in his March 14, 2005 ruling that it is unconstitutional for California to have a law banning gay marriage, he was framing the issue as one of civil rights. Marriage is not a civil right and even if it was, no one person is being denied marriage. Indeed homosexuals are still free to marry persons of the opposite sex. It’s worth pointing out that very few the opponents of gay marriage aren’t oppposed to gay marriages at all. They just don’t want them called "marriages".

Don’t let blacks "marry." Let them have civil unions. – Hide quoted text — Show quoted text – They *totally* support Civil Unions – which is the same thing with a different name. It’s part of their tried-and-failed principle of "seperate but equal". NeoChristians are trying to restrict speach, not gay marriage.

Response:

Response:

Wow…the right to marry someone you DON’T WANT TO MARRY.  That’s the same tired old argument used 40 years to support laws banning inter-racial marriage…you aren’t denied the right to marry…as long as it’s someone of the SAME RACE. Kevin D. Korenthal explained : – Hide quoted text — Show quoted text – When San Francisco trial judge Richard Kramer said in his March 14, 2005 ruling that it is unconstitutional for California to have a law banning gay marriage, he was framing the issue as one of civil rights. Marriage is not a civil right and even if it was, no one person is being denied marriage. Indeed homosexuals are still free to marry persons of the opposite sex. One only has to look at what California law has offered to gay couples in place of gay marriage to see that the rights and privileges given to married couples is not their main motivation for their activism. In California, Civil Unions provide rights and protections to gay couples that were previously reserved for those that legally marry. The only real right refused is the right to use the term marriage to legally describe the relationship. So why are the liberal judges and gay activists resisting Civil Unions? What Judge Kramer and the gay lobbyists really want from the legalization of gay marriage is the credibility that the term marriage offers to those that are homosexual. In gathering quotes from both sides of the issue, it becomes clear that both sides agree on one thing. If gay marriage is defeated in California, it will be difficult for the Gay Lobby to move forward elsewhere in the country. By the same token, a win in CA will bolster efforts to undue anti-gay marriage legislation in any state where it exists. Attorney Bill Lockyer (who personally supports homosexual marriage) believes the issue should be decided by the voters, not the courts. "The more appropriate way to enact a change in policy that’s this basic is to go to the people," Lockyer said, speaking to reporters in Washington, D.C. "This issue probably will wind up before the people in one way or another eventually." So the question now is will the vote turn out like it did 5 years ago when California passed a definition of marriage in the law. In a National CBS News/New York Times Poll taken at the end of February, a full 2/3 of respondents said they preferred Civil Unions (34%) or no legal recognition (41%) for gay couples over redefining marriage to include same-sex couples. Nearly 23% of those who voted for George W. Bush in the 2004 election said they did so based on a set of moral principles that did not include gay marriage. Indeed, the MSM has pointed out Karl Rove?s masterful plan to get anti-gay marriage initiatives on as many ballots as possible being one reason President Bush won the election with a clear majority. The Gay Lobby has used the court system to advance their cause for this very reason. Most Americans reject a redefinition of marriage and if given the chance to vote on it, will defeat it every time. "The gay community constantly beats the drum of, ‘We will get gay marriage through the Legislature or the courts.’ They’re not going to the people because they know they will never get it at the ballot box," said Benjamin Lopez, a lobbyist for the Traditional Values Coalition, a church-based group that is spearheading efforts to get such an amendment voted on in California. "The public is wholeheartedly against this concept." But that is exactly where groups like the TVA want to wage this war and if recent history is any lesson, the activists on the right will prevail in their endeavor to make that happen.

– Impeach George W. Bush for War Crimes

Response:

– Hide quoted text — Show quoted text – When San Francisco trial judge Richard Kramer said in his March 14, 2005 ruling that it is unconstitutional for California to have a law banning gay marriage, he was framing the issue as one of civil rights. Marriage is not a civil right and even if it was, no one person is being denied marriage. Indeed homosexuals are still free to marry persons of the opposite sex. One only has to look at what California law has offered to gay couples in place of gay marriage to see that the rights and privileges given to married couples is not their main motivation for their activism. In California, Civil Unions provide rights and protections to gay couples that were previously reserved for those that legally marry. The only real right refused is the right to use the term marriage to legally describe the relationship. So why are the liberal judges and gay activists resisting Civil Unions? What Judge Kramer and the gay lobbyists really want from the legalization of gay marriage is the credibility that the term marriage offers to those that are homosexual. In gathering quotes from both sides of the issue, it becomes clear that both sides agree on one thing. If gay marriage is defeated in California, it will be difficult for the Gay Lobby to move forward elsewhere in the country. By the same token, a win in CA will bolster efforts to undue anti-gay marriage legislation in any state where it exists. Attorney Bill Lockyer (who personally supports homosexual marriage) believes the issue should be decided by the voters, not the courts. "The more appropriate way to enact a change in policy that’s this basic is to go to the people," Lockyer said, speaking to reporters in Washington, D.C. "This issue probably will wind up before the people in one way or another eventually." So the question now is will the vote turn out like it did 5 years ago when California passed a definition of marriage in the law. In a National CBS News/New York Times Poll taken at the end of February, a full 2/3 of respondents said they preferred Civil Unions (34%) or no legal recognition (41%) for gay couples over redefining marriage to include same-sex couples. Nearly 23% of those who voted for George W. Bush in the 2004 election said they did so based on a set of moral principles that did not include gay marriage. Indeed, the MSM has pointed out Karl Rove’s masterful plan to get anti-gay marriage initiatives on as many ballots as possible being one reason President Bush won the election with a clear majority. The Gay Lobby has used the court system to advance their cause for this very reason. Most Americans reject a redefinition of marriage and if given the chance to vote on it, will defeat it every time. "The gay community constantly beats the drum of, ‘We will get gay marriage through the Legislature or the courts.’ They’re not going to the people because they know they will never get it at the ballot box," said Benjamin Lopez, a lobbyist for the Traditional Values Coalition, a church-based group that is spearheading efforts to get such an amendment voted on in California. "The public is wholeheartedly against this concept." But that is exactly where groups like the TVA want to wage this war and if recent history is any lesson, the activists on the right will prevail in their endeavor to make that happen.

So like…  go peddle your ass on eBay. I bid 2 cents but I need to see your up to date AIDS papers and I also want to interview all of the ususl suspects connected with your particular ass. ron

Response:

That’s the root of almost ALL Republican/conservative problems: Ignorance. Ignorance of science, biology, psychology, other people, other religions, other believes, etc. Pretty damn much anything other than themselves. No, they don’t understand that either. The worst part of the whole situation? They’re PROUD of their ignorance. They think their ignorance is a GOOD THING. They MAKE FUN of people who are less ignorant than them.

Response:

Hash-oil approved as MS therapy.

Question:

Cookies?  How about them?  Or oil, not honey oil, but olive oil w/mj?  Lots of products to chosen from if you are a bona fide medical case…. http://www.cbc-canada.com/ "Michael" <muirh…@haidagwaii.net

wrote in message

news:0tOdnVZT97WK7rLfRVn-gQ@qcislands.net… – Hide quoted text — Show quoted text -

Yep.   That’s exactly what Sativex is… and GW’s manufacturing process (prior to packaging) is only a wee step from the process by which people have been making hash-oil for ages. ((U))  M http://tinyurl.com/5q57w Cannibis(sic)-based Therapy Approved (1/20/2005) PharmaManufacturing.com Somewhere in the south of England lie orderly rows of climate-controlled greenhouses within which cannabis plants grow fast and free, under the full consent of British authorities. The greenhouses are the property of GW Pharmaceuticals (Wiltshire, U.K.), the plants the raw material for the firm’s Sativex, a pain relief drug for multiple sclerosis sufferers. … The Sativex manufacturing process begins as leaves and buds, which contain most of the cannabinoids, are stripped and hung to dry. They are heated, coated in liquid nitrogen for improved yields, and heated further until drying is complete. The dry material is reduced to a coarse powder, then blended with liquid carbon dioxide for a syrupy cannabinoid extract … "like treacle," Rogerson says … which is then diluted and mixed with a carrier.

Response:

It’s illegal to buy or sell any of those products in Canada, though… even as legitimate medicine. Raw, dried marijuana is the only cannabis product allowed to MMAR exemptees. ((U))   M – Hide quoted text — Show quoted text -Marilyn Bachmann wrote:

Cookies?  How about them?  Or oil, not honey oil, but olive oil w/mj? Lots of products to chosen from if you are a bona fide medical case…. http://www.cbc-canada.com/ "Michael" <muirh…@haidagwaii.net wrote in message news:0tOdnVZT97WK7rLfRVn-gQ@qcislands.net… Yep.   That’s exactly what Sativex is… and GW’s manufacturing process (prior to packaging) is only a wee step from the process by which people have been making hash-oil for ages. ((U))  M http://tinyurl.com/5q57w Cannibis(sic)-based Therapy Approved (1/20/2005) PharmaManufacturing.com Somewhere in the south of England lie orderly rows of climate-controlled greenhouses within which cannabis plants grow fast and free, under the full consent of British authorities. The greenhouses are the property of GW Pharmaceuticals (Wiltshire, U.K.), the plants the raw material for the firm’s Sativex, a pain relief drug for multiple sclerosis sufferers. … The Sativex manufacturing process begins as leaves and buds, which contain most of the cannabinoids, are stripped and hung to dry. They are heated, coated in liquid nitrogen for improved yields, and heated further until drying is complete. The dry material is reduced to a coarse powder, then blended with liquid carbon dioxide for a syrupy cannabinoid extract … "like treacle," Rogerson says … which is then diluted and mixed with a carrier.

Response:

there is a new marijuana based product that is a step above both hash oil and bubble hash,, its made by a dude in Vancouver,,, he calls his product Budder ,,,, he is the BudderKing consider the bubble hash i make myself tests at 45-50% THC,, this Budder tests at ultimate level of  99.6% pure THC,, the most potent toke you will ever have in your life,, one toke like puffin mega joints in one hit,,, it is the best concentrated medicine ever fabricated by anyone since the discover/invention of hashish and and hashish oil  this budder is made from bubble hash or hash oil or potent wicked trichome covered buds,,, i have talked to a couple folks who have tried it,, one who did the testing of it,, and they have confirmed it is the most potent toke they have ever experienced,, almost hallucinogenic in nature,, bobbyD "Michael" <muirh…@haidagwaii.net

wrote in message

news:xJ-dnRoyIuJd5LLfRVn-pA@qcislands.net… – Hide quoted text — Show quoted text -> CW wrote: >> LOL!  It’s so true! > Also… the liquid-nitrogen part of the process isn’t really necessary, > but it speeds things up a lot and probably makes it cheaper to produce > Sativex: it’s called "freeze-drying".  :- >> BTW, what do they do with the waste product, >> which should still have some low THC value. > The spent product from which the drug was extracted is *extremely* low in > "active" constituents… but the unused plant parts – large "shake" leaves > and the outer layer of all the stalks and stems – probably contain enough > THC to make it worthwhile extracting a lower-quality oil from them.   :-) > ((U)) >  M >> "Michael" <muirh…@haidagwaii.net

wrote in message

>> news:0tOdnVZT97WK7rLfRVn-gQ@qcislands.net… >>> Yep.   That’s exactly what Sativex is… and GW’s manufacturing >>> process (prior to packaging) is only a wee step from the process by >>> which people have been making hash-oil for ages. >>> ((U)) >>>  M >>> http://tinyurl.com/5q57w >>> Cannibis(sic)-based Therapy Approved >>> (1/20/2005) >>> PharmaManufacturing.com >>> Somewhere in the south of England lie orderly rows of >>> climate-controlled greenhouses within which cannabis plants grow >>> fast and free, under the full consent of British authorities. The >>> greenhouses are the property of GW Pharmaceuticals (Wiltshire, >>> U.K.), the plants the raw material for the firm’s Sativex, a pain >>> relief drug for multiple sclerosis sufferers. … >>> The Sativex manufacturing process begins as leaves and buds, which >>> contain most of the cannabinoids, are stripped and hung to dry. They >>> are heated, coated in liquid nitrogen for improved yields, and >>> heated further until drying is complete. The dry material is reduced >>> to a coarse powder, then blended with liquid carbon dioxide for a >>> syrupy cannabinoid extract … "like treacle," Rogerson says … >>> which is then diluted and mixed with a carrier.

Response:

SO, exactly how does one go about getting this medicine?  I am sick and tired of dealing with sleeze every once and awhile only to be diwsappointed and feeling as if I wasted money which believe me I need.  But it seems to me that "Pot" used to make me feel good.  At least sometimes.  It rarely does anymore.  WHEN I am able to get some which is rare and may be a good thing since I think I always believe it is going to make me feel good and then it doesn’t.  :-( Now Strawberries Always make me feel good.

Response:

Cropsey wrote:

SO, exactly how does one go about getting this medicine?

If you live in the USA, I’m afraid you just plain *don’t*, Eric.  :-( At the moment, it’s received approval in Canada (only), but it isn’t yet on sale.  However, you can write to Bayer (they’re GW Pharma’s distributor here,) and ask them about availability, pricing, etc…. I’ve done so already. canada.medi…@bayer.com

Now Strawberries Always make me feel good.

Mmmmmm.  Strawberries.   :-)

Response:

Michael wrote:

SO, exactly how does one go about getting this medicine? If you live in the USA, I’m afraid you just plain *don’t*, Eric.  :-(

One of the nicest thing about Canada? Driving distance!   ;-) Kathie – Hide quoted text — Show quoted text -

At the moment, it’s received approval in Canada (only), but it isn’t yet on sale.  However, you can write to Bayer (they’re GW Pharma’s distributor here,) and ask them about availability, pricing, etc…. I’ve done so already.

Response:

hash oil-butter do you rub this on? or take it by the teaspoon…. never heard of it?? but did eat a chocolate chip cookie once with pot in it…. dory

Response:

(google is being a pain today, and won’t let me quote) eric, have you thought about growing your own? it’s not necessary to spend a lot of bucks on a big hydroponic set-up, if you’re only going to grow for your personal use, a few plants. it would cut out the need to deal with sleazy people, and you’d have more control over the bud you end up with if you’re raising the plants it comes from yourself. if you have privacy and room, you can grow them outside (climate permitting); if not, a spare closet with some grow-lights will also do just fine. i use pete’s plant food, rather than the better-quality, but more expensive, nutrients, and my plants love it! you can get it at home depot, or any place that sells gardening supplies, and it’s cost-effective. i’m not sure, but i think the majority of medical users on the group grow our own plants. if you live in the U.S., but in a state with a medical use exemption, you can get lots of help and growing tips from your local medpot associations as well. if not, i’ sure the gardeners on the group would also be happy to help, IF that’s something you’re interested in. do you get the nasty effects when you smoke? try baking with it– takes longer to feel the affects, but it also lasts a lot longer. instead of using just leaf, i use bud as well, and add it to any recipe — i made some excellent cannabis chocolate chip cookies with a recipe from ‘the joy of cooking’ and chopped bud instead of chopped almonds. melted dark chocolate goes nicely with strawberries too, IMO!  :-

rose

Response:

Yep.   That’s exactly what Sativex is… and GW’s manufacturing process (prior to packaging) is only a wee step from the process by which people have been making hash-oil for ages. ((U))   M http://tinyurl.com/5q57w Cannibis(sic)-based Therapy Approved (1/20/2005) PharmaManufacturing.com Somewhere in the south of England lie orderly rows of climate-controlled greenhouses within which cannabis plants grow fast and free, under the full consent of British authorities. The greenhouses are the property of GW Pharmaceuticals (Wiltshire, U.K.), the plants the raw material for the firm

"More feeders at the trough of the child abuse industry"

Question:

This is sick…imagine…intergenerational foster parenting. One of these people was a foster child himself…obviously poisoned by the foster family who torn him from the tender breast of his real mother, and got him indoctrinated so thoroughly that he now makes money by fostering. He’s even getting his wife involved in this perverted hateful practice of foster parenting. Sick sick sick…. http://www.mdn.org/1995/STORIES/FOSTER.HTM Kane

Response:

Kane, Everybody knows there are SOME noble and altruistic foster adopters, heck, even *I* could do better than posting some NINE YEAR OLD PROPAGANDA! That web site must really be pathetic if they don’t have pieces far more convincing and much newer! If this is because of my comments about how Logan Marr’s caseworker/Foster conflict of interest forced her to quit as a caseworker, then you are way off base. Logan was NOT a high level medical case, just a bright shiny child the caseworker developed an all consuming obsession for. (You know, the MARKETABLE sort of child  that brings in most Foster Parents!) http://www.mdn.org/1995/STORIES/FOSTER.HTM Disabled Foster Children October 05, 1995 By: L. MEGHAN HUMPHREYS State Capital Bureau JEFFERSON CITY _ Few people, you would think, actively would want a child with debilitating medical problems _ problems that demand enormous amounts of time for care and attention. But in Missouri, there are some who seek just that. One of them is Pat, a foster parent for Missouri’s Family Services Division, who agreed to provide a home and family for a child with severe medical problems. Ten months ago, Pat quit her job as a medical secretary to become a full-time foster parent. But when she initially became a foster parent, she didn’t know the challenges she would face when she was asked to care for a child with two dangerous medical problems. Pat’s full name cannot be used because state law prohibits social services agents from providing information that would identify foster children. Her foster child was born with spina bifida, when the spinal cord is unprotected at the child’s birth. The child also has hydrocephalus, commonly called water on the brain. "When I first saw this child I thought, ‘I cannot do this,’ but this child is such a sweet thing," Pat said. "This child has been a blessing to our family." Becoming a medical foster parent requires countless hours of training. In Pat’s case, she and her biological daughter spent two days at the hospital learning how to care for the foster child before it came to their home. The doctors familiar with her foster child’s case trained Pat on the child’s needs. In the nine months Pat has had the child, she has gone through continuous training, allowing her to take over more responsibilities from the child’s doctors and nurses. The child has little muscle control because of the spina bifida and a shunt in its head to drain the fluid caused by the hydrocephalus. The amount of care her foster child requires seemed daunting at first, Pat said. "At first [the work] drained me," Pat said. "It’s hard to adjust to but now it’s become daily routine." Placing all the children with special needs has become more difficult as more children need help than ever before, said Bernadette Nenninger, a social services supervisor at the Missouri Division of Family Services. "Even the kids in regular foster care are needier than just five years ago," Nenninger said. The state of Missouri has approximately 160 "medically fragile" children in foster homes certified to care for them. The state asks all foster parents if they are willing to take care of a seriously ill child when they first become licensed. Lynn Cole, a children’s services supervisor at the Boone County Division of Family Services said about 10 to 15 percent of all foster homes are licensed to provide medical foster care. Because of the significant time commitment medical foster children require, finding families for them is no easy task. Some children cannot be placed in foster homes at all because of the seriousness of their illnesses. "Without these [medical] foster parents, some would just end up in state institutions," Nenninger said. Marcia is another medical foster parent who lives in the same area as Pat. Like Pat’s child, her foster child was also born with hydrocephalus. But her child also has cerebral palsy and a growth problem. Because of these problems, Marcia takes the child to Kansas City to receive a special growth hormone treatment. Marcia’s motivation for becoming a foster parent is a bit more personal, however. Her husband was a foster child himself, which led them to return the favor he had been given by his own foster parents. "People had given of themselves for him, and we wanted to give some of that back to other foster children," Marcia said. While foster parents are paid by the state for their efforts, Pat says her motivation was never the money involved. "You do this job because you want to make a difference in these children’s lives," Pat said. "If you look at the money compared to the hours you put in, it’s not even minimum wage. But a big part of the money goes back into helping the kids anyway." Marcia agrees, and says there is only one reason to become a foster parent. "The money you get from the state is adequate, but nobody would do this job for the money," Marcia said. "You do it because you love kids." Marcia knew she wanted to work with children in some way and so she got a degree from the University of Missouri-Columbia in counseling and psychology with the goal that she could understand the needs of children when she became a mother. "One of my professors told me that I was probably the only person he knew of that was going through all this school just so I could be a stay-at-home mom," Marcia said. There is no way to gauge the number of hours medical foster parents spend in training and caring for their children, Pat and Marcia say. Despite the challenges, both say they will continue to be medical foster parents, and, if given the chance, would adopt a child with medical needs. "It’s the most rewarding job I’ve ever had," Pat said. "In a heartbeat, I would adopt a special needs child." ————– [Missouri Digital News is produced by the State Government Reporting Program of the Missouri School of Journalism (home of the The Journalist's Creed) in collaboration with KSMU Radio and with support from the Missouri Press Association and the Missouri Broadcasters' Assocation. MDN was designed and is managed by Phill Brooks.]

Response:

Don’t forget, I believe Logan Marr’s mother and Grandmother won a settlement from DHS in Maine. Grandmom has asked repeatedly for Logan—the hoops set up were unbelievable. Wonder who Sally Schofield had to kick back her FC funds to? Washington is now embarking on a massive campaign to find placements within families for 8K foster kids. http://www.familyrightsassociation.com Go to Members and Friends.  Washington state.  Network, learn, and lobby there. They have made substantial progress in less than a year, toward their goal..

Response:

Gree…@hotmail.com (Greg Hanson) wrote in message <news:35120b16.0410181341.3dbd0427@posting.google.com

… Kane, Everybody knows there are SOME noble and altruistic foster adopters, heck, even *I* could do better than posting some NINE YEAR OLD PROPAGANDA!

R R R …That’s rich coming from one of you. Yah didn’t check the citation location, now did yah, greegor? It’s a digital news service for a school of journalism. It has many kinds of stories, and if you’d used there search engine you’d have found thousands of stories critical of CPS…but nooooo…you are too stupid to piss. By the way, what is it about autobiographical stories 9 years old that would make their content invalid? There was no time sensitive information involved. I doubt fostering has changed much, nor the medical mom for that matter, in the 9 years hence. Do you? Or shall we dump ALL information 9 years and older, even when it contains no outdated material? That would be smart…right? Shit you are funny. What a pleasant way to start my busy day.

That web site must really be pathetic if they don’t have pieces far more convincing and much newer!

"Convincing" of what? That there are medical moms doing extraordinary care for injured children…who often were injured at the hands of their own parents? I’m convinced they do. Are you convinced the story is untrue and no such people exist or do what they do? I believe we have two, at least, that post here that qualify. It takes much more training, either by being a medical professional (used to be pretty much only retired pediatric nurses did this work…and they still do much of the training…because they see this kids in hospital before the foster parents do), or by twice as much or more preservice training, and twice as much ongoing training. The things done to these children that injure them are almost beyond belief for those of us less familiar with foster care, and child protection. It goes waaaaay beyond the occasional cold shower…trust me on this. I know a lot of "medical foster moms" the common jargon for them. Fabulous folks.

If this is because of my comments about how Logan Marr’s caseworker/Foster conflict of interest forced her to quit as a caseworker, then you are way off base.

No, not as I recall, though tit for tat is certainly something to consider. Give that the numbers of cases of good to superior care by foster parents far exceed the numbers of bad treatment by foster parents we could I suppose go head to head. Problem is, all that good to superior care rarely is reported. Bad news sells. It’s really about all we see. The things foster parents do as an everyday thing to help children, that I or others might think remarkable, they think of as common and expected of them. ‘Bout the only time you can draw out of them what they really do is when you start attacking them for being in it for the money, and torture, abuse, and sexually molest the children. I’m not willing to make such outrageous accusations against all foster parents for a few cases. One of us is objective. And it’s not you.

Logan was NOT a high level medical case,

Nope. She was a behavioral problem as I recall. Raging and kicking and punching a former foster parent.

just a bright shiny child the caseworker developed an all consuming obsession for.

I have no idea if she was obsessed or not. How would you know? Stories I’ve read simply said she had adopted and wanted a girl. She quite her job so the adoption process could move forward. Any obsession I’ve uncovered seemed to be directed to trying to make the adoption work with a child that was increasingly difficult to deal with behaviorally. It exceeded her training and experience, something not uncommon in adoption, by the way. Even relatives report that their own kin come to them with similar rages and behavioral problems.

(You know, the MARKETABLE sort of child  that brings in most Foster Parents!)

Well, two things. People kill that one would have never thought would do so. Criminologists will tell you that there are two types of killers, primarily..those that are predatory in nature, and those that you would never have thought they would….folks just like you and me. Who for some reason snap. Sally, I think, was one of the latter. And she’ll be twenty years or so contemplating how easy it can be to lose control, and probably the rest of her life thinking often about what she did. I wouldn’t want to be here. The child, of course, lost more…uncountable really, the loss of one’s life. There is no way to measure the loss except with a null. I wonder how out of control that little girl you were "parenting" might have become and what you would have done, in the end. As for "marketable child," well that’s pretty rare if the model I’m familiar with, and I’m very familiar, is any guide. The epitome of a desired child is as follows: blond, female, under 3, healthy, no siblings. Want to guess how many of those CPS gets? Most would go immediately to a relative, if they exisited. Mostly it’s children of mixed ethnicity, almost always in a sibling group, with multiple fathers, around 7 to 8, and with serious physical and mental health issues. Go to the national and state adoption waiting child pages and read the bulletins. I look, and from my training I can spot alcohol compromised children FAE or FAS…FAS is easier to spot. I can read the bulletins and tell you the code phrases for, "dangerous to smaller children." "Sexual predator," "will require lifelong developmental disability supports," etc. When I find a single baby or toddler, white, female, it’s like I can’t believe it, and usually that child will come with the sad news that they have some serious medical issues that will require many years of Tx, and much personal care in a medical sense by the adoptive parents. Here, have a peek, and remember, I don’t even approve of these public pages and have fought various states over the revealing wording in the bulletins: Here is the introduction from the homepage of the NAC site: http://www.adopt.org/ "The National Adoption Center ( NAC ) welcomes you! Since 1972, the Center has found adoptive families for more than 20,000 U.S. children. Most children waiting to be adopted are school-aged or in a sibling group that needs to stay together. Many have emotional disabilities; others have physical, mental or developmental disabilities. All need the love of a permanent family." Tell us who you’d like to adopt. I keep my contacts open through many relatives that could not adopt, for various personal reasons. They see their kin there and hope for the best. Do you think these chilren are among the half or more of children claimed to be "unsubstantiated" CPS cases? I know that many are…the still were injured by their parents. Kane – Hide quoted text — Show quoted text -

http://www.mdn.org/1995/STORIES/FOSTER.HTM Disabled Foster Children October 05, 1995 By: L. MEGHAN HUMPHREYS State Capital Bureau JEFFERSON CITY _ Few people, you would think, actively would want a child with debilitating medical problems _ problems that demand enormous amounts of time for care and attention. But in Missouri, there are some who seek just that. One of them is Pat, a foster parent for Missouri’s Family Services Division, who agreed to provide a home and family for a child with severe medical problems. Ten months ago, Pat quit her job as a medical secretary to become a full-time foster parent. But when she initially became a foster parent, she didn’t know the challenges she would face when she was asked to care for a child with two dangerous medical problems. Pat’s full name cannot be used because state law prohibits social services agents from providing information that would identify foster children. Her foster child was born with spina bifida, when the spinal cord is unprotected at the child’s birth. The child also has hydrocephalus, commonly called water on the brain. "When I first saw this child I thought, ‘I cannot do this,’ but this child is such a sweet thing," Pat said. "This child has been a blessing to our family." Becoming a medical foster parent requires countless hours of training. In Pat’s case, she and her biological daughter spent two days at the hospital learning how to care for the foster child before it came to their home. The doctors familiar with her foster child’s case trained Pat on the child’s needs. In the nine months Pat has had the child, she has gone through continuous training, allowing her to take over more responsibilities from the child’s doctors and nurses. The child has little muscle control because of the spina bifida and a shunt in its head to drain the fluid caused by the hydrocephalus. The amount of care her foster child requires seemed daunting at first, Pat said. "At first [the work] drained me," Pat said. "It’s hard to adjust to but now it’s become daily routine." Placing all the children with special needs has become more difficult as more children need help than ever before, said Bernadette Nenninger, a social services supervisor at the Missouri Division of Family Services. "Even the kids in regular foster care are needier than just five years ago," Nenninger said. The state of Missouri has approximately 160 "medically fragile" children in foster homes certified to care for them. The state asks all foster parents if they are willing to take care of a seriously ill child when they first become licensed. Lynn Cole, a children’s services supervisor at the Boone County Division of Family Services said about 10 to 15 percent of all foster homes are licensed to provide medical foster care. Because of the significant time commitment medical foster children require, finding families for them is no easy task. Some children cannot be placed in foster homes

… read more »

Response:

OT: MY first ER experience

Question:

I went to a school volunteer meeting last night, and so naturally it was full of moms  many who had ER experience with their kids.  Just trying to get a feel of what our local little hospital is like.  I have been told they run the gamut of being in and out to hours waits…..which makes sense, given that emergencies are unpredictable.  The doc, when he did see us, was very apologetic about the wait, but I have a hard time believing that they can’t set up some sort of on call system whereas when it does get so bogged down, a second can be called in.  How can he be the ONLY medical staff on duty?   However, the admitting clerk was very surly, and  that put them on the wrong foot with me from the start.  After ignoring us, even though there was no one there-   (she was reading something which may well have been critical but a ‘be with you in a moment’ would have been adequate)   she snippily asked -"you want someone to look at her?"  For what other earthly reason would we be hanging around an ER?????? mk   Mari Kay:   Going to the emergency room is like going to hell sometimes. Your daughter   should have been seen immediately for her head wound. It could have been more   serious than she did have. She may have also have a concussion (SP?) or could   have bled to death. Thank God that she is O.K. Also being in an emergency room   with a 12 yer old can be scary for her and the admitting desk should have seen   that she should have been seen right away. I have gone to the emergency room   many times and the longest I ever waited to be seen was less than an hour to   get in but I was in the emergency room for 4 hours due to a broken kneecap.   Barbara Booth

Response:

Mari Kay: Going to the emergency room is like going to hell sometimes. Your daughter should have been seen immediately for her head wound. It could have been more serious than she did have. She may have also have a concussion (SP?) or could have bled to death. Thank God that she is O.K. Also being in an emergency room with a 12 yer old can be scary for her and the admitting desk should have seen that she should have been seen right away. I have gone to the emergency room many times and the longest I ever waited to be seen was less than an hour to get in but I was in the emergency room for 4 hours due to a broken kneecap. Barbara Booth

Response:

Going to ER is never fun. Always bear in mind that in an ER, no matter when any given individual comes in, if another case comes in which is more urgent in medical terms, that case *should* be seen before less urgent cases, even if the less urgent ones have been waiting longer. Even if someone comes in walking – they may have been assessed as being a more urgent medical case – and without seeing their notes, you can’t assume that they didn’t require treatment before another case which came in before they did. Saying that, it’s *always* necessary, IMO, to keep an eye on what is happening, in order to make sure whatever it is you are in for is not ignored, or deteriorates to becoming critical. I have sympathy for ER staff, they have a difficult job to do – and it can get extremely fraught. This is, however, no excuse for not taking *any* case presented to them with due care and attention. Docs over here in the UK often use an appointment system – which often run late :-) I’ve had a doc apologise to me for an appointment running late which meant I was seen later than my scheduled appointment time. I told him it was no hassle, as I’d rather be satisfied he was giving a patient time time he or she *needs* as opposed to the time slot in the appointment book. You never know, one day an appointment may be dealt with in a short space of time, allowing a catch-up, but if it’s something more serious, or something requiring a lot of explanation, I’m glad a doc is prepared to give a patient the time needed to do it properly. Glad your daughter is okay :-) Cheers, helen s –This is an invalid email address to avoid spam– to get correct one remove dependency on fame & fortune

Response:

Well let me say if you are going to injure yourself do it during your physician’s regular office hours.  I cannot imagine having to go there for severe pain…….I am so grateful I have not had to resort to that, and have had a few people tell me my experience was actually rather good…. .  SHEESH!  Last night my 12 yr old daughter  whacked her head open on the car door getting out.  We mopped it up, but it looked like it was gaping even though it stopped bleeding profusely after a minute, so we thought we ought to take her in for possible stitches just to minimize scarring if nothing else.  (She hit it right above her right eyebrow)  OF course hearing the word stitches sent her into more hysteria and tears than the injury ever did.  But anyway, it being 8:30, we had to go to the hospital.   At about 11:10 they finally got around to looking at her.  After we had been there two hours I asked the admitting lady if she had any idea how much longer, since when we came in she said there was only one person ahead of us.  The ambulance did drop off two passengers in that time which I certainly understand may have needed more immediate attention, but I was kind of cranky to see an inmate walk in under his own steam and get treated and released before us, since he came in about a half hour after we did.  Anyhow, the admitting clerk  told me to go in and ask someone inside which I thought weird, but I went in and the doctor was the one who told me it was a bad night and could we please just give him another half hour.  I wasn’t even sure if they COULD do anything for her and I asked if they could  just have a nurse look  and tell so we would know if we were wasting our and their time, but he said there was no one but him.  Seems kind of hinky to me.   anyhow eventually he got to her, said he was very glad we stayed as it needed attention, and glued it shut.  Yippee no stitches, just that dermabond stuff after he cleaned it out and he says it will wear off on its own and hopefully scar minimally now. and of course both of us are BEAT this a.m. — mari kay

Response:

I need your advice

Question:

Hello everybody ! I need your advice: Several years ago I lived in South Altai (East Kazakhstan). My friends and I organized eco- and adventure tours about South Altai. Today many people all over the world who are fond of eco- tourism know Altai mountains. You can see more on www.ukg.kz/altai-es But what about Ural region? What do Australian people know and think about Ural (the Ural mountains, the border between Europe and Asia)? If Australian people were in Ekaterinburg, what would be interesting for them to see? Can Ekaterinburg be known only as the place where the last Russian Tsar and his family were killed by the communists? It’s so notorious… And I don’t like it at all ! How can I find people who have been to Ural once at least ? Does it more interesting to travel about South or Pre-Polar Ural? What are curious places? What difficulties did you meet with? Are there any tourist agencies in Australia which are interested in traveling about Russia? What places in Russia are the most popular with Australian tourists? May be Ural is really known a little in other countries? But it is the place where the European largest national park (Yugid-Va) is situated. There are many caves, geological objects, attractive landscapes, memorials of Russian history, culture and nature…. My friend from Mississippi said that many people who were interested in Russia and fond of traveling preferred to communicate with people that knew places of interest and could show them, not with tourist agencies. (??) Now I live in Ekaterinburg. And I’m interested in such information as I have organized a small tourist company in Ekaterinburg. Ekaterinburg is the third Russian city in size after Moscow and St. Petersburg. This year we have prepared several journeys and excursions about the Ural (from the South to the North). And now I’d like to know if these programs are of interest for foreign tourists. Oleg Demianenko

Response:

Snip I’m getting really confused about Australian and NZ mountains this morning. — Tony Bailey Mercury Travel Books

Response:

The issue of miscarriages is indeed new.  In 3+ years on this ng, and 7 years as an AF instructor, I have never heard this before.  But, that is why I like this group (one of the reasons at least).  I am always learning something new. Now, to your situation.  When you say you feel "lousy," what do you mean?  Do *you* see inflammation?  Are you fatigued still?  The question of how aggressive to be with meds can be difficult.  If your RD isn’t seeing active inflammation or joint deterioration, he will be reluctant to push further.  But, you are the one who has to live with your body. So, if you are feeling the need to ask if you need a second opinion, you probably do. I have also experienced that there is only so far the meds can take us. We also have to use other means of getting well(er).  Are you exercising?  Do you do regular relaxation exercises?  How is your diet? Maybe there is something else you can do, besides adding more meds, to make you feel better than you currently feel. Hope taht helps. Walt Hanks – Hide quoted text — Show quoted text – After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

– Hide quoted text — Show quoted text – After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

I was looking for the thread re miscarriages and RA.  I did not find it yet but am interested because I am only familiar with the relation between miscarriages/lupus; miscarriages/anti-phospholipid antibodies. I’ve run arthritis support groups since c. 1986.  And I would have to put "My doctor says I feel ok but I feel like hell; what do I do?" in the top-ten questions. There are a lot of options and here are some that different people have liked in the past: have a heart-to-heart with your doc; explain that you are glad you are not worse but you want to make sure s/he knows how you are really doing…and you want to know what your treatment options are and what the risks and benefits of them are so you can make an informed choice get a second opinion keep a record of your symptoms — daily or weekly log, chart, notes of flares between appointments, short list of current symptoms, etc. Patient/doctor combinations prefer different systems; it has to be one that works for both parties some say it’s good to have someone who is involved in your life come with you to an appointment to help you observe where communication problems, if any, are…and perhaps also to help validate your day-to-day experiences We’ve had some seminars on doc/patient relationships and docs have a number of problems: sometimes the next treatments to be considered are too toxic to warrant use at the current level of symptoms often there is not enough time to spend with the patient so it helps if the patient prioritizes the current symptoms sometimes the doc doesn’t realize the patient preferences…some people would rather have more dysfunction and less medication; others would rather risk long-term side effects than have a lower quality of life in the present.  Some treatments are not good choices for patients who plan to have children, etc. Sorry so rambling; ill and tired at the moment. Hope this helps. Good luck!  Let us know what happens, Pam — Rheumatic Disease Web Site http://www.silcom.com/~sblc/ I am collecting hardship stories of people who were finacially harmed by government benefit programs (Social Security, SSI, SSDI, Medicare, Medicaid, Medi-Cal) due to working.  Please e-mail me.

Response:

The issue of miscarriages is indeed new.  In 3+ years on this ng, and 7 years as an AF instructor, I have never heard this before.  But, that is why I like this group (one of the reasons at least).  I am always learning something new.

Hi Teresa, I wish I could be of more help, but I only know the experience of a friend of mine.  She was pregnant and had some new symptoms of lupus.  After doing some reading she found out about the antibodies Dr. Susan mentioned, and was worried. She also found out there was some type of shot to take, but I don’t remember if it was before or after the birth.  She went to my rheumatologist who retested her and found that her symptoms of lupus were from the blood-pressure medicine she had been switched to during pregnancy!  And the baby was born perfect. I really don’t know where she found her information, and don’t know of anywhere to suggest looking.  Perhaps a second opinion from another RD might be helpful. You might try asking DR.Susan for more info if your see one of her posts again. I wish you all the best. Sandy F.

Response:

there is no evidence that RA results in bad fetal outcome. Regards drdoc

– Hide quoted text — Show quoted text -I was looking for the thread re miscarriages and RA.  I did not find it yet but am interested because I am only familiar with the relation between miscarriages/lupus; miscarriages/anti-phospholipid antibodies. It was in the thread "getting pregnant"  Dr. Susan made a comment about it but did not explain it further. Sorry, I don’t keep my back posts. Otherwise I would cut and paste… —Ali life is what happens when you’re making other plans…

Response:

Hi, How coincidental that youand I have been though virtually the same thing, apart frm th act that I was in hospital for three and a half momths and had a prm baby, now a strapping 6′4" paramedic, however whilst pregnant with the second child some 13 months later I started to become even more ill with heart problems. Well James was born a healthly 7pound 11 oz, baby and everything went well but it was recommended that i was I to have a tubal ligaton which I did 9 months later.I then diiscovered that I had RA and was put onto various medications and unknown to me at the time I underwent five miscarriages and this resulted at having a hysterectomy at the age of 25. I had various medications but the one I remember most was Chloroquine, and years ago  quinine  was used as a means to a spontaneuos abortion, I am talking of the days of yore! So if this quinine was used to induce an abortion what makes the doctors so sure that drugs which contain this chemical are safe nowadays. I hope they are because I can tell you that although I agreed to be sterilized, it was heartbreaking to think of each of those babies, especially as 6 months after the hysterectomy my husband of that time left me because he felt I " was no longer a woman" Very kind sort eh! I do have a happy ending though because although my present husband and I never had our own biological child, we adopted both my biological sons and they are so like him that you would never know if I never told you!! Please, any couple deciding to have a child, investigate fully all the risks from the mediations befoe you go ahead or that most precious child. Best wishes Connie. – Hide quoted text — Show quoted text – Hi, Are you pregnant?  When I was pregnant with my daughter (I have RA as well), I never felt "good" (this was my second baby and with my first I felt great). Anyway, to make a long story short.  I developed toxima 2 months before her due date.  I was placed in the hospital and delivered early.  She was in intensive care for two days and I was in intensive care for four days  (my blood pressure would not go down).  She is doing very well and turned 8 last weekend. I guess the moral of my story is be sure to check toxima out.  The doctors were baffled with my case.  Tomxima usually "hits" first time young mothers. I was 32 and Tina was my second.  The blood pressure can be stablized with drugs and bed rest.  Mine would not respond to both.  I live in Olympia and they wanted to send me to Seattle’s University Hospital, but could not stablize me enough.  It was scary.  I almost lost the baby and almost died, but everything worked out. BTW, the doctor said I probably should not have any more kids, which I have not. I don’t want to totally scare you, but if doctors knew about this possibility, they may be able to avoid some of the problems I had. Good luck, LoriV. LoriV After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

I was looking for the thread re miscarriages and RA.  I did not find it yet but am interested because I am only familiar with the relation between miscarriages/lupus; miscarriages/anti-phospholipid antibodies.

It was in the thread "getting pregnant"  Dr. Susan made a comment about it but did not explain it further. Sorry, I don’t keep my back posts. Otherwise I would cut and paste… —Ali life is what happens when you’re making other plans…

Response:

sometimes the doc doesn’t realize the patient preferences…some people would rather have more dysfunction and less medication; others would rather risk long-term side effects than have a lower quality of life in the present.

I like the above comment. This is so true. Often dr.s have their own idea of what is best (their philosophy of treatment). But ultimately it should be the patient who decides how aggressive the treatment is. —Ali life is what happens when you’re making other plans…

Response:

Hi, Are you pregnant?  When I was pregnant with my daughter (I have RA as well), I never felt "good" (this was my second baby and with my first I felt great). Anyway, to make a long story short.  I developed toxima 2 months before her due date.  I was placed in the hospital and delivered early.  She was in intensive care for two days and I was in intensive care for four days  (my blood pressure would not go down).  She is doing very well and turned 8 last weekend. I guess the moral of my story is be sure to check toxima out.  The doctors were baffled with my case.  Tomxima usually "hits" first time young mothers.  I was 32 and Tina was my second.  The blood pressure can be stablized with drugs and bed rest.  Mine would not respond to both.  I live in Olympia and they wanted to send me to Seattle’s University Hospital, but could not stablize me enough.  It was scary.  I almost lost the baby and almost died, but everything worked out. BTW, the doctor said I probably should not have any more kids, which I have not. I don’t want to totally scare you, but if doctors knew about this possibility, they may be able to avoid some of the problems I had. Good luck, LoriV. LoriV – Hide quoted text — Show quoted text – After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

Hi, I’m certainly no expert, but I empathize, and decided to share my thoughts.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?

There is a big difference between doing great as a medical case, with its associated RH factor counts, and sedimentation rates; and doing great as a personal experience.  Your doc’s assessment probably has to do with the stability of objectively tested blood factors, and maybe even movements in the right direction.  Your personal assessment is going to be influenced by the amount of stress you’re under, your expectations, and a bunch of other factors that may not even enter in to your doctor’s assessment.  I don’t mean to imply that your doctor is a better judge of your condition that you are.  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried. Does this sound reasonable to you veterans and MD’s out there?

This sounds exactly like what my doctor says.  He operates on the standard model of RA as a lifelong incurable chronic disease, and therefore concentrates on damage control.In my opinion, damage control is important, but the focus and goal of treatment have to be curing the disease. I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.

I am struggling with this one myself.  There is always something more that can be done, the question is what specifically.  More physician prescribed drugs? Which ones?Nutrition?  Being obsessive about exercise?  I’ve decided to do a survey of all the possible therapies recommended by anybody, and pick a few that I personally believe will help me to do.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?

I don’t know anything about this specifically.  But I’m not surprised that no one mentioned the connection.  Proponents of a treatment, medical or alternative, invariably "accentuate the positive, eliminate the negative" as the song says. Almost all the information I’ve got regarding the pontentially damaging side effects of the drugs I take has come from reading, not from my doc. I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?

When I got the diagnosis of RA, I immedieately got a second and third opinion. The diagnosis did not vary at all, recommended treatment varied only in details, depending mainly on exactly the same arsenal of drugs.  I’ve decided that my MD, whom I like very much, can be regarded as expressing mainstream medical opinion, and the that only second opinion that matters is mine. I hope this helps you some. Stan Stansbury

Response:

After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

The issue of miscarriages is indeed new.  In 3+ years on this ng, and 7 years as an AF instructor, I have never heard this before.  But, that is why I like this group (one of the reasons at least).  I am always learning something new. Now, to your situation.  When you say you feel "lousy," what do you mean?  Do *you* see inflammation?  Are you fatigued still?  The question of how aggressive to be with meds can be difficult.  If your RD isn’t seeing active inflammation or joint deterioration, he will be reluctant to push further.  But, you are the one who has to live with your body. So, if you are feeling the need to ask if you need a second opinion, you probably do. I have also experienced that there is only so far the meds can take us. We also have to use other means of getting well(er).  Are you exercising?  Do you do regular relaxation exercises?  How is your diet? Maybe there is something else you can do, besides adding more meds, to make you feel better than you currently feel. Hope taht helps. Walt Hanks – Hide quoted text — Show quoted text – After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

– Hide quoted text — Show quoted text – After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

I was looking for the thread re miscarriages and RA.  I did not find it yet but am interested because I am only familiar with the relation between miscarriages/lupus; miscarriages/anti-phospholipid antibodies. I’ve run arthritis support groups since c. 1986.  And I would have to put "My doctor says I feel ok but I feel like hell; what do I do?" in the top-ten questions. There are a lot of options and here are some that different people have liked in the past: have a heart-to-heart with your doc; explain that you are glad you are not worse but you want to make sure s/he knows how you are really doing…and you want to know what your treatment options are and what the risks and benefits of them are so you can make an informed choice get a second opinion keep a record of your symptoms — daily or weekly log, chart, notes of flares between appointments, short list of current symptoms, etc. Patient/doctor combinations prefer different systems; it has to be one that works for both parties some say it’s good to have someone who is involved in your life come with you to an appointment to help you observe where communication problems, if any, are…and perhaps also to help validate your day-to-day experiences We’ve had some seminars on doc/patient relationships and docs have a number of problems: sometimes the next treatments to be considered are too toxic to warrant use at the current level of symptoms often there is not enough time to spend with the patient so it helps if the patient prioritizes the current symptoms sometimes the doc doesn’t realize the patient preferences…some people would rather have more dysfunction and less medication; others would rather risk long-term side effects than have a lower quality of life in the present.  Some treatments are not good choices for patients who plan to have children, etc. Sorry so rambling; ill and tired at the moment. Hope this helps. Good luck!  Let us know what happens, Pam — Rheumatic Disease Web Site http://www.silcom.com/~sblc/ I am collecting hardship stories of people who were finacially harmed by government benefit programs (Social Security, SSI, SSDI, Medicare, Medicaid, Medi-Cal) due to working.  Please e-mail me.

Response:

The issue of miscarriages is indeed new.  In 3+ years on this ng, and 7 years as an AF instructor, I have never heard this before.  But, that is why I like this group (one of the reasons at least).  I am always learning something new.

Hi Teresa, I wish I could be of more help, but I only know the experience of a friend of mine.  She was pregnant and had some new symptoms of lupus.  After doing some reading she found out about the antibodies Dr. Susan mentioned, and was worried. She also found out there was some type of shot to take, but I don’t remember if it was before or after the birth.  She went to my rheumatologist who retested her and found that her symptoms of lupus were from the blood-pressure medicine she had been switched to during pregnancy!  And the baby was born perfect. I really don’t know where she found her information, and don’t know of anywhere to suggest looking.  Perhaps a second opinion from another RD might be helpful. You might try asking DR.Susan for more info if your see one of her posts again. I wish you all the best. Sandy F.

Response:

there is no evidence that RA results in bad fetal outcome. Regards drdoc

– Hide quoted text — Show quoted text -I was looking for the thread re miscarriages and RA.  I did not find it yet but am interested because I am only familiar with the relation between miscarriages/lupus; miscarriages/anti-phospholipid antibodies. It was in the thread "getting pregnant"  Dr. Susan made a comment about it but did not explain it further. Sorry, I don’t keep my back posts. Otherwise I would cut and paste… —Ali life is what happens when you’re making other plans…

Response:

Hi, How coincidental that youand I have been though virtually the same thing, apart frm th act that I was in hospital for three and a half momths and had a prm baby, now a strapping 6′4" paramedic, however whilst pregnant with the second child some 13 months later I started to become even more ill with heart problems. Well James was born a healthly 7pound 11 oz, baby and everything went well but it was recommended that i was I to have a tubal ligaton which I did 9 months later.I then diiscovered that I had RA and was put onto various medications and unknown to me at the time I underwent five miscarriages and this resulted at having a hysterectomy at the age of 25. I had various medications but the one I remember most was Chloroquine, and years ago  quinine  was used as a means to a spontaneuos abortion, I am talking of the days of yore! So if this quinine was used to induce an abortion what makes the doctors so sure that drugs which contain this chemical are safe nowadays. I hope they are because I can tell you that although I agreed to be sterilized, it was heartbreaking to think of each of those babies, especially as 6 months after the hysterectomy my husband of that time left me because he felt I " was no longer a woman" Very kind sort eh! I do have a happy ending though because although my present husband and I never had our own biological child, we adopted both my biological sons and they are so like him that you would never know if I never told you!! Please, any couple deciding to have a child, investigate fully all the risks from the mediations befoe you go ahead or that most precious child. Best wishes Connie. – Hide quoted text — Show quoted text – Hi, Are you pregnant?  When I was pregnant with my daughter (I have RA as well), I never felt "good" (this was my second baby and with my first I felt great). Anyway, to make a long story short.  I developed toxima 2 months before her due date.  I was placed in the hospital and delivered early.  She was in intensive care for two days and I was in intensive care for four days  (my blood pressure would not go down).  She is doing very well and turned 8 last weekend. I guess the moral of my story is be sure to check toxima out.  The doctors were baffled with my case.  Tomxima usually "hits" first time young mothers. I was 32 and Tina was my second.  The blood pressure can be stablized with drugs and bed rest.  Mine would not respond to both.  I live in Olympia and they wanted to send me to Seattle’s University Hospital, but could not stablize me enough.  It was scary.  I almost lost the baby and almost died, but everything worked out. BTW, the doctor said I probably should not have any more kids, which I have not. I don’t want to totally scare you, but if doctors knew about this possibility, they may be able to avoid some of the problems I had. Good luck, LoriV. LoriV After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

I was looking for the thread re miscarriages and RA.  I did not find it yet but am interested because I am only familiar with the relation between miscarriages/lupus; miscarriages/anti-phospholipid antibodies.

It was in the thread "getting pregnant"  Dr. Susan made a comment about it but did not explain it further. Sorry, I don’t keep my back posts. Otherwise I would cut and paste… —Ali life is what happens when you’re making other plans…

Response:

sometimes the doc doesn’t realize the patient preferences…some people would rather have more dysfunction and less medication; others would rather risk long-term side effects than have a lower quality of life in the present.

I like the above comment. This is so true. Often dr.s have their own idea of what is best (their philosophy of treatment). But ultimately it should be the patient who decides how aggressive the treatment is. —Ali life is what happens when you’re making other plans…

Response:

Hi, Are you pregnant?  When I was pregnant with my daughter (I have RA as well), I never felt "good" (this was my second baby and with my first I felt great). Anyway, to make a long story short.  I developed toxima 2 months before her due date.  I was placed in the hospital and delivered early.  She was in intensive care for two days and I was in intensive care for four days  (my blood pressure would not go down).  She is doing very well and turned 8 last weekend. I guess the moral of my story is be sure to check toxima out.  The doctors were baffled with my case.  Tomxima usually "hits" first time young mothers.  I was 32 and Tina was my second.  The blood pressure can be stablized with drugs and bed rest.  Mine would not respond to both.  I live in Olympia and they wanted to send me to Seattle’s University Hospital, but could not stablize me enough.  It was scary.  I almost lost the baby and almost died, but everything worked out. BTW, the doctor said I probably should not have any more kids, which I have not. I don’t want to totally scare you, but if doctors knew about this possibility, they may be able to avoid some of the problems I had. Good luck, LoriV. LoriV – Hide quoted text — Show quoted text – After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

Hi, I’m certainly no expert, but I empathize, and decided to share my thoughts.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?

There is a big difference between doing great as a medical case, with its associated RH factor counts, and sedimentation rates; and doing great as a personal experience.  Your doc’s assessment probably has to do with the stability of objectively tested blood factors, and maybe even movements in the right direction.  Your personal assessment is going to be influenced by the amount of stress you’re under, your expectations, and a bunch of other factors that may not even enter in to your doctor’s assessment.  I don’t mean to imply that your doctor is a better judge of your condition that you are.  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried. Does this sound reasonable to you veterans and MD’s out there?

This sounds exactly like what my doctor says.  He operates on the standard model of RA as a lifelong incurable chronic disease, and therefore concentrates on damage control.In my opinion, damage control is important, but the focus and goal of treatment have to be curing the disease. I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.

I am struggling with this one myself.  There is always something more that can be done, the question is what specifically.  More physician prescribed drugs? Which ones?Nutrition?  Being obsessive about exercise?  I’ve decided to do a survey of all the possible therapies recommended by anybody, and pick a few that I personally believe will help me to do.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?

I don’t know anything about this specifically.  But I’m not surprised that no one mentioned the connection.  Proponents of a treatment, medical or alternative, invariably "accentuate the positive, eliminate the negative" as the song says. Almost all the information I’ve got regarding the pontentially damaging side effects of the drugs I take has come from reading, not from my doc. I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?

When I got the diagnosis of RA, I immedieately got a second and third opinion. The diagnosis did not vary at all, recommended treatment varied only in details, depending mainly on exactly the same arsenal of drugs.  I’ve decided that my MD, whom I like very much, can be regarded as expressing mainstream medical opinion, and the that only second opinion that matters is mine. I hope this helps you some. Stan Stansbury

Response:

After reading the thread about miscarriages and RA I am deeply confused.  I saw my RD yesterday and he said (again) that I am doing great.  Then why do I feel so lousy?  His feeling is that I am going to have flares, but that as long as my joints remain mobile and don’t show signs of resistance to manipulation he is not worried.  Does this sound reasonable to you veterans and MD’s out there?  I am on Plaquanil and  an NSAID.  I do not get as sick as a lot of the people who post on this group, but is there more to be done so I could maybe avoid being sicker in the future.  And doesn’t it seem weird that no one mentioned the connections with miscarriage. Is this new information?  I know that nobody can make a diagnosis on a NG but opinions are needed.  I don’t know anyone else with a rheumatic disease.  PS there is only one other RD in my area.  Is it time for a second opinion?  TIA for anything anyone has to offer.  You guys are a lifesaver.  Teresa PS.  This NG has been a lifesaver for me the last few weeks, I would hate to lose any aspect of it to disagreements over jokes.

Response:

CPAP Side effects -has this happened to you?

Question:

Only after a certain point.  CO2 prompts you to breathe more, as well as dilates arteries.  O2 prompts you to breathe less, and constricts arteries. The  net effect is that with some CO2 you get better oxygenation than you would otherwise.  Only after CO2 gets high enough to drop the O2 percentage below about 19 percent (from 21) do you really have to worry.  With a CPAP, you are always supplying more air, so this is unlikely. Michael "Carl J." <c…@europa.lonestar.remove.org

wrote in message

news:slrnbmp6lj.7mt.carl@europa.lonestar.org… – Hide quoted text — Show quoted text -

In article <bkf2f4$vd…@news0.ifb.net, Martin Basil wrote: Sure sounds like it to me-  I was so afraid of the mask coming off or shifting I would force myself to lie as still as possible- sometimes keeping a hand on the mask to "make sure" it didn’t move (gremlins?). I use a Mirage FFM2 and sometimes worry that the CO2 exhaust port on

the

mask will get blocked a little bit and I’ll be breathing too much carbon dioxide all night. If this happened the CO2 reflex would wake you up just as it did before

you

had a CPAP machine. Martin Dreamin on zzzzz If you breathe too much CO2 inside the CPAP mask wouldn’t that be like

having

a low oxygen saturation level without CPAP?  Wouldn’t too much CO2 imply

too

little oxygen?

Response:

On Sat, 20 Sep 2003 18:21:03 GMT, Carl J. wrote:

If you breathe too much CO2 inside the CPAP mask wouldn’t that be like having a low oxygen saturation level without CPAP?  Wouldn’t too much CO2 imply too little oxygen?

People with normal respiratory drive breathe harder to blow off CO2 and restore O2 to its normal balance. Once it gets to a certain point, that won’t be possible… but you’ll usually be aware of it because you don’t feel well. — Offshore a CEO: buy an ADR!

Response:

That’s interesting.  Suppose the CO2 exhaust port on the mask got completely blocked by something.  Any guesses on what would happen? – Hide quoted text — Show quoted text -In article <8X1bb.6638$YW2.1…@news02.roc.ny

, Herman Family wrote: Only after a certain point.  CO2 prompts you to breathe more, as well as dilates arteries.  O2 prompts you to breathe less, and constricts arteries. The  net effect is that with some CO2 you get better oxygenation than you would otherwise.  Only after CO2 gets high enough to drop the O2 percentage below about 19 percent (from 21) do you really have to worry.  With a CPAP, you are always supplying more air, so this is unlikely. Michael "Carl J." <c…@europa.lonestar.remove.org wrote in message If you breathe too much CO2 inside the CPAP mask wouldn’t that be like having a low oxygen saturation level without CPAP?  Wouldn’t too much CO2 imply too little oxygen?

Response:

If it got completely plugged, then you could be in some trouble unless there was some other place for the air to leave.   I have two ports on the mask, plus an opening were the hose meets the mask, so it is unlikely that you will block everything off. If you did block everything off, and your mask was tight enough, you could have some problems after a while. Michael "Carl J." <c…@europa.lonestar.remove.org

wrote in message

news:slrnbmpicd.8gk.carl@europa.lonestar.org… – Hide quoted text — Show quoted text -

That’s interesting.  Suppose the CO2 exhaust port on the mask got

completely

blocked by something.  Any guesses on what would happen? In article <8X1bb.6638$YW2.1…@news02.roc.ny, Herman Family wrote: Only after a certain point.  CO2 prompts you to breathe more, as well as dilates arteries.  O2 prompts you to breathe less, and constricts

arteries.

The  net effect is that with some CO2 you get better oxygenation than

you

would otherwise.  Only after CO2 gets high enough to drop the O2

percentage

below about 19 percent (from 21) do you really have to worry.  With a

CPAP, > > you are always supplying more air, so this is unlikely. > > Michael > > "Carl J." <c…@europa.lonestar.remove.org

wrote in message

> >> If you breathe too much CO2 inside the CPAP mask wouldn’t that be like > > having > >> a low oxygen saturation level without CPAP?  Wouldn’t too much CO2 imply

too little oxygen?

Response:

On Sat, 20 Sep 2003 22:41:59 GMT, Herman Family wrote:

If it got completely plugged, then you could be in some trouble unless there was some other place for the air to leave.   I have two ports on the mask, plus an opening were the hose meets the mask, so it is unlikely that you will block everything off. If you did block everything off, and your mask was tight enough, you could have some problems after a while.

Your brain would most likely wake you up first. — Offshore a CEO: buy an ADR!

Response:

http://www.nytimes.com/2003/09/21/magazine/21DIAGNOSIS.html According this medical case study, "Elevated levels of carbon dioxide make you sleepy".  So maybe you wouldn’t wake up with the CPAP mask CO2 port blocked? ————————————————————————— A third test explained his unusual sleepiness. It showed that the patient had high levels of carbon dioxide in his blood. Normally, you breathe in oxygen and breathe out carbon dioxide. Elevated levels of carbon dioxide make you sleepy. Our patient had what is quaintly called Pickwickian syndrome, so named after a character in Charles Dickens’s ”Pickwick Papers.” Those with this syndrome, like Joe, the character in the book, and like our own patient, are obese and, because of that, can’t clear their lungs of carbon dioxide. Also known as obesity hypoventilation syndrome, it was first described in the medical literature in the 1950’s and is now a widely recognized complication of morbid obesity. ————————————————————————— I haven’t heard of Pickwickian Syndrome, but apparently it is a different condition than apnea but has the same result (sleepiness) and can have one of the same causes (obesity). – Hide quoted text — Show quoted text -In article <4cppmvkeveoa74189h18739cpa152ol…@4ax.com

, Charles Perrin wrote: On Sat, 20 Sep 2003 22:41:59 GMT, Herman Family wrote: If it got completely plugged, then you could be in some trouble unless there was some other place for the air to leave.   I have two ports on the mask, plus an opening were the hose meets the mask, so it is unlikely that you will block everything off. If you did block everything off, and your mask was tight enough, you could have some problems after a while. Your brain would most likely wake you up first. — Offshore a CEO: buy an ADR!

Response:

On Sun, 21 Sep 2003 18:08:19 GMT, Carl J. wrote:

I haven’t heard of Pickwickian Syndrome, but apparently it is a different condition than apnea

Pickwickian Syndrome: obesity, somnolence (sleepiness), hypoventilation (underbreathing) WHEN AWAKE. Most Pickwickians also have sleep apnea. — Offshore a CEO: buy an ADR!

Response:

In article <rfhsmv46da4g9laijhnskfe0raqcnvl…@4ax.com

, Charles Perrin wrote: On Sun, 21 Sep 2003 18:08:19 GMT, Carl J. wrote: I haven’t heard of Pickwickian Syndrome, but apparently it is a different condition than apnea Pickwickian Syndrome: obesity, somnolence (sleepiness), hypoventilation (underbreathing) WHEN AWAKE. Most Pickwickians also have sleep apnea.

Then those poor folks are twice as tired.

Response:

In article <MPG.19d44356284b7557989…@news.chi.sbcglobal.net

, Victor Radin wrote: Sure sounds like it to me-  I was so afraid of the mask coming off or shifting I would force myself to lie as still as possible- sometimes keeping a hand on the mask to "make sure" it didn’t move (gremlins?).

I use a Mirage FFM2 and sometimes worry that the CO2 exhaust port on the mask will get blocked a little bit and I’ll be breathing too much carbon dioxide all night.

Response:

Sure sounds like it to me-  I was so afraid of the mask coming off or shifting I would force myself to lie as still as possible- sometimes keeping a hand on the mask to "make sure" it didn’t move (gremlins?). I use a Mirage FFM2 and sometimes worry that the CO2 exhaust port on the

mask

will get blocked a little bit and I’ll be breathing too much carbon

dioxide all

night.

If this happened the CO2 reflex would wake you up just as it did before you had a CPAP machine. Martin Dreamin on zzzzz

Response:

- Hide quoted text — Show quoted text -In article <bkf2f4$vd…@news0.ifb.net

, Martin Basil wrote: Sure sounds like it to me-  I was so afraid of the mask coming off or shifting I would force myself to lie as still as possible- sometimes keeping a hand on the mask to "make sure" it didn’t move (gremlins?). I use a Mirage FFM2 and sometimes worry that the CO2 exhaust port on the mask will get blocked a little bit and I’ll be breathing too much carbon dioxide all night. If this happened the CO2 reflex would wake you up just as it did before you had a CPAP machine. Martin Dreamin on zzzzz

If you breathe too much CO2 inside the CPAP mask wouldn’t that be like having a low oxygen saturation level without CPAP?  Wouldn’t too much CO2 imply too little oxygen?

Response:

I also find that I am so still that I can sleep on my arm and cut off circulation enough to have it fall a sleep mostly pins and needles. Where before I was up almost every hour. Now I only wake once or twice a night. Also not too bad.

I had a simliar problem, blamed cpap – turned out to be carpal tunnel syndrome, doctor said cutting off the circulation creates pain whereas "falling asleep" is a pinched nerve. Even though it was my entire arm, the nerves pinched  were the one at the base of my hands – my right has been repaired but I am waiting for next year to schedule time off ( 6 weeks) for the surgery on my other hand.

That was until recently. Before I started with my CPAP I had hurt my lower back. Now I am waking at 2:30 -4:00 AM with back and abdominal pains. Last night I finally figured it out. Most of the CPAP users are probably at 9 or 10. Well no not me I am at a whopping 16. I think that was a little high due to some problems with the sensors in my sleep study. For example I had so much tape on my face the mask easily leaked.

I also had a lot of trouble with my back, I wear corrective shoe to help eliminate back pain but could never lay in one position for any length of time. That has changed , I now start out sleeping on my stomach, with a addtional pillow under my chest to help keep me up so the mask doesn’t push too hard and it helps level things out because I am fat with a big belly. After an hour or two I start moving but the back pain doesn’t come,  I don’t understand it but if I need to sleep on my stomach for an hour or two to prevent lower back pain I will.

Anyway after my CPAP ramps (REMSTAR PRO w C FLEX) up I find that I am tightening my abdomen (Diaphragm) to block or compensate for the pressure. This in turn tenses my lower back.

I am at about 17 cm and don’t use the ramp up feature, I like to know what leaks I am going to have before I fall asleep.  My cpap is at full pressure before I put on the mask, I hardly ever adjust it anymore, just hook it up, wiggle it a few time to seat it the proper position and let it go. Usually after a hour or two I can’t feel the air at all, I need to open my mouth to tell if the cpap is working. However, at first, I remember having some stiffness in the chest, abdomin from exercising the muscles – that went away after a few weeks. I would not worry too much, it sounds like your body is going through a period of adjustment. It took several months for me to reach a point where I could sleep a couple hours straight without moving or waking up. Air leaks are soemthing that are hard to stop, I never have been able to eliminate them completely.  The less you move the better, but at first you tend to move a lot. Give it time, hang in there.  I like the Aclaim 2, it has a setup that allows you to roll you head and not change the way it pulls on the mask – you may want to look at it. I bought my online without a subsciption for about $70.00 , may have been cpap-supply.com Good luck, and hang in there, for some of us it takes a while but well worth the effort joe

Response:

Thanks to all of you that posted replies so quickly. I now feel like one of the CPAP Newbies soon to be a seasoned "Hose Head" as one put it. Rich – Hide quoted text — Show quoted text -richard.lessa…@verizon.net (Bachi) wrote in message <news:bcd9bcd1.0309161524.17da1227@posting.google.com

… I have been using a CPAP for about 2 weeks. I was looking for resources on the side effects or changes people go through after using a CPAP. Has this happened to anyone else?

Response:

In article <Xns93FA50A95EC34partmapsbellsouth…@216.77.188.2

,

partm…@bellsouth.net says…

Once I stopped worrying about whether the mask was going to come off and stopped being "tied" to one position, the pain went away. Hope this helps, Vic quick question….do you think this could be a problem in trying to go to sleep initially with the mask on?  Also, could it be waking me when I *am* able to fall asleep with the mask on?  (being afraid of dislodging the mask itself at some point by moving) Wendy

Sure sounds like it to me-  I was so afraid of the mask coming off or shifting I would force myself to lie as still as possible- sometimes keeping a hand on the mask to "make sure" it didn’t move (gremlins?). Then again- I also do similar things now with the trach- checking the tube so nothing blocks it, adjusting the collar, that sort of thing. The only time I don’t do this is when I sleep in the recliner. I guess there’s no gremlins to screw around with the tubes in the living room.

Response:

(snip snip)

Once I stopped worrying about whether the mask was going to come off and stopped being "tied" to one position, the pain went away. Hope this helps, Vic

quick question….do you think this could be a problem in trying to go to sleep initially with the mask on?  Also, could it be waking me when I *am* able to fall asleep with the mask on?  (being afraid of dislodging the mask itself at some point by moving) Wendy —

Response:

I have been using a CPAP for about 2 weeks. I was looking for resources on the side effects or changes people go through after using a CPAP. This seems to be the best place. I did  much better with it the first week than the second. Some of my symptoms are a change in digestion/bowel movements. Not anything to worry about. I also find that I am so still that I can sleep on my arm and cut off circulation enough to have it fall a sleep mostly pins and needles. Where before I was up almost every hour. Now I only wake once or twice a night. Also not too bad. That was until recently. Before I started with my CPAP I had hurt my lower back. Now I am waking at 2:30 -4:00 AM with back and abdominal pains. Last night I finally figured it out. Most of the CPAP users are probably at 9 or 10. Well no not me I am at a whopping 16. I think that was a little high due to some problems with the sensors in my sleep study. For example I had so much tape on my face the mask easily leaked. Anyway after my CPAP ramps (REMSTAR PRO w C FLEX) up I find that I am tightening my abdomen (Diaphragm) to block or compensate for the pressure. This in turn tenses my lower back. Has this happened to anyone else?

Response:

In article <bcd9bcd1.0309161524.17da1…@posting.google.com

,

richard.lessa…@verizon.net says…

I have been using a CPAP for about 2 weeks. I was looking for resources on the side effects or changes people go through after using a CPAP.

<<snippage

  Has this happened to anyone else?

Richard- A pressure of 16 isn’t so uncommon. Pre-trach I was on BiPAP at 20in/15out, so I can sympathize with the force of the air going in. I experienced similar pins & needles and other pains whenever I did not change position often enough. In my case I think it was due to my semi- consiously trying NOT to disturb the mask fit and thus did not move and caused the muscle aches from staying in one position almost all night. Once I stopped worrying about whether the mask was going to come off and stopped being "tied" to one position, the pain went away. Hope this helps, Vic

Response:

"Bachi" <richard.lessa…@verizon.net

wrote in message

news:bcd9bcd1.0309161524.17da1227@posting.google.com…

I have been using a CPAP for about 2 weeks. I was looking for resources on the side effects or changes people go through after using a CPAP. This seems to be the best place.

www.talkaboutsleep.com has a forum also.

I did  much better with it the first week than the second.

hang in there.

Some of my symptoms are a change in digestion/bowel movements. Not anything to worry about.

ok… many with OSA made frequent, regular trips to the bathroom during the night to urinate. Seems that your heart gets stressed and tells the body to dump fluids. Most find this greatly reduced if not eliminated with CPAP treatment.  maybe this isn’t what you are referring to.

I also find that I am so still that I can sleep on my arm and cut off circulation enough to have it fall a sleep mostly pins and needles. Where before I was up almost every hour. Now I only wake once or twice a night. Also not too bad.

This may be related to your symptom below.

That was until recently. Before I started with my CPAP I had hurt my lower back. Now I am waking at 2:30 -4:00 AM with back and abdominal pains. Last night I finally figured it out. Most of the CPAP users are probably at 9 or 10. Well no not me I am at a whopping 16. I think that was a little high due to some problems with the sensors in my sleep study. For example I had so much tape on my face the mask easily leaked. Anyway after my CPAP ramps (REMSTAR PRO w C FLEX) up I find that I am tightening my abdomen (Diaphragm) to block or compensate for the pressure. This in turn tenses my lower back. Has this happened to anyone else?

Maybe?  Many complain of chest/back pain initially. Many adjust over a few weeks or months. It does take more muscle to breathe out against the pressure.  Basically you are being inflated like a balloon. I find that I now sleep between 6 and 7 hours with very little variance. Most often I wake with some back pain. If I remain in bed it gets worse quickly. Its usually gone by the time I finish my morning shower. I’m not sure but I think its a combination of mainly sleeping on my back in one position without moving all night and the extra effort to breath. I’m at 12cm. My thinking is that it didn’t bother me before treatment because I was "exercising" all night long and getting up 3 times a night to go to the bathroom. -Quick

Response:

"Bachi" <richard.lessa…@verizon.net

wrote in message I was looking for resources on the side effects or changes people go

through after using a CPAP. The previous link given is probably the best starting point.  Another is Tal’s – unfortunately I have lost the link.

I did  much better with it the first week than the second.

Not unusual – many folks go through cycles.  I went through what I can only describe as euphoria the first while – never really appreciated sleep till I had it ;-)

Some of my symptoms are a change in digestion/bowel movements. Not anything to worry about.

Again not uncommon.  Your metabolism is changing.  Watch as well for any changesto your reaction to medication – high blood pressure medication and anti depressants can be found to be too high a level.  If you take any pills – monitor your reaction and discuss with your prescribing doctor.

I also find that I am so still that I can sleep on my arm and cut off circulation enough to have it fall a sleep mostly pins and needles.

The first month I finally understood "sleeping like a log".  I also understoood pressure pains :) .  The time for passing through this phase varies with each individual.

That was until recently. Before I started with my CPAP I had hurt my lower back. Now I am waking at 2:30 -4:00 AM with back and abdominal pains. Last night I finally figured it out.

Not necessarily. The lack of movement during sleep can aggravate any muscular or joint pain.   You can wait till more normal movement returns or discuss with your doctor.  In the meantime, standard appproach: over the counter pain killers you tolerate, hot water bottle (I love mine), hot bath before bed, stretching exercise you can tolerate … do a search on www.google.com for info on dealing with the pain.

Anyway after my CPAP ramps (REMSTAR PRO w C FLEX) up I find that I am tightening my abdomen (Diaphragm) to block or compensate for the pressure. This in turn tenses my lower back.

Haven’t had chest pains yet?  Wait till your muscles that haven’t worked much start feeling the strain – it passes, but until they get in shape you have to wonder where they came from!

Has this happened to anyone else?

That and other things.  Waking up ripping your mask off – and then sitting wondering why (seems less common and short lived – but some go months).  Do you have a humidifier – wait for ‘rain out’ – aside from nightmares never woke with such a start.  No humidifier – nasal congestion and sore throat. Except for the rare individual, most "side effects’ pass.  Other side effects like lower blood pressure, a memory that functions, energy, better control of your temper, reduced or eliminated depression, (for the lucky ones) reduced weight … they seem to be pretty permanent.  And the one I personally like – waking up in the morning! Welcome hose head – to a life that you almost missed out on.

Response:

I also find that I am so still that I can sleep on my arm and cut off circulation enough to have it fall a sleep mostly pins and needles. Where before I was up almost every hour. Now I only wake once or twice a night. Also not too bad.

I have the same but now sleep for 2/3 hours compared to 1/2 to 1 hour at a time. I frequently find the circulation cut-off  in my arms whereas before I would never have been in one place long enough for that to happen. I am still restless compared to my wife and two sons who lay motionless for 8 hours. How I envy them, but at least I now get some REM, wake refreshed and don’t nod off during the day.

That was until recently. Before I started with my CPAP I had hurt my lower back. Now I am waking at 2:30 -4:00 AM with back and abdominal pains. Last night I finally figured it out. Most of the CPAP users are

Until I was in my 30’s I always slept on my back and always had backache which went away when I started sleeping on my side. I suppose it is due to curvaturee of the spine.

probably at 9 or 10. Well no not me I am at a whopping 16. I think that was a little high due to some problems with the sensors in my sleep study. For example I had so much tape on my face the mask easily leaked. Anyway after my CPAP ramps (REMSTAR PRO w C FLEX) up I find that I am tightening my abdomen (Diaphragm) to block or compensate for the pressure. This in turn tenses my lower back.

My pressure is 7 to 9 and I don’t have the abdominal problems so the high pressure sounds like the cause. I still get occasional leaks once the CPAP has ramped depending on how I am laying. Martin Dreaming on zzzzzzzzzzzz

Response:

On 16 Sep 2003 16:24:29 -0700, Bachi wrote:

I have been using a CPAP for about 2 weeks. I was looking for resources on the side effects or changes people go through after using a CPAP. That was until recently. Before I started with my CPAP I had hurt my lower back. Now I am waking at 2:30 -4:00 AM with back and abdominal pains. Last night I finally figured it out. Most of the CPAP users are probably at 9 or 10. Well no not me I am at a whopping 16.

I’m at an almost-whopping 15 and my nephew is at an almost-almost-whopping 14.  <wink

Anyway after my CPAP ramps (REMSTAR PRO w C FLEX) up I find that I am tightening my abdomen (Diaphragm) to block or compensate for the pressure. This in turn tenses my lower back. Has this happened to anyone else?

I noted a bit of stiffness at first but it did go away after a while. — Offshore a CEO: buy an ADR!

Response:

Bachi <richard.lessa…@verizon.net

wrote: I have been using a CPAP for about 2 weeks. I was looking for resources on the side effects or changes people go through after using a CPAP. This seems to be the best place.

As good a place as you are likely to find.

I did  much better with it the first week than the second.

It happens.

Some of my symptoms are a change in digestion/bowel movements. Not anything to worry about. I also find that I am so still that I can sleep on my arm and cut off circulation enough to have it fall a sleep mostly pins and needles. Where before I was up almost every hour. Now I only wake once or twice a night. Also not too bad.

I could not sleep on my back before CPAP, now I sleep mostly on my back. The lack of movement does cause me some sore muscles in the back when I waken. A bit of walking to get the muscles to move and the pain is gone.

Now I am waking at 2:30 -4:00 AM with back and abdominal pains. Last night I finally figured it out. Most of the CPAP users are probably at 9 or 10. Well no not me I am at a whopping 16. Anyway after my CPAP ramps (REMSTAR PRO w C FLEX) up I find that I am tightening my abdomen (Diaphragm) to block or compensate for the pressure. This in turn tenses my lower back.

I noticed some aching in the muscles in the chest for the first month or so from breathing out against the pressure that I was not used to. It went away after the first 6 or 8 weeks.

  Has this happened to anyone else?

Probably. Ross Bernheim

Response:

MEDI-CAL MEDICAID SHARE OF COST HELP NEEDED

Question:

I deal with Medicaid issues on a daily basis for seniors in Oregon; however Medicaid is administered differently from state to state.  California is one state that adds quite a bit of benefits to the minimal amount the federal government allocates to each state.  I would suggest that you contact your MediCal case manager or eligibility worker for answers.  If you are not getting the answers you need then ask for a meeting with his/her supervisor. You might also want to see a good attorney about setting up an irrevocable trust to protect you/and or your wife’s assets. — DeLores Wilson Hillsboro, OR

– Hide quoted text — Show quoted text – Just an FYI: With the subject line you chose and it being in all caps, it kinda looked like you were soliciting money, and I was suspicious of a "please give me money" type of post as I read the first paragraph because of the title. I’m changing your subject line a bit in hopes of getting more attention for you, cuz your question is a good one. Unfortunately I can’t answer it. Good luck!! Aim Help! My name is Harlan, and on Nov. 7th ‘02 was involved in a car accident leaving me paralized from the middle of my chest down. I had no health insurance since I was unemployed at the time so I applied for our state Medicaid, here Medi-Cal. After 4 month in the hospital I was told I was approoved. Then I recieved a share of cost letter in the mail. According to this I owe $2845.00 a month for each month I recieved care….and $2845.00 for any care following each month before Medi-Cal kicks in. This was based on my getting state disability and my wifes income. Now I am only 27 & newly married, we have a house payment <$1300, a daughter, 1 car, and a ton of bills. We are not living the "high life", just paying utilities, mortgage, food, etc. Needless to say we are making it with about $500 to put towards my medical care every month. I am in a "loaner" wheelchair right now. But, from the looks of it I am going to have to pay out $14,225 before I can get my own. (I don’t know when they are coming for this one either.) I printed up a fact sheet on Medi-Cal that said you could use unpaid medical bills and medical supplies (by prescription) to lower your share of cost. Do you have any ideas on getting that $2845/mo down so I can use the actual $500/mo I have. Getting prescriptions from doctors is tricky to say the least. Especially for every gauze pad & roll of paper tape. How do you go about getting a therapy prescription? Thank you! Aim Be who you are and say what you feel Because those who mind don’t matter And those who matter don’t mind -Dr. Seuss http://www.aimgrrrl.com my Enbrel journal: http://www.livejournal.com/users/aims_as_journal

Response:

Sorry, don’t have any help that I can offer, but am changing your subjuct just a tad to try to get someone in your area to help answer your questions.   You may not get too many responses because of the name you are using—secret seller—people may very well just skip this thread because they may think it is from a spammer or troll due to that name used.   Just so you know.   Good luck to you though!!!  Sure hope you can find some answers!!! Donna G

Response:

Just an FYI: With the subject line you chose and it being in all caps, it kinda looked like you were soliciting money, and I was suspicious of a "please give me money" type of post as I read the first paragraph because of the title. I’m changing your subject line a bit in hopes of getting more attention for you, cuz your question is a good one. Unfortunately I can’t answer it. Good luck!! Aim – Hide quoted text — Show quoted text – Help! My name is Harlan, and on Nov. 7th ‘02 was involved in a car accident leaving me paralized from the middle of my chest down. I had no health insurance since I was unemployed at the time so I applied for our state Medicaid, here Medi-Cal. After 4 month in the hospital I was told I was approoved. Then I recieved a share of cost letter in the mail. According to this I owe $2845.00 a month for each month I recieved care….and $2845.00 for any care following each month before Medi-Cal kicks in. This was based on my getting state disability and my wifes income. Now I am only 27 & newly married, we have a house payment <$1300, a daughter, 1 car, and a ton of bills. We are not living the "high life", just paying utilities, mortgage, food, etc. Needless to say we are making it with about $500 to put towards my medical care every month. I am in a "loaner" wheelchair right now. But, from the looks of it I am going to have to pay out $14,225 before I can get my own. (I don’t know when they are coming for this one either.) I printed up a fact sheet on Medi-Cal that said you could use unpaid medical bills and medical supplies (by prescription) to lower your share of cost. Do you have any ideas on getting that $2845/mo down so I can use the actual $500/mo I have. Getting prescriptions from doctors is tricky to say the least. Especially for every gauze pad & roll of paper tape. How do you go about getting a therapy prescription? Thank you!

Aim Be who you are and say what you feel Because those who mind don’t matter And those who matter don’t mind -Dr. Seuss http://www.aimgrrrl.com my Enbrel journal: http://www.livejournal.com/users/aims_as_journal

Response:

Help! My name is Harlan, and on Nov. 7th ‘02 was involved in a car accident leaving me paralized from the middle of my chest down. I had no health insurance since I was unemployed at the time so I applied for our state Medicaid, here Medi-Cal. After 4 month in the hospital I was told I was approoved. Then I recieved a share of cost letter in the mail. According to this I owe $2845.00 a month for each month I recieved care….and $2845.00 for any care following each month before Medi-Cal kicks in. This was based on my getting state disability and my wifes income. Now I am only 27 & newly married, we have a house payment <$1300, a daughter, 1 car, and a ton of bills. We are not living the "high life", just paying utilities, mortgage, food, etc. Needless to say we are making it with about $500 to put towards my medical care every month. I am in a "loaner" wheelchair right now. But, from the looks of it I am going to have to pay out $14,225 before I can get my own. (I don’t know when they are coming for this one either.) I printed up a fact sheet on Medi-Cal that said you could use unpaid medical bills and medical supplies (by prescription) to lower your share of cost. Do you have any ideas on getting that $2845/mo down so I can use the actual $500/mo I have. Getting prescriptions from doctors is tricky to say the least. Especially for every gauze pad & roll of paper tape. How do you go about getting a therapy prescription? Thank you!

Response:

Animal Hospitals Can Be Death Traps (long)

Question:

Well that is good because a business should check first with their client and pretty much give the customer a detailed list of charges. That is just good business practice. — The station that has cats meowing for more. Cat Galaxy- The Internet radio station for cats. Meow meow meow!! http://members.cox.net/catprotector/station Real Player, Winamp and Windows Media Player http://www.live365.com/play/231353 The forum for felines everywhere. Join the Cat Galaxy Forum today! Meow! http://communities.msn.com/CatGalaxy

– Hide quoted text — Show quoted text – at I work for a phone company, and I guarantee you that we would check first, if we had two card numbers, before we posted a payment to either. Granted we are small and have a luxury larger companies would not have. I cannot believe this vet practice is so huge that they could not follow this same practice. I know you do not legally have a recourse on this point since you did give the card number, however, you are correct in saying that it would be good business sense to notate something like this and check with the client. karen

Response:

I am so sorry to hear about your experience.  I would definitely pursue it. I think this vet is being extremely aggressive and very unsympathetic.  I would make a point of contacting the television show that he regulary appears on to explain to them this gentleman has no bedside manner. I find his letter to demonstrate characteristics of someone who is condescending and verbally abusive.  I’m sorry George spent any time with this turkey. My thought are with you, I urge you to report him to the American Veterinary Association, and I would provide them with a copy of the letter he sent you. My thought are with you. Sharon

Response:

Just a few thoughts here and please just take this as my opinion.  As someone who works for a vet clinic, I’m probably coming from a different viewpoint.  I don’t wish to start any flames. For one, very few animal hospitals are staffed full time.  The fact that they even had an assistant there after hours is unusual.  Most places have signs in the waiting room or treatment areas that clearly state this.  One should always assume that the clinic is not staffed after hours rather than the opposite.  My clinic is different because one of the vets actually lives there, but again this is highly unusual.  The vet did the responsible thing by suggesting you take the cat to a different clinic.  We would do the same if the live in doctor wasn’t home and a pet needed urgent care we couldn’t provide.  The letter was absolutely right than even humans are commonly transferred in the event the first hospital is unable to care for them.  It is the only right choice to make. Also, I am confused by your statement that you don’t like ER care.  Are you suggesting that very sick pets should usually be PTS rather than treated? Finally, I think you need to try to consider this from the vet’s point of view.  A patient isn’t only a medical case to a vet or doctor.  They invest time, effort, and spirit into trying to save them.  It sounds like the vet did the best he could and that the cat was doing more poorly than expected but not really on the verge of death.  He did the responsible (and only) thing he could do by requesting the cat be transferred to a clinic better able to care for the animal.  You choose to have the cat PTS.  Now, that is your choice and since I don’t know the condition George was in or his chances from your post, I won’t say if it was right or wrong.  But to a vet that has done his best and cared about the patient, the loss can be almost as bad as for the owner, especially if he believes it was wrongly ordered, mistakenly or not.  I can understand where his anger is coming from, especially if you than attacked him for it and suggested you had no choice in what you did.  You always had a choice.  You choose to do the surgery. If you mentioned PTS or not or they did, you knew the option existed. There are two sides to every story.  Sometimes when a vet has done all he or she can to help a pet, he or she becomes very emotionally entangled in the case.  While his response was out of line and shouldn’t have been worded in that way, I can see where he’s coming from. As for the card use…that’s a different matter all together and does sound like something was done wrong there. Sethran

Response:

– Hide quoted text — Show quoted text -Finally, I think you need to try to consider this from the vet’s point of view.  A patient isn’t only a medical case to a vet or doctor.  They invest time, effort, and spirit into trying to save them.  It sounds like the vet did the best he could and that the cat was doing more poorly than expected but not really on the verge of death.  He did the responsible (and only) thing he could do by requesting the cat be transferred to a clinic better able to care for the animal.  You choose to have the cat PTS.  Now, that is your choice and since I don’t know the condition George was in or his chances from your post, I won’t say if it was right or wrong.  But to a vet that has done his best and cared about the patient, the loss can be almost as bad as for the owner, especially if he believes it was wrongly ordered, mistakenly or not.  I can understand where his anger is coming from, especially if you than attacked him for it and suggested you had no choice in what you did.  You always had a choice.  You choose to do the surgery. If you mentioned PTS or not or they did, you knew the option existed. There are two sides to every story.  Sometimes when a vet has done all he or she can to help a pet, he or she becomes very emotionally entangled in the case.  While his response was out of line and shouldn’t have been worded in that way, I can see where he’s coming from. As for the card use…that’s a different matter all together and does sound like something was done wrong there. Sethran

Since Sethran has done such a good job of saying the things I was going to, I am only going to add on a little bit more. I find the sentence "Unfortunately Dr. Katz wound up at the hospital herself with a personal crisis that night." significant.  The way I read that, the vet was in the (human) hospital with a medical emergency.  If that’s the case, then the vet writing the letter may be less sympathetic than normal because they have a sick colleague to deal with, as well as your complaint. Finally, I want to use this chance to emphasize to everyone that you need to fight for whatever level of care you want.  If you want to treat aggressively, make sure that the doc knows that, and takes appropriate action.  If you want to only do palliative care, make sure you tell people that and stick up for your decision. Rebecca

Response:

I am not siding with anyone here. I just think for future reference you might choose one card for emergencies. What he did may have been sneaky but I think the fact here is that you did (and you stated this) give them your debit card number. I would have given them your credit card number. I am guessing here that you had a visa debit or something which is not really the same as an actual credit card. It may look like a credit card but it does take it directly out of your checking account. If it was a regular debit then I don’t really see how they could have your pin number unless you gave it to them which is never recommended as this poses a huge security risk. I think when tragedy happens there are always lessons to be learned somewhere. I think on your side you got what appears to be a bad doctor but financially the lesson here for you is never use two seperate cards especially if you are unable to pay the bill. Sticking to one card and using it for all the emergencies would have been better in this case especially when you said you had to pay your rent. Also not to defend the doctor who may have done a poor job here, according to what you posted you did in a way give them authorization (even though they should have asked for an ok a second time and let you know what they were charging). I think from what I gathered here was they may have assumed you authorized the payment by putting a card or in this case both cards down. Yes, the doctor appears to be a bit cold in his response and you have a right to be mad in this whole situation. Like I said you have my sympathies and I hope your cat had a good life. I think when you can collect yourself then it is time to handle the legal battle. Good luck. — The station that has cats meowing for more. Cat Galaxy- The Internet radio station for cats. Meow meow meow!! http://members.cox.net/catprotector/station Real Player, Winamp and Windows Media Player http://www.live365.com/play/231353 The forum for felines everywhere. Join the Cat Galaxy Forum today! Meow! http://communities.msn.com/CatGalaxy

– Hide quoted text — Show quoted text – My point is, compassion aside, good business practice would lead one to submit a bill even if it’s certain to be rejected. What he did was sneaky. He had two credit card numbers; even if no one remembered which I had asked to use he could have confirmed with me. By writing if necessary. On the phone today, his assistant agreed to cancel the charge and I took her at her word until I got the quoted letter. I use my debit card for anything I can pay for immediately. Understandably the clinic wanted a credit card down on my agreement to the surgery, so I gave them a different card and said, "Please don’t use the card I gave you today for the surgery payment." Am I a schmuck? Dr. Raclyn finding ways to point it out to me.

Response:

Thank you for your very kind reply. I am very sorry to hear of your trouble, and I hope you have a beautiful if painful experience with his or her final stage. That’s all I expected from the experts but it appears I have a completely different notion of what their role is. I realize that I am not making myself clear on euthanasia, either to you or to the vet, although I thought I was very clear with him.

Trust me hon, I am not making excuses for the surgeon or the referral. Seriously. And I am not "pretending" to understand what you are going through.  My only point in replying was that I understand emotion and that you are filled with it and you have that right. It doesn’t mean I understand "experts".  On the contrary.  But I guess I misunderstood your posting.  Are you saying you wanted George euthanized and they didn’t comply? – Hide quoted text — Show quoted text – I said goodbye to George the day before I took him in (in fact I was advised to). I am at peace with George, my memory of him, what I tried to do to help him, what I did. I was the entire way, as soon as I committed to the ultra-sound. I knew that eventually I would have to put George to sleep and I preferred he die with me than with strangers. I knew things would never be the same with him. I also knew that I would be a much better bulwark to my next kitty’s health and long life no matter how this turned out. I’m not a great fan of emergency medicine. In the final analysis, I believe more cats are PTS by loving owners than die on the operating table or at home "naturally." This has to be built-in to a vet’s "business," not to mention their art. But what I’m getting from him is plausable deniability. It doesn’t make me angry, it makes me curious if the entire network of professional veterinary organizations are willing to condone this as acceptable practice. I was not looking for a cure. I was looking for dignity. He knew that and he blew it. I don’t want revenge, I want to burst his bubble of ethical competency. I may at the end of the day have to pay the bill as he sees it. But my coping with George’s death and my indignation at our treatment are now two different things. I stick to my point: since they could not offer much assurance or on the spot treatment for what was obviously a serious condition, then why did they take the choice of euthanasia away from me until I had travelled in panic somewhere else to start all over again with George in my lap. Moving on: How long has your kitty been in the hospital?

He’s home now.  He was in for a day and spent the night. They wanted to keep him another day but the oncologist was going on vacation so I felt since I could be home I could care for him as well as the techs. He was happier in my bed rather than a cage.  I hardly slept watching him. If you’re not happy, and you’re committed, I think you should find a vet who is associated with several hospitals and get her/his advice about what to do next.

I’m committed.  I only just found out the vet is an intern (no offence to any of you interns out there) I think the surgeon was probably great but she wasn’t available and I was dealing with her through her mutual self-interest with Dr. Raclyn, rather than directly. You need someone who will be accountable to you not her employer. Who is willing to get your cat out of where he/she is safely and watch her closely once she needs to be admitted elsewhere, if she does. Take possession of her records now, if you haven’t already.

Several of my friends have only just told me the same thing. (to get copies of the records since it was a referral) Don’t wait until the last moment to find out what the doctors really think. Above all, don’t rely on their specialist, find anybody qualified who will support your goals. I don’t think working for a salary in the hospitals helps them realize what you want if they don’t know you.

*confused* Do a search for holistic vets and narrow it down to your area. Most of them I’ve found have DVMs also and have practiced for a number of years in conventional settings. They usually associate themselves with hospitals but they get paid by the client. Kind of like a real people specialist (I know, they’re super versions of this arrogance I’ve encountered). Also please read about cures, palliation, whatever

I always thought that was the vet’s job.  I try to find out as much as I can though. coming from within the patient and not from without by dramatic urgent means. If you and your pet can back away from emergency mode and buy yourself any amount of time, you can regain control and have a great experience, albeit a terribly sad and painful one.

*confused again* I don’t believe animals contemplate their own death, and it’s a blessing for them and for us. They do know that for as long as they have life they love you. And we should appreciate it deep down no matter how the plot plays out. I learned a lot about love from Georgie in the past two weeks and I’m not done loving yet.

Agreed.  Pets do teach unconditional love.  George’s spirit and his love will live on with you.  Best wishes with exposing that schister vet.  Watta low life. – Hide quoted text — Show quoted text –

Response:

– Hide quoted text — Show quoted text – Yeah the reply seems pretty fierce from the doctor but sometimes when the customer thinks they are wrong, like the customer service you get with the phone company they back each other up. There is one part of this that I don’t understand. You say this doctor billed you or put through an estimate on a debit card you asked not to be used and therefore your rent check will bounce? How can you be mad about that unless you gave them the card number? From that standpoint I can see where you might not have the right to be mad. The only way a debit card can be used is if they first have the number. I am sorry for your loss but I am a bit confused here. My point is, compassion aside, good business practice would lead one to submit a bill even if it’s certain to be rejected. What he did was sneaky. He had two credit card numbers; even if no one remembered which I had asked to use he could have confirmed with me. By writing if necessary. On the phone today, his assistant agreed to cancel the charge and I took her at her word until I got the quoted letter. I use my debit card for anything I can pay for immediately. Understandably the clinic wanted a credit card down on my agreement to the surgery, so I gave them a different card and said, "Please don’t use the card I gave you today for the surgery payment." Am I a schmuck? Dr. Raclyn finding ways to point it out to me.

I work for a phone company, and I guarantee you that we would check first, if we had two card numbers, before we posted a payment to either. Granted we are small and have a luxury larger companies would not have. I cannot believe this vet practice is so huge that they could not follow this same practice. I know you do not legally have a recourse on this point since you did give the card number, however, you are correct in saying that it would be good business sense to notate something like this and check with the client. karen

Response:

– Hide quoted text — Show quoted text – At 10PM the surgeon calls to tell me George has been put on oxygen and needs to be moved to a facility where a vet can attend to him. Gee, that’s what I thought we already had in place. She doesn’t give me any way to get back in touch with her and in fact is unavailable to come in immediately. Dr. Raclyn himself I later found out was away camping and out of cell phone range. There is nobody else. You know, in looking at this whole thing again, I think this is the part that most bothers me. Indeed, *I* would have believed that my cat was *currently* in that facility. What on earth did they mean here? I mean, it’s the place they performed the surgery. I would be very interested to hear other vets opinion on this particular point. Perhaps we lay people are simply too ignorant? That is exactly the point of my post. Hospital-owner vets or their salaried employees  will not answer highly relevant questions unless you think to ask themf, even if they know you’ll need to know the answer if anything goes against plan. Had I been told "if the worst happens, you’re on your own," would I have gone ahead with the surgery there? I could have cut out the middle-man and done what I eventually did without subjecting either of us to torture in the name of medical mercy. When I said I wanted to keep him at home, Raclyn said "You don’t want him to go like that." By the way his slogan is "We treat your pets as if they were our own." It’s like a game they’re playing, hoping everybody gets lucky. Until it’s too late. It might not have been too late for Dr. Raclyn and his move ‘em crosstown if they get sicker policy, but it was for me. How dare he tell me George’s euthanasia is on me? Of course, it is and always will be. I never asked for their advice on euthanasia, how ridiculous. They’re not in the business of saying, "medicine can no more for your pet, I will pray you come to the right decision." I’m stupid but I’m not naive. Nobody told me what to do. No, they just put a psychic gun to my head, until I said enough, this is about George and me. Butt out. Then he says, "I told you it was risky, but he wasn’t dead yet. You want him dead, that’s your lookout. I only do PTS during office hours."

It does seem like they were playing on your already high stress level and playing a little "hidey-guessy". I would say on this alone you have a valid reason to at least file a complaint. Perhaps nothing will come of it, but it should at least be addressed. Karen

Response:

– Hide quoted text — Show quoted text – At 10PM the surgeon calls to tell me George has been put on oxygen and needs to be moved to a facility where a vet can attend to him. Gee, that’s what I thought we already had in place. She doesn’t give me any way to get back in touch with her and in fact is unavailable to come in immediately. Dr. Raclyn himself I later found out was away camping and out of cell phone range. There is nobody else. You know, in looking at this whole thing again, I think this is the part that most bothers me. Indeed, *I* would have believed that my cat was *currently* in that facility. What on earth did they mean here? I mean, it’s the place they performed the surgery. I would be very interested to hear other vets opinion on this particular point. Perhaps we lay people are simply too ignorant?

That is exactly the point of my post. Hospital-owner vets or their salaried employees  will not answer highly relevant questions unless you think to ask themf, even if they know you’ll need to know the answer if anything goes against plan. Had I been told "if the worst happens, you’re on your own," would I have gone ahead with the surgery there? I could have cut out the middle-man and done what I eventually did without subjecting either of us to torture in the name of medical mercy. When I said I wanted to keep him at home, Raclyn said "You don’t want him to go like that." By the way his slogan is "We treat your pets as if they were our own." It’s like a game they’re playing, hoping everybody gets lucky. Until it’s too late. It might not have been too late for Dr. Raclyn and his move ‘em crosstown if they get sicker policy, but it was for me. How dare he tell me George’s euthanasia is on me? Of course, it is and always will be. I never asked for their advice on euthanasia, how ridiculous. They’re not in the business of saying, "medicine can no more for your pet, I will pray you come to the right decision." I’m stupid but I’m not naive. Nobody told me what to do. No, they just put a psychic gun to my head, until I said enough, this is about George and me. Butt out. Then he says, "I told you it was risky, but he wasn’t dead yet. You want him dead, that’s your lookout. I only do PTS during office hours."

Response:

Yeah the reply seems pretty fierce from the doctor but sometimes when the customer thinks they are wrong, like the customer service you get with the phone company they back each other up. There is one part of this that I don’t understand. You say this doctor billed you or put through an estimate on a debit card you asked not to be used and therefore your rent check will bounce? How can you be mad about that unless you gave them the card number? From that standpoint I can see where you might not have the right to be mad. The only way a debit card can be used is if they first have the number. I am sorry for your loss but I am a bit confused here.

My point is, compassion aside, good business practice would lead one to submit a bill even if it’s certain to be rejected. What he did was sneaky. He had two credit card numbers; even if no one remembered which I had asked to use he could have confirmed with me. By writing if necessary. On the phone today, his assistant agreed to cancel the charge and I took her at her word until I got the quoted letter. I use my debit card for anything I can pay for immediately. Understandably the clinic wanted a credit card down on my agreement to the surgery, so I gave them a different card and said, "Please don’t use the card I gave you today for the surgery payment." Am I a schmuck? Dr. Raclyn finding ways to point it out to me.

Response:

Well from the poster’s point of view that letter was a little cold. Reminds me of my cell phone and cable company. When you complain they back each other up in customer service and then blame the customer for the problem. I had that problem today with my cell carrier. I went over my minutes due to dropped calls and when I complained about the service I received they claimed I never contacted them about it and they showed no record of dropped calls or me calling back. Sounds to me like the vet is putting the poster through the same kind of deal. — The station that has cats meowing for more. Cat Galaxy- The Internet radio station for cats. Meow meow meow!! http://members.cox.net/catprotector/station Real Player, Winamp and Windows Media Player http://www.live365.com/play/231353 The forum for felines everywhere. Join the Cat Galaxy Forum today! Meow! http://communities.msn.com/CatGalaxy

Actually I would be very interested in hearing the surgeons response to this. I would also be interested in knowing the names of other doctors and hospitals involved-I am a former NY Vet Tech and have since moved to Nevada. Just thought maybe I may know those involved. You can Email me privately if you like.

– Hide quoted text — Show quoted text – Please find and stay with a vet who knows you and your pet, whom you can really trust. Don’t let what happened to me happen to you. ——- 6/18/02 My ~11 year old DLH George is taken to our usual vet with a severely bloated stomach, belatedly discovered weight loss, and malaise. A CBC, T4, and X-Ray are taken along with a sample of the abdominal fluid. The results are inconclusive. The vet I trust is out on maternity leave and I don’t know anybody at this facility anymore, and they don’t know me and George. 6/21/02 George undergoes an ultra-sound at the same facility. The diagnosis is greatly enlarged spleen and mast cell involvement. The ultra-sound cannot determine if the cancer is malignant. The recommendation is surgery followed by chemo if a biopsy of the spleen and liver indicate metastasis. Yet another vet tells me this, since the first lady is not on that day, and the ultra-sound internal medicine specialist comes in as needed and does not talk to clients directly. I freak and start to research spleen cancer. So far George is not nearly as obviously sick as my other cats have been in the final stages of cancer, for which they were never operated on or drugged. We had a couple of months to say good bye to them and then we brought them in on the day it became obvious they had turned for the very worst. George’s fate will be far different. 6/26/05 I go to see Philip Raclyn at the Riverside Veterinary Group, which does business as the Veterinary *Hospital* of New York. Dr. Raclyn’s website at www.holisticvets.com offers the best in conventional and alternative treatments, and I wanted a second opinion on the surgery. I was hoping to avoid it or at least chemo. Dr. Raclyn strongly urged me to have the surgery performed at his facility immediately. I was crushed but we admitted George the next day for rest and nourishment. 6/28 The RVG’s surgeon, who is not a staff member but comes in as needed, calls to discuss George’s condition with me previous to the actual surgery. She mentions that, especially in light of his borderline anemia and the loss of blood entailed by the procedure, she will be prepared to give him a transfusion. I do not feel good about this. I ask her if George is in condition to be operated upon. Her reply is that his condition is not good but that there is no choice (actually I thought that with animals there was always a choice, about which more later). At 6PM she calls to tell me that George is about as good as can be expected, given that he did need a transfusion, and she is leaving him in the care of a technician until the next morning when another vet will come in. At 10PM the surgeon calls to tell me George has been put on oxygen and needs to be moved to a facility where a vet can attend to him. Gee, that’s what I thought we already had in place. She doesn’t give me any way to get back in touch with her and in fact is unavailable to come in immediately. Dr. Raclyn himself I later found out was away camping and out of cell phone range. There is nobody else. I tell the surgeon to call another facility to expect us and to fax over his records. I will go pick him up. I feel like Al Pacino in Godfather II when Castro takes over Havana while he is trying to get to the airport. I rush over to the "hospital" and it takes me half an hour to get in to find out what’s happening. No one comes to the door. I don’t have a cell phone. By the time I get in I can only get a glimpse of George,  who is in a wall of cages with other pets. I’m not allowed to stay there with him. I ask the technician to bring his carrier and make copies of his records since 6/18 (I had brought them George’s entire file from the time I adopted him ten years ago). All she gives me is the handwritten notes from that day. When I ask for copies of the diagnostic reports, she says "I was told to give you this." I have to hail my own cab. I cannot feel George’s heart or breath. He is in a body tourniquet with his iv’s attached. I think he may be dead and I am praying under my breath as we stop for lights every 30 seconds or so. George suddenly makes an effort to stand up in his carrier and moves his head under my hand. This is the last time I see him awake, conscious, whatever. I’m not a vet after all. 11PM We get to the other facility. A very young vet takes George in to "examine" him and comes back some time later with a laundry list of emergency and test procedures starting with another transfusion. Maybe somebody knows the chances of a cat surviving after two transfusions in one day, but I’m not a betting man. I also notice, that I’m not only speaking to my fifth "strange" vet in ten days, but I’m looking at another indecipherable list that totals $1500 before morning. I ask her to bring George to me. She wants to bring him into the public waiting room. I ask her if there is somewhere more private, so she brings him to an examination table where I look at him inert on the steel table. I need to decide fast. George needs to go back under oxygen and have another transfusion immediately if he is to survive. I make the decision I probably would have made much earlier if the choice had not been taken away from me and PTS. If anybody is interested in Dr. Raclyn’s response to this nightmare, I will include it in a follow up post. Ron Ross

Response:

<snip I think that this is a very accurate response Cheryl. These were my feelings too. I want to offer condolences to the original poster at this time. I do feel the Dr. was defensive in this response, perhaps more so than would be advisable. He does suggest you file your complaint, and it might not be a bad idea. He says he talked to them, but that may not really be the case but rather trying to head you off.

I agree!  What a horrid horrid human being! At any rate, it would be very good to get an – Hide quoted text — Show quoted text – objective third party involved, because as Cheryl noted, emotions are high on both sides. I’m just terribly sorry that this happened regardless. Karen

Response:

At 10PM the surgeon calls to tell me George has been put on oxygen and needs to be moved to a facility where a vet can attend to him. Gee, that’s what I thought we already had in place. She doesn’t give me any way to get back in touch with her and in fact is unavailable to come in immediately. Dr. Raclyn himself I later found out was away camping and out of cell phone range. There is nobody else.

You know, in looking at this whole thing again, I think this is the part that most bothers me. Indeed, *I* would have believed that my cat was *currently* in that facility. What on earth did they mean here? I mean, it’s the place they performed the surgery. I would be very interested to hear other vets opinion on this particular point. Perhaps we lay people are simply too ignorant? karen

Response:

Yeah the reply seems pretty fierce from the doctor but sometimes when the customer thinks they are wrong, like the customer service you get with the phone company they back each other up. There is one part of this that I don’t understand. You say this doctor billed you or put through an estimate on a debit card you asked not to be used and therefore your rent check will bounce? How can you be mad about that unless you gave them the card number? From that standpoint I can see where you might not have the right to be mad. The only way a debit card can be used is if they first have the number. I am sorry for your loss but I am a bit confused here.

– Hide quoted text — Show quoted text – Thank you sweeties. Here are excerpts from the letter Dr. Raclyn finally faxed me (at my request I did not want to speak with him). Again I am not trying to characterize Dr. Raclyn’s behavior or standards in such a way as to slander him. I think his remarks speak for themselves so I am not going to rebut them. I have done my best not to take his remarks out of context Quotes from Dr. Raclyn follow: . . .You may have heard that George was "not in the best shape for surgery" but both I and Dr. Katz told you quite clearly that surgery was VERY risky, but that it was the only option. In fact, Dr. Katz entered it into her medical notes that she had spoken with you and told you of the possible poor outcome of the surgery. . . . . .You mention that Dr. Katz called you back after the surgery to brief you. You mention that no discussion of euthanasia occurred. And you seem to blame us for that. Apparently Dr. Katz did not think that euthanasia or even a discussion of it was in order. George survived the surgery. Why would she discuss euthanasia with you at that time? I don’t think she considered that it would have to be done, and I don’t imagine that she thought it would be done at all. . . . . . Dr. Katz lives in the neighborhood and could have come in if necessary. Unfortunately Dr. Katz wound up at the hospital herself with a personal crisis that night. She did, however, stay in touch with Alicia, the veterinary assistant, during the entire time. Dr. Katz is in no way obligated to provide you with her cell number, nor did she have to meet with you for any reason at that point. She was on top of the case, and making good decisions concerning the care for George. You are correct in that I was not within traveling distance. You mention yourself that Dr. Katz called you at 10PM to inform you of how George was doing. In her opinion, George needed to be cared for by a veterinarian overnight. What else did you expect her to do at that point in time? She made her medical decision based on her concern for George. She was in the hospital herself and unable to meet with you. She took the time and called you to go over what was going on. In her opinion there were no other options. You seem to be upset that she didn’t offer you any other options… when in fact, in her opinion, there weren’t any other options. . . . Alicia is an experienced veterinary assistant and I have seen her many times in emergency situations and she has always been extremely calm and collected, no matter what was happening. On the other hand, she did write in her notes that YOU were being overly aggressive with her. . . . . . In any case, you made the transfer to MVG and George survived the trip, and the doctor at that hospital gave you her medical recommendations. Instead of following her recommendations, you decided to euthanize George. That was certainly not OUR fault, nor the vet’s at MVG. Nobody told you to euthanize George, or even suggested that you do so. If George was doing poorly after surgery, that problem was being dealt with as best as possible. Humans are routinely transferred from one hospital to another, even when critical, when another hospital has different or better facilities. You were fully aware that we do not have a doctor in the hospital 24 hours a day, so don’t blame us for that. Dr. Katz gave you and George exemplary care and service and you have nothing to complain about concerning her care or behavior. . .  . . . In any case, you made the transfer to MVG and George survived the trip, and the doctor at that hospital gave you her medical recommendations. Instead of following her recommendations, you decided to euthanize George. That was certainly not OUR fault, nor the vet’s at MVG. Nobody told you to euthanize George, or even suggested that you do so. If George was doing poorly after surgery, that problem was being dealt with as best as possible. Humans are routinely transferred from one hospital to another, even when critical, when another hospital has different or better facilities. You were fully aware that we do not have a doctor in the hospital 24 hours a day, so don’t blame us for that. Dr. Katz gave you and George exemplary care and service and you have nothing to complain about concerning her care or behavior. . . .  . . .I heard indirectly that you were threatening me about going to AAHA and lodging a complaint. I urge you to do so if you haven’t already. I have already talked with AAHA and gone over the case and the care completely, and they acknowledge that the case was handled well beyond what would be considered the standard level of care. Concerning your "list" of "what you want from me".. don’t be ridiculous. The care was exemplary, the procedures that were to be done, were done, and finally, you will get no refund or payment from me at all. Now, what I want from you is simple. Pay your bill in full. Forget about the Pet Assure. You never showed us your card, you never told us you were from Pet Assure, and in fact on the sign in sheet you told us you came to us because you saw our hospital "while walking by". I don’t give discounts to people who are trying to skip out on their obligations. If you think you were wronged, feel free to take me to court. In fact, I would love to go to court with you, preferably in front of an audience and judge, so why don’t you call the People’s Court. Their judgement is binding, and I will certainly give you everything you want if they rule against me. If you choose not pay your bill, I will send you to a collection agency, and they will either collect or your credit will be crippled. I have your signature on the admission sheet and the estimate and the services that you contracted for were performed. The fact that George died is not our fault. It was, in the last analysis, you who decided to euthanize him, not us. In fact, we never recommended that option. End of quotes. BTW, Dr. Raclyn put through the amount of the estimate without notifying me or showing me the final bill. He used a debit card I specifically asked not be be used, and as a result, my rent check will bounce. My landlord has been much more understanding than Dr. Raclyn. Am I missing something here?

Response:

- Hide quoted text — Show quoted text – I think I understand why you took George from their care… I also understand the high emotions that go along with trying to save the life of your companion and though I’ve never actually been told the outcome would be bad if you spend so much on going through with it, I have been offered test after test after test with no conclusive answers and that is very frustrating and emotional while watching a beloved pet getting worse.  You are seriously grieving and you have that right!  If you are like me, you’ve had your pet longer than pet insurance has been around and I think vets now are used to people *having* pet insurance. Even if you go into a lifelong commitment to taking in a pet, sometimes you can not ever be prepared for illness that is evasive, and as we know, cats are good at hiding their illness until they are very very sick.  At least with a child or another loved one there is Medicare or Medicaid if you can’t afford care for a human.  Excuse me if I am misunderstanding about money issues, and none of what has happened warrents the above treatment from a provider of animal care at your time of grief.  I am very sorry you are going through this. I also am going through the illness of a beloved pet and it will put me in debt for a while.  I also felt I wasn’t being treated properly and I’m also very emotional, the vet picked up on that right away and she probably held back some of what she would say to someone who didn’t break down in tears everytime she mentioned another test.  I felt I should have been called every step of the way during my kitties treatment and instead I just went straight there after work every day demanding to know why I wasn’t called with an update.  It all goes back to what I said about overbooking and specialists.  This does NOT excuse the dr in the above exchange becoming so defensive without letting you get past your grief.  They should know grief. I’m so sorry about George.  I hope you can find peace.

Thank you for your very kind reply. I am very sorry to hear of your trouble, and I hope you have a beautiful if painful experience with his or her final stage. That’s all I expected from the experts but it appears I have a completely different notion of what their role is. I realize that I am not making myself clear on euthanasia, either to you or to the vet, although I thought I was very clear with him. I said goodbye to George the day before I took him in (in fact I was advised to). I am at peace with George, my memory of him, what I tried to do to help him, what I did. I was the entire way, as soon as I committed to the ultra-sound. I knew that eventually I would have to put George to sleep and I preferred he die with me than with strangers. I knew things would never be the same with him. I also knew that I would be a much better bulwark to my next kitty’s health and long life no matter how this turned out. I’m not a great fan of emergency medicine. In the final analysis, I believe more cats are PTS by loving owners than die on the operating table or at home "naturally." This has to be built-in to a vet’s "business," not to mention their art. But what I’m getting from him is plausable deniability. It doesn’t make me angry, it makes me curious if the entire network of professional veterinary organizations are willing to condone this as acceptable practice. I was not looking for a cure. I was looking for dignity. He knew that and he blew it. I don’t want revenge, I want to burst his bubble of ethical competency. I may at the end of the day have to pay the bill as he sees it. But my coping with George’s death and my indignation at our treatment are now two different things. I stick to my point: since they could not offer much assurance or on the spot treatment for what was obviously a serious condition, then why did they take the choice of euthanasia away from me until I had travelled in panic somewhere else to start all over again with George in my lap. Moving on: How long has your kitty been in the hospital? If you’re not happy, and you’re committed, I think you should find a vet who is associated with several hospitals and get her/his advice about what to do next. I think the surgeon was probably great but she wasn’t available and I was dealing with her through her mutual self-interest with Dr. Raclyn, rather than directly. You need someone who will be accountable to you not her employer. Who is willing to get your cat out of where he/she is safely and watch her closely once she needs to be admitted elsewhere, if she does. Take possession of her records now, if you haven’t already. Don’t wait until the last moment to find out what the doctors really think. Above all, don’t rely on their specialist, find anybody qualified who will support your goals. I don’t think working for a salary in the hospitals helps them realize what you want if they don’t know you. Do a search for holistic vets and narrow it down to your area. Most of them I’ve found have DVMs also and have practiced for a number of years in conventional settings. They usually associate themselves with hospitals but they get paid by the client. Kind of like a real people specialist (I know, they’re super versions of this arrogance I’ve encountered). Also please read about cures, palliation, whatever coming from within the patient and not from without by dramatic urgent means. If you and your pet can back away from emergency mode and buy yourself any amount of time, you can regain control and have a great experience, albeit a terribly sad and painful one. I don’t believe animals contemplate their own death, and it’s a blessing for them and for us. They do know that for as long as they have life they love you. And we should appreciate it deep down no matter how the plot plays out. I learned a lot about love from Georgie in the past two weeks and I’m not done loving yet.

Response:

I’m interested in the rest of the post to this story! BonM

– Hide quoted text — Show quoted text – Please find and stay with a vet who knows you and your pet, whom you can really trust. Don’t let what happened to me happen to you. ——- 6/18/02 My ~11 year old DLH George is taken to our usual vet with a severely bloated stomach, belatedly discovered weight loss, and malaise. A CBC, T4, and X-Ray are taken along with a sample of the abdominal fluid. The results are inconclusive. The vet I trust is out on maternity leave and I don’t know anybody at this facility anymore, and they don’t know me and George. 6/21/02 George undergoes an ultra-sound at the same facility. The diagnosis is greatly enlarged spleen and mast cell involvement. The ultra-sound cannot determine if the cancer is malignant. The recommendation is surgery followed by chemo if a biopsy of the spleen and liver indicate metastasis. Yet another vet tells me this, since the first lady is not on that day, and the ultra-sound internal medicine specialist comes in as needed and does not talk to clients directly. I freak and start to research spleen cancer. So far George is not nearly as obviously sick as my other cats have been in the final stages of cancer, for which they were never operated on or drugged. We had a couple of months to say good bye to them and then we brought them in on the day it became obvious they had turned for the very worst. George’s fate will be far different. 6/26/05 I go to see Philip Raclyn at the Riverside Veterinary Group, which does business as the Veterinary *Hospital* of New York. Dr. Raclyn’s website at www.holisticvets.com offers the best in conventional and alternative treatments, and I wanted a second opinion on the surgery. I was hoping to avoid it or at least chemo. Dr. Raclyn strongly urged me to have the surgery performed at his facility immediately. I was crushed but we admitted George the next day for rest and nourishment. 6/28 The RVG’s surgeon, who is not a staff member but comes in as needed, calls to discuss George’s condition with me previous to the actual surgery. She mentions that, especially in light of his borderline anemia and the loss of blood entailed by the procedure, she will be prepared to give him a transfusion. I do not feel good about this. I ask her if George is in condition to be operated upon. Her reply is that his condition is not good but that there is no choice (actually I thought that with animals there was always a choice, about which more later). At 6PM she calls to tell me that George is about as good as can be expected, given that he did need a transfusion, and she is leaving him in the care of a technician until the next morning when another vet will come in. At 10PM the surgeon calls to tell me George has been put on oxygen and needs to be moved to a facility where a vet can attend to him. Gee, that’s what I thought we already had in place. She doesn’t give me any way to get back in touch with her and in fact is unavailable to come in immediately. Dr. Raclyn himself I later found out was away camping and out of cell phone range. There is nobody else. I tell the surgeon to call another facility to expect us and to fax over his records. I will go pick him up. I feel like Al Pacino in Godfather II when Castro takes over Havana while he is trying to get to the airport. I rush over to the "hospital" and it takes me half an hour to get in to find out what’s happening. No one comes to the door. I don’t have a cell phone. By the time I get in I can only get a glimpse of George,  who is in a wall of cages with other pets. I’m not allowed to stay there with him. I ask the technician to bring his carrier and make copies of his records since 6/18 (I had brought them George’s entire file from the time I adopted him ten years ago). All she gives me is the handwritten notes from that day. When I ask for copies of the diagnostic reports, she says "I was told to give you this." I have to hail my own cab. I cannot feel George’s heart or breath. He is in a body tourniquet with his iv’s attached. I think he may be dead and I am praying under my breath as we stop for lights every 30 seconds or so. George suddenly makes an effort to stand up in his carrier and moves his head under my hand. This is the last time I see him awake, conscious, whatever. I’m not a vet after all. 11PM We get to the other facility. A very young vet takes George in to "examine" him and comes back some time later with a laundry list of emergency and test procedures starting with another transfusion. Maybe somebody knows the chances of a cat surviving after two transfusions in one day, but I’m not a betting man. I also notice, that I’m not only speaking to my fifth "strange" vet in ten days, but I’m looking at another indecipherable list that totals $1500 before morning. I ask her to bring George to me. She wants to bring him into the public waiting room. I ask her if there is somewhere more private, so she brings him to an examination table where I look at him inert on the steel table. I need to decide fast. George needs to go back under oxygen and have another transfusion immediately if he is to survive. I make the decision I probably would have made much earlier if the choice had not been taken away from me and PTS. If anybody is interested in Dr. Raclyn’s response to this nightmare, I will include it in a follow up post. Ron Ross

Response:

  . .I heard indirectly that you were threatening me about going to AAHA   and lodging a complaint. I urge you to do so if you haven’t already. I have   already talked with AAHA and gone over the case and the care completely, and   they acknowledge that the case was handled well beyond what would be   considered the standard level of care.        Bull.  Lodge the complaint, and be sure to show them this fax.   Now, what I want from you is simple. Pay your bill in full. Forget about the   Pet Assure.  I don’t give discounts to   people who are trying to skip out on their obligations. If you think you   were wronged, feel free to take me to court. In fact, I would love to go to   court with you, preferably in front of an audience and judge, so why don’t   you call the People’s Court.     What do you suppose the obligations are that he has mentioned?     Nothing you could have said or done deserve this kind of cruel     taunting in response.  This letter is callous, rude and     unprofessional.   (just wondering-why did you choose to have     the surgery performed at this clinic rather than your regular     vet office?)   Am I missing something here?       You’re missing a rational explanation and some well        deserved compassion.  You have my sympathies.                                   -angie

Response:

<snip – Hide quoted text — Show quoted text – I think I understand why you took George from their care… I also understand the high emotions that go along with trying to save the life of your companion and though I’ve never actually been told the outcome would be bad if you spend so much on going through with it, I have been offered test after test after test with no conclusive answers and that is very frustrating and emotional while watching a beloved pet getting worse.  You are seriously grieving and you have that right!  If you are like me, you’ve had your pet longer than pet insurance has been around and I think vets now are used to people *having* pet insurance. Even if you go into a lifelong commitment to taking in a pet, sometimes you can not ever be prepared for illness that is evasive, and as we know, cats are good at hiding their illness until they are very very sick.  At least with a child or another loved one there is Medicare or Medicaid if you can’t afford care for a human.  Excuse me if I am misunderstanding about money issues, and none of what has happened warrents the above treatment from a provider of animal care at your time of grief.  I am very sorry you are going through this.  I also am going through the illness of a beloved pet and it will put me in debt for a while.  I also felt I wasn’t being treated properly and I’m also very emotional, the vet picked up on that right away and she probably held back some of what she would say to someone who didn’t break down in tears everytime she mentioned another test.  I felt I should have been called every step of the way during my kitties treatment and instead I just went straight there after work every day demanding to know why I wasn’t called with an update.  It all goes back to what I said about overbooking and specialists.  This does NOT excuse the dr in the above exchange becoming so defensive without letting you get past your grief.  They should know grief. I’m so sorry about George.  I hope you can find peace.

I think that this is a very accurate response Cheryl. These were my feelings too. I want to offer condolences to the original poster at this time. I do feel the Dr. was defensive in this response, perhaps more so than would be advisable. He does suggest you file your complaint, and it might not be a bad idea. He says he talked to them, but that may not really be the case but rather trying to head you off. At any rate, it would be very good to get an objective third party involved, because as Cheryl noted, emotions are high on both sides. I’m just terribly sorry that this happened regardless. Karen

Response:

Actually I would be very interested in hearing the surgeons response to this. I would also be interested in knowing the names of other doctors and hospitals involved-I am a former NY Vet Tech and have since moved to Nevada. Just thought maybe I may know those involved. You can Email me privately if you like. – Hide quoted text — Show quoted text – Please find and stay with a vet who knows you and your pet, whom you can really trust. Don’t let what happened to me happen to you. ——- 6/18/02 My ~11 year old DLH George is taken to our usual vet with a severely bloated stomach, belatedly discovered weight loss, and malaise. A CBC, T4, and X-Ray are taken along with a sample of the abdominal fluid. The results are inconclusive. The vet I trust is out on maternity leave and I don’t know anybody at this facility anymore, and they don’t know me and George. 6/21/02 George undergoes an ultra-sound at the same facility. The diagnosis is greatly enlarged spleen and mast cell involvement. The ultra-sound cannot determine if the cancer is malignant. The recommendation is surgery followed by chemo if a biopsy of the spleen and liver indicate metastasis. Yet another vet tells me this, since the first lady is not on that day, and the ultra-sound internal medicine specialist comes in as needed and does not talk to clients directly. I freak and start to research spleen cancer. So far George is not nearly as obviously sick as my other cats have been in the final stages of cancer, for which they were never operated on or drugged. We had a couple of months to say good bye to them and then we brought them in on the day it became obvious they had turned for the very worst. George’s fate will be far different. 6/26/05 I go to see Philip Raclyn at the Riverside Veterinary Group, which does business as the Veterinary *Hospital* of New York. Dr. Raclyn’s website at www.holisticvets.com offers the best in conventional and alternative treatments, and I wanted a second opinion on the surgery. I was hoping to avoid it or at least chemo. Dr. Raclyn strongly urged me to have the surgery performed at his facility immediately. I was crushed but we admitted George the next day for rest and nourishment. 6/28 The RVG’s surgeon, who is not a staff member but comes in as needed, calls to discuss George’s condition with me previous to the actual surgery. She mentions that, especially in light of his borderline anemia and the loss of blood entailed by the procedure, she will be prepared to give him a transfusion. I do not feel good about this. I ask her if George is in condition to be operated upon. Her reply is that his condition is not good but that there is no choice (actually I thought that with animals there was always a choice, about which more later). At 6PM she calls to tell me that George is about as good as can be expected, given that he did need a transfusion, and she is leaving him in the care of a technician until the next morning when another vet will come in. At 10PM the surgeon calls to tell me George has been put on oxygen and needs to be moved to a facility where a vet can attend to him. Gee, that’s what I thought we already had in place. She doesn’t give me any way to get back in touch with her and in fact is unavailable to come in immediately. Dr. Raclyn himself I later found out was away camping and out of cell phone range. There is nobody else. I tell the surgeon to call another facility to expect us and to fax over his records. I will go pick him up. I feel like Al Pacino in Godfather II when Castro takes over Havana while he is trying to get to the airport. I rush over to the "hospital" and it takes me half an hour to get in to find out what’s happening. No one comes to the door. I don’t have a cell phone. By the time I get in I can only get a glimpse of George,  who is in a wall of cages with other pets. I’m not allowed to stay there with him. I ask the technician to bring his carrier and make copies of his records since 6/18 (I had brought them George’s entire file from the time I adopted him ten years ago). All she gives me is the handwritten notes from that day. When I ask for copies of the diagnostic reports, she says "I was told to give you this." I have to hail my own cab. I cannot feel George’s heart or breath. He is in a body tourniquet with his iv’s attached. I think he may be dead and I am praying under my breath as we stop for lights every 30 seconds or so. George suddenly makes an effort to stand up in his carrier and moves his head under my hand. This is the last time I see him awake, conscious, whatever. I’m not a vet after all. 11PM We get to the other facility. A very young vet takes George in to "examine" him and comes back some time later with a laundry list of emergency and test procedures starting with another transfusion. Maybe somebody knows the chances of a cat surviving after two transfusions in one day, but I’m not a betting man. I also notice, that I’m not only speaking to my fifth "strange" vet in ten days, but I’m looking at another indecipherable list that totals $1500 before morning. I ask her to bring George to me. She wants to bring him into the public waiting room. I ask her if there is somewhere more private, so she brings him to an examination table where I look at him inert on the steel table. I need to decide fast. George needs to go back under oxygen and have another transfusion immediately if he is to survive. I make the decision I probably would have made much earlier if the choice had not been taken away from me and PTS. If anybody is interested in Dr. Raclyn’s response to this nightmare, I will include it in a follow up post. Ron Ross

Response:

    What do you suppose the obligations are that he has mentioned?     Nothing you could have said or done deserve this kind of cruel     taunting in response.  This letter is callous, rude and     unprofessional.   (just wondering-why did you choose to have     the surgery performed at this clinic rather than your regular     vet office?)

I don’t think most vets are equipped to handle special care like this, for my cat I was referred out to a specialist for ultra-sound and have had all specialty treatment handled by them.  I think part of the lesson here for others reading (and I hope Ron would want others to learn from this) is another thing to find out when you are screening a new vet. Exactly what are they equipped to handle.  Just horrid….:-( – Hide quoted text — Show quoted text –

Response:

– Hide quoted text — Show quoted text – Thank you sweeties. Here are excerpts from the letter Dr. Raclyn finally faxed me (at my request I did not want to speak with him). Again I am not trying to characterize Dr. Raclyn’s behavior or standards in such a way as to slander him. I think his remarks speak for themselves so I am not going to rebut them. I have done my best not to take his remarks out of context Quotes from Dr. Raclyn follow: . . .You may have heard that George was "not in the best shape for surgery" but both I and Dr. Katz told you quite clearly that surgery was VERY risky, but that it was the only option. In fact, Dr. Katz entered it into her medical notes that she had spoken with you and told you of the possible poor outcome of the surgery. . . . . .You mention that Dr. Katz called you back after the surgery to brief you. You mention that no discussion of euthanasia occurred. And you seem to blame us for that. Apparently Dr. Katz did not think that euthanasia or even a discussion of it was in order. George survived the surgery. Why would she discuss euthanasia with you at that time? I don’t think she considered that it would have to be done, and I don’t imagine that she thought it would be done at all. . . . . . Dr. Katz lives in the neighborhood and could have come in if necessary. Unfortunately Dr. Katz wound up at the hospital herself with a personal crisis that night. She did, however, stay in touch with Alicia, the veterinary assistant, during the entire time. Dr. Katz is in no way obligated to provide you with her cell number, nor did she have to meet with you for any reason at that point. She was on top of the case, and making good decisions concerning the care for George. You are correct in that I was not within traveling distance. You mention yourself that Dr. Katz called you at 10PM to inform you of how George was doing. In her opinion, George needed to be cared for by a veterinarian overnight. What else did you expect her to do at that point in time? She made her medical decision based on her concern for George. She was in the hospital herself and unable to meet with you. She took the time and called you to go over what was going on. In her opinion there were no other options. You seem to be upset that she didn’t offer you any other options… when in fact, in her opinion, there weren’t any other options. . . . Alicia is an experienced veterinary assistant and I have seen her many times in emergency situations and she has always been extremely calm and collected, no matter what was happening. On the other hand, she did write in her notes that YOU were being overly aggressive with her. . . . . . In any case, you made the transfer to MVG and George survived the trip, and the doctor at that hospital gave you her medical recommendations. Instead of following her recommendations, you decided to euthanize George. That was certainly not OUR fault, nor the vet’s at MVG. Nobody told you to euthanize George, or even suggested that you do so. If George was doing poorly after surgery, that problem was being dealt with as best as possible. Humans are routinely transferred from one hospital to another, even when critical, when another hospital has different or better facilities. You were fully aware that we do not have a doctor in the hospital 24 hours a day, so don’t blame us for that. Dr. Katz gave you and George exemplary care and service and you have nothing to complain about concerning her care or behavior. . .  . . . In any case, you made the transfer to MVG and George survived the trip, and the doctor at that hospital gave you her medical recommendations. Instead of following her recommendations, you decided to euthanize George. That was certainly not OUR fault, nor the vet’s at MVG. Nobody told you to euthanize George, or even suggested that you do so. If George was doing poorly after surgery, that problem was being dealt with as best as possible. Humans are routinely transferred from one hospital to another, even when critical, when another hospital has different or better facilities. You were fully aware that we do not have a doctor in the hospital 24 hours a day, so don’t blame us for that. Dr. Katz gave you and George exemplary care and service and you have nothing to complain about concerning her care or behavior. . . .  . . .I heard indirectly that you were threatening me about going to AAHA and lodging a complaint. I urge you to do so if you haven’t already. I have already talked with AAHA and gone over the case and the care completely, and they acknowledge that the case was handled well beyond what would be considered the standard level of care. Concerning your "list" of "what you want from me".. don’t be ridiculous. The care was exemplary, the procedures that were to be done, were done, and finally, you will get no refund or payment from me at all. Now, what I want from you is simple. Pay your bill in full. Forget about the Pet Assure. You never showed us your card, you never told us you were from Pet Assure, and in fact on the sign in sheet you told us you came to us because you saw our hospital "while walking by". I don’t give discounts to people who are trying to skip out on their obligations. If you think you were wronged, feel free to take me to court. In fact, I would love to go to court with you, preferably in front of an audience and judge, so why don’t you call the People’s Court. Their judgement is binding, and I will certainly give you everything you want if they rule against me. If you choose not pay your bill, I will send you to a collection agency, and they will either collect or your credit will be crippled. I have your signature on the admission sheet and the estimate and the services that you contracted for were performed. The fact that George died is not our fault. It was, in the last analysis, you who decided to euthanize him, not us. In fact, we never recommended that option. End of quotes. BTW, Dr. Raclyn put through the amount of the estimate without notifying me or showing me the final bill. He used a debit card I specifically asked not be be used, and as a result, my rent check will bounce. My landlord has been much more understanding than Dr. Raclyn. Am I missing something here?

I think I understand why you took George from their care… I also understand the high emotions that go along with trying to save the life of your companion and though I’ve never actually been told the outcome would be bad if you spend so much on going through with it, I have been offered test after test after test with no conclusive answers and that is very frustrating and emotional while watching a beloved pet getting worse.  You are seriously grieving and you have that right!  If you are like me, you’ve had your pet longer than pet insurance has been around and I think vets now are used to people *having* pet insurance. Even if you go into a lifelong commitment to taking in a pet, sometimes you can not ever be prepared for illness that is evasive, and as we know, cats are good at hiding their illness until they are very very sick.  At least with a child or another loved one there is Medicare or Medicaid if you can’t afford care for a human.  Excuse me if I am misunderstanding about money issues, and none of what has happened warrents the above treatment from a provider of animal care at your time of grief.  I am very sorry you are going through this.  I also am going through the illness of a beloved pet and it will put me in debt for a while.  I also felt I wasn’t being treated properly and I’m also very emotional, the vet picked up on that right away and she probably held back some of what she would say to someone who didn’t break down in tears everytime she mentioned another test.  I felt I should have been called every step of the way during my kitties treatment and instead I just went straight there after work every day demanding to know why I wasn’t called with an update.  It all goes back to what I said about overbooking and specialists.  This does NOT excuse the dr in the above exchange becoming so defensive without letting you get past your grief.  They should know grief. I’m so sorry about George.  I hope you can find peace. – Hide quoted text — Show quoted text –

Response:

Thank you sweeties. Here are excerpts from the letter Dr. Raclyn finally faxed me (at my request I did not want to speak with him). Again I am not trying to characterize Dr. Raclyn’s behavior or standards in such a way as to slander him. I think his remarks speak for themselves so I am not going to rebut them. I have done my best not to take his remarks out of context Quotes from Dr. Raclyn follow: . . .You may have heard that George was "not in the best shape for surgery" but both I and Dr. Katz told you quite clearly that surgery was VERY risky, but that it was the only option. In fact, Dr. Katz entered it into her medical notes that she had spoken with you and told you of the possible poor outcome of the surgery. . . . . .You mention that Dr. Katz called you back after the surgery to brief you. You mention that no discussion of euthanasia occurred. And you seem to blame us for that. Apparently Dr. Katz did not think that euthanasia or even a discussion of it was in order. George survived the surgery. Why would she discuss euthanasia with you at that time? I don

Philip E. Binzel, Jr., M.D. on laetrile toxicity

Question:

Of course we won’t hear from the con artists in response to these stories. They only collect "good" testimonials, and lie to you about the rest. After all, dead patients can’t tell the truth, now, can they?

That is a relief for you after your 600,000 failures every year. john "For many years there have been treatments available which are successful and usually NOT harmful for diseases, such as AIDS, cancer, cystic fibrosis, diabetes, organ regeneration and other diseases. One by one these treatments and their creators or proponents have been targeted by the FDA, which I call the "office of orthodoxy enforcement," illegally using just powers derived from the consent of governed. These forms of tyranny are always accompanied by multi agency intrusions or harassment, confiscation of private medical files, censorship of written materials and threats or prosecution."—Charles Pixley "There had been a head of the FDA (who later turned out to be a fraud) his name was Fishbein and he was rampantly opposed to any alternative therapy. He went after Hoxsey, the Hoxsey therapy back in the 1940’s and 50’s, and destroyed Hoxsey. But not before Hoxsey sued the AMA and Fishbein and [proved] that the therapy actually worked. But it didn’t help him because they closed him down anyhow"—-Gary Null http://www.sumeria.net/health/garynu1.html

Response:

Of course we won’t hear from the con artists in response to these stories. They only collect "good" testimonials, and lie to you about the rest. After all, dead patients can’t tell the truth, now, can they? That is a relief for you after your 600,000 failures every year.

People die, stupid. The goal of medicine is not to make everyone live forever.

Response:

People die, stupid. The goal of medicine is not to make everyone live forever.

Well, it should be. Or as long as they want to, anyway. Good Heavens, man, can you see medicine as one day being ABLE to delay aging and death and YET withholding healing from people who want it?? You see doctors as the rationers of life? "I’m sorry, sir, but you’ve lived quite long enough, I believe. No more medicine for YOU."

Response:

  Let’s hear it from all  the people whose cancer was healed by "Krebiozen"!  Many, including a medical school dean, Chicago politicians,

The History of a Tragedy A factual book about a cancer cure that was and is hidden from the world.  You will read Herbert Bailey’s book, A Matter of Life or Death, The !ncredible Story of Krebiozen, (published by G. P. Putnam’s Sons, 210 Madison Avenue, New York, N.Y., $4.95) with certainly two emotions, indignation and outrage. If you have know someone who suffered with cancer you are likely to become bitter as you read of a cure for this disease whose release, Mr. Bailey says, has been thwarted and suppressed by the American Medical Association since 1951. The story began with the experiments of Dr. Stevan Durovic, a former assistant professor at the University of Belgrade. He came to the United States after several years of experimentation in South America, with a drug which he had discovered and which he believed to be a cure for cancer. Once in the United States he was brought to the attention of Dr. Andrew C. Ivy, a medical researcher of unassailable reputation and gigantic stature in his profession. Dr. Ivy was, at the time, vice president of the University of Illinois, and head of its huge Medical School. His efforts in cancer research had led to his appointment as Executive Director of the National Advisory Cancer Council and he was also a director of the American Cancer Society. An important, a respected, an honored man. Early Results Show Promise Dr. Ivy became interested in the theory and possibilities shown in Dr. Durovic’s substance, Krebiozen, and he decided to test it in the scientific manner his experience had taught him was necessary for an accurate picture of the drug’s potential. From the very beginning the results were astounding in their positiveness. Though Krebiozen was used only on persons who had been diagnosed as hopeless and close to death, its remarkable characteristics showed themselves almost at once. There was a lessening or complete disappearance of pain, and in many cases tumors were dissolved and replaced with healthy tissue. Physicians who were trying it all over the country reported like results. It began to look as though science had finally come up with a weapon against cancer that had a chance to win the fight. With such a product as a cancer cure, scientific and humanitarian considerations are joined by a third consideration-commercialism. Without a doubt, a cancer cure is worth a lot of money. What victim would not offer all he owns, or all he can borrow for even a chance that he might be cured? Large drug companies have made millions on substances designed to treat diseases far less urgent and wide spread than cancer. This then is why two Chicago businessmen tried to get control of the distribution rights to Krebiozen. When they were refused, they threatened to ruin Krebiozen and everyone connected with it. One of the men who made this threat was the friend of J. J. Moore, then treasurer of the American Medical Association. The promise shown in the early tests of Krebiozen seemed to be emphasized with each new experiment. The excitement and relief provided by such apparent success left little room for worry over the threat that had been made. How could so proud and secure a venture as a scientifically proven cancer cure be scuttled by the influence of commercial interests? Dr. Ivy Pays the Price The answer to that question came with devastating swiftness. In rapid succession Dr. Ivy was suspended from membership in the Chicago Medical Society, removed from the vice presidency of the University of Illinois, and had his resignation accepted by both national cancer societies noted above. But worst of all, his work with Krebiozen was assailed as inaccurate and unscientific. His conclusions were dismissed or so interpreted as to discredit his research methods, methods which had been good enough to earn him a worldwide reputation, methods which till then had been regarded as the ultimate in scientific detachment and objectivity. Suddenly the approach was wrong, the conclusions untrue, the impression was fostered that Dr. Ivy was no longer capable of reliable scientific observation. It was even suggested that Dr. Ivy had become senile and was loyal to Krebiozen only because his mind was failing. How Krebiozen Fared The fate of Krebiozen itself was similar. Within a few short months after Dr. Ivy made known some observations on 26 patients whose history showed Krebiozen to be of "promise," the Journal of the Amer:ican Medical Association published a Status Report on Krebiozen. It dealt with 100 case histories, a project which top scientists would have difficulty in completing properly in two years, not six weeks, even working at top speed! The report was extremely damaging, and the temper of the average observer after reading it is reflected in a Chicago Tribune editorial which said, "Medically speaking, Krebiozen is dead. Let it be buried with out ceremony." These people, among them thousands of doctors who rely on the Journal of the American Medical Association for all of their current medical information, never knew that the core of the report was faked. Mr. Bailey shows that the doctor who wrote the article made so many omissions of factual and favorable results and so altered the findings that were at his disposal that even the most naive researcher would have discredited his conclusions at once —as thoroughly utiscientific and worthless. These and other facts showing that the AMA acted in a biased and arbitrary fashion concerning Krebiozen were sworn to under oath at a subsequent investigation of the whole situation by the Illinois State Legislature. But still the smudges on the reputation of Krebiozen could not be erased. When anyone powerful enough to effect a change became interested, he would contact a doctor, perhaps a cancer specialist, who had seen and believed the A.M.A. report, and the doctor could only say he’d seen a report proving Krebiozen worthless. How could the doctor be aware that the article, not Krebiozen, was a fraud? How could he know that five patients examined by the author of the report (but deliberately omitted from it) were free from any detectable cancer after 5 years, due to treatment with Krebiozen? Bailey Names Names The intrigue involved in this story is of melodramatic proportions. There are monitored phone calls, South American undercover agents, falsified medical reports, threats of deportation and suggestions of influence by the Vatican. The story is all written out, and every word is documented by Mr. Bailey. The villains are painted with certainty and positively identified. No innuendo or veiled references are employed to shield the author from possible libel or slander, yet in spite of Mr. Bailey’s invitations, no single action of this kind has ever been instituted. To illustrate: a reporter on the staff of the New York Post, after reading the indictment Cancer?, called the A.M.A. for specific answers to specific questions, such as, "Does J. J. Moore deny that he formed a conspiracy to gain control of Krebiwen?" or, "Does the A.M.A. deny that its official report against Krebiozen was falsified?" and was met with this stock answer: "The A.M.A. will not answer specific questions concerning Krebiozen." The reporter’s s comment: ”. . . it sounds a bit like the A.M.A. is pleading the Fifth Amendment." A Book Is Buried Tile negative attitude of the A.M.A. toward Krebiozen showed itself in the fate of Mr. Bailey’s first book on the subject. The New York Times accepted one advertisement for the book, then refused subsequent ads on the recommendations of its medical advisors. A favorable review of the book was written by the same paper’s science editor, but it never appeared in print. An unfortunate review followed. The New York Public Library, one of the world’s largest, kept the book off its shelves until nearly a year after its publication, because of its "controversial" content. To underline the precariousness of being connected with such a book, the records will show that the publishers of K-Krebiozen-Key to Cancer were out of business within a year of publishing it. Dr. Ivy was having similar problems in publishing a monograph in which he reported on 687 patients over a six year period who had been treated with Krebiozen. The work showed observable benefits in 70% of the cases, and directly objectively beneficial results in 50% of the cases. Dr. Ivy sent an article based on this monograph to one medical journal after another—remember this was news on an effective treatment for cancer!-only to have it returned with apologies and excuses for not being able to publish it. The monograph was finally published by a small general publisher, Henry Regnery, Chicago. Instead of headlines and excitement over the proven claim that Krebiozen had destroyed cancer cells in half of the patients treated with it, the monograph was greeted with apathy and indifference. The American Cancer Society officially announced that it would stand by the A.M.A. verdict of 1951 in the matter, as did others whose opinion could have helped foster interest or general acceptance. Misrepresentations Detailed The stories of Krebiozen’s fight for acceptance against organised medicine are catalogued in A Matter of Life or Death up to l957. They are too numerous for even a brief mention of all of them here, however the details of a correspondence between three Sloan-Kettering cancer specialists and a Mrs Dorothea Seeber on behalf of a friend in the last stages of cancer are typical— Mrs. Seeber wrote a letter asking Sloan-Kettering doctors their opinion of Krebiosen and … read more »

Response:

Why John, then that will only leave you… but you do love yourself the best anyway, Huh? Yeah, I know it is hard to be humble when you are perfect in every way!!! LOL Cheers, John – Hide quoted text — Show quoted text – Thanks for your recent post on laetrile. It reminded me to put the term ‘laetrile’ in my newsgroup filter. Slowly, but surely, I will be filtering out ALL the idiotic posts on these ngs.  :-) — John Gohde,      Achieving good health is an Art, NOT a Science! Introducing the Award Winning www.NaturalHealthPerspective.com — a simple health program that really works! http://home.naturalhealthperspective.com/links.html. Bringing the concept of Links into the New Millennium!

– JOHN AMERO, Parksville, B. C. Canada E-Mail:- ** NOTE 1:- REMOVE the_  NO