Posts belonging to Category 'Seroquel Patient Info'

Silimed Europe Products/Instructions to Surgeons/Patient Info

Question:

**Cancer screening after implantation? ** **Mammography makes it possible to locate tumors. Using a special technique, **the Eklund-technique, mammography is also possible with women with breast **implants. Modern techniques like sonography, MRI or CT help to find tumors **early. 16-18 Even with eklund ~ tumors can be missed this is very misleading ~ dangeously so (but sure helps them sell implants)

Response:

I want to be off your mailing list please do so I did not ask to be put here – Hide quoted text — Show quoted text – **Independent of better surgical implantation techniques, micro-polyurethane **foam-structured implants in large studies show an impressive low rate of **capsular contractures of 0 – 3 % compared to 9 – 50 % with other **implants 1-13. Textured implants also show a clearly lower risk of capsular **contracture than the smooth walled implants. note the study below alexa recently posted on polyurethane Polyurethane or silicone as long-term implant substance–a critical evaluation [Polyurethan oder Silikon als Langzeitimplantatwerkstoff--eine kritische Wertung.] Biomed Tech (Berl) 1993 Jul-Aug;38(7-8):172-8 (ISSN: 0013-5585) Behrend D; Schmitz KP Medizinische Fakultat, Institut fur Biomedizinische Technik und Med. Informatik, Universitat Rostock. Long-term implants made from thermoplastic elastomers have a long history of clinical use. Among other rubber materials, such as polyolefin rubber, much of the demand for rubber-like biomaterials is met by silicone and polyurethane elastomers. The last two elastomers both have sufficient biocompatibility for long-term applications, but differ in terms of biodegradability. Inadequate resistance to degradation almost always leads to implant function loss, which may even threaten the patient’s life. Long-term implantation studies in the rat show different mechanisms of biodegradation for polyurethane and silicone. Polyurethane shown deep fissures in the surface, compared with erosion of silicone surfaces. Mechanical and electrical parameters determined to evaluate degradation, additionally show differences in the extent of damage occurring.

Response:

Hi Patricia I’m not familiar with Supernews. It looks like you must have signed up to receive newsgroup postings in your email. You’ll need to cancel through them. Let me know if you can’t figure it out and I’ll try to help you. I’ll go check out Supernews, too. Good luck

**I want to be off your mailing list please do so I did not ask to be put **here **

** ** **Independent of better surgical implantation techniques, micro-polyurethane ** **foam-structured implants in large studies show an impressive low rate of ** **capsular contractures of 0 – 3 % compared to 9 – 50 % with other ** **implants 1-13. Textured implants also show a clearly lower risk of capsular ** **contracture than the smooth walled implants. ** ** note the study below alexa recently posted on polyurethane ** ** Polyurethane or silicone as long-term implant substance–a critical ** evaluation [Polyurethan oder Silikon als ** Langzeitimplantatwerkstoff--eine kritische ** Wertung.] ** Biomed Tech (Berl) 1993 Jul-Aug;38(7-8):172-8 (ISSN: 0013-5585) ** Behrend D; Schmitz KP ** Medizinische Fakultat, Institut fur Biomedizinische Technik und Med. ** Informatik, Universitat Rostock. ** ** Long-term implants made from thermoplastic elastomers have a long ** history ** of clinical use. Among other rubber materials, such as polyolefin ** rubber, ** much of the demand for rubber-like biomaterials is met by silicone and ** polyurethane elastomers. The last two elastomers both have sufficient ** biocompatibility for long-term applications, but differ in terms of ** biodegradability. Inadequate resistance to degradation almost always ** leads ** to implant function loss, which may even threaten the patient’s life. ** Long-term implantation studies in the rat show different mechanisms of ** biodegradation for polyurethane and silicone. Polyurethane shown deep ** fissures in the surface, compared with erosion of silicone surfaces. ** Mechanical and electrical parameters determined to evaluate degradation, ** additionally show differences in the extent of damage occurring.

Response:

**Independent of better surgical implantation techniques, micro-polyurethane **foam-structured implants in large studies show an impressive low rate of **capsular contractures of 0 – 3 % compared to 9 – 50 % with other **implants 1-13. Textured implants also show a clearly lower risk of capsular **contracture than the smooth walled implants. note the study below alexa recently posted on polyurethane Polyurethane or silicone as long-term implant substance–a critical evaluation [Polyurethan oder Silikon als Langzeitimplantatwerkstoff--eine kritische Wertung.] Biomed Tech (Berl) 1993 Jul-Aug;38(7-8):172-8 (ISSN: 0013-5585) Behrend D; Schmitz KP Medizinische Fakultat, Institut fur Biomedizinische Technik und Med. Informatik, Universitat Rostock. Long-term implants made from thermoplastic elastomers have a long history of clinical use. Among other rubber materials, such as polyolefin rubber, much of the demand for rubber-like biomaterials is met by silicone and polyurethane elastomers. The last two elastomers both have sufficient biocompatibility for long-term applications, but differ in terms of biodegradability. Inadequate resistance to degradation almost always leads to implant function loss, which may even threaten the patient’s life. Long-term implantation studies in the rat show different mechanisms of biodegradation for polyurethane and silicone. Polyurethane shown deep fissures in the surface, compared with erosion of silicone surfaces. Mechanical and electrical parameters determined to evaluate degradation, additionally show differences in the extent of damage occurring.

Response:

This is currently their advertising on the web, Rogene? Are they really still making polyurethane foam covered implants?? BTW, how are Silimed and PIP implants related, if anyone knows? Scary stuff.

**I certainly don’t intend to advertise for Silimed breast implants . . . but **I think this group will find their patient information and physician **instructions interesting. ** **Please read the contraindications carefully! ** **Rogene ** **Silimed Europe Products/Instructions to Surgeons/Patient Info ** **A breast implant – for me? **Do you have questions concerning breast implants for the reconstruction or **augmentation of the breast? ** **In the following, we will inform you about breast implants and try to answer **the questions, which might be of concern. ** **Breast implants have been used since the early sixties. In this time more **than 2 million women have decided to have silicone gel filled implants. ** **The implants have constantly been improved. Cooperation between patients, **physicians and manufacturers enable constant adaptation to the latest **medical and technical knowledge. ** **The number of women who decide for a breast reconstruction (re-building of **the breast) after breast cancer has increased significantly during the last **few years. Breast reconstruction, but also augmentation, has become one of **the most performed operations in the field of plastic and reconstructive **surgery. ** ** What is silicone? ** **In the medical field silicone is used for a variety of products: probes, **catheters, coating of puncture needles and cardiac pacemakers, gloves and **wound coating. In the field of soft tissue surgery, implants are used for **body contour correction. ** **The first production process for silicone polymers was patented in 1958. ** **Silicone or, as chemists call it, dimethylpolysiloxan, is produced as **silicone elastomer, silicone gel and silicone oil. In silicones oxygen and **silicon are bound together in the same way as in stones and glass. **Additionally, methyl groups are bound to the silicon atoms. Except of **pyrogenic fluosilicic acid – very fine quartz (amorphous silica) – as a **filling and stabilizing material, silicone does not contain any other **additives, especially no softening agents. ** **Thus, a stable, chemically exactly defined implant material is available. ** ** **Are there different types of implants? ** **Yes. A broad variety of silicone implants are available. All present breast **implants have an outer silicone envelope. The form of the implants varies: **round, teardrop, anatomical, with high or moderate projection. For decades **the implants have been filled successfully with silicone gel and saline **solution. ** **Implants filled with highly cross-linked silicone gel are presently, **according to the state of the art, the best replacement for soft tissue. **Such a silicone gel has a "memory-effect", i.e. the gel always returns to **its given form. In its consistency, palpability and movement it imitates the **natural breast. ** **An important difference is the surface of the implants. The first implants **manufactured in the sixties were smooth-walled. Since the middle of the **seventies micro-polyurethane foam-structured implants have been used. At the **end of the eighties textured implants were introduced. ** **Nowadays three different surfaces are available. ** ** **Why do different surfaces exist? ** **As a natural reaction, the organism builds a capsule around any foreign **body, and therefore around an implant as well. ** **The capsule can tightly surround the implant and contract. This contracture **may change the shape of the implant and, therefore, the shape of the breast. **The capsule may become very firm and cause pain. This complication is called **capsular contracture. ** **How often capsular contracture occurs depends, among other factors, on the **implant surface. ** **Independent of better surgical implantation techniques, micro-polyurethane **foam-structured implants in large studies show an impressive low rate of **capsular contractures of 0 – 3 % compared to 9 – 50 % with other **implants 1-13. Textured implants also show a clearly lower risk of capsular **contracture than the smooth walled implants. ** ** **Do implants have to pass safety tests? ** **Yes. For many years, the safety and reliability of implants have been proven **constantly. 35 years of experience are the basis of their safety profile. ** **All over Europe, the Medical Device Directive and international standards **stipulate clear requirements for such products. Materials, development, **manufacturing, sterilization and packaging are subject to strict rules. ** ** **Does an implant change my physical appearance? ** **Yes. Using breast implants, an almost natural look, feel and movement of the **breast can be reached. 14,15 ** ** **Are there different surgical procedures? ** **Yes. Please ask your physician about the surgical procedure for breast **reconstruction and augmentation. Only your physician can individually inform **you about the different techniques and the possible risks involved with the **operation. ** ** **Cancer screening after implantation? ** **Mammography makes it possible to locate tumors. Using a special technique, **the Eklund-technique, mammography is also possible with women with breast **implants. Modern techniques like sonography, MRI or CT help to find tumors **early. 16-18 ** ** **What influence do breast implants have on cancer treatment? ** **In large studies it was evaluated that women with breast implants do not **suffer from breast cancer more often than comparable women without breast **implants. 19-23. ** **A breast implant does not have any influence on the occurrence of breast **cancer. The occurrence of breast cancer due to smooth, silicone textured or **micro-polyurethane foam-structured implants has not been observed in either **human beings nor in animal studies. In science, however, theoretical risks **are discussed. 24, 25. ** ** **Do micro-polyurethane foam-structured implants bear a greater infection risk **than other implants? ** **No! 26 ** ** **Is the risk of an autoimmune disease higher for women with breast implants? ** **No! ** ** **No plausible link between silicone gel filled implants and autoimmune **diseases could be proven. 27-33 ** ** **Can silicone gel permeate through the implant shell? ** **In contrast to previous generations of implants only negligible traces of **gel can be found in the connective tissue capsule, due to the significantly **improved quality of the implant shells and the gel consistency. 34-36 These **gel traces remain within the connective tissue capsule. ** ** **Is a manual external treatment of capsular contracture appropriate? ** **According to recent scientific knowledge the manual external treatment of **capsular contracture should not be performed because it may damage the **implant. ** ** **How long does an implant last? ** **Each host organism shows an individual reaction to a foreign body. Current **studies resulted in an average life expectancy of 10 years. 37,38. Because **of implant improvements a prolonged life expectancy of current implants is **expected for the future. The intactness of the implant and its correct **position should be checked by your physician every six months or yearly. ** ** **Implant passport and documentation ** **After implantation your physician will give you an implant passport. Please **carry it always with you, so the information concerning the type and size of **the implant is available at any time. For your own safety, please inform any **physician in charge about your implants. ** ** **How to prepare the counseling with your physician ** **Ask your physician everything you want to know. Prepare this conversation by **making a list of your questions regarding breast reconstruction or **augmentation. Discuss these questions with your physician. It is very **important that you make your own clear, personal decision before you undergo **surgery! ** ** **References ** **Baudelot, S. (1989) Assessment of four year’s experience with microthane **coated breast implants. Ann. Chir. Plast. Esth

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Lymphoma New Patient Info wanted please

Question:

I was just informed of the results of a tissue biopsy…LYMPHOMA was the diagnosis. I understand very little so far and have yet to meet with an oncologist (did I spell that correctly). I know I am supposed to have a low grade? what ever that means!! Do you have any information on treatment, this type of cancer, prognosis, etc. What ever you can provide would be greatly appreciated. My new motto "This ain’t no rehearsal….live today to the fullest" John Talarico

Response:

Dear John, My husband’s lymphoma is low-grade also. Treatment depends upon what stage the cancer is at. If the lymphoma is found in just one site, radiation may be all that is required. If it is more widespread throughout the lymph nodes, chemotherapy with one or two medications is the rule in British Columbia. Low-grade lymphoma is more difficult to "cure" than a high-grade lymphoma, but it is treatable and people with it can live for years and years. Also, new treatments are now being investigated which look hopeful. My husband was diagnosed 4.5 years ago and is doing well. He is leading a normal life. He was 37 at diagnosis. Hang in there. Make a list of questions to ask your oncologist. You will become very knowledgeable in a short time. Good luck, Susan | _,,,–,,_ ,) /,`.-’`’ -, ;-;;’ Susan Adamson |,4- ) )-,_ ) / New Westminster

Response:

– Hide quoted text — Show quoted text -Adamson) writes: I was just informed of the results of a tissue biopsy…LYMPHOMA was the diagnosis. I understand very little so far and have yet to meet with an oncologist (did I spell that correctly). I know I am supposed to have a low grade? what ever that means!! Do you have any information on treatment, this type of cancer, prognosis, etc. What ever you can provide would be greatly appreciated. My new motto "This ain’t no rehearsal….live today to the fullest" John Talarico Dear John, My husband’s lymphoma is low-grade also. Treatment depends upon what stage the cancer is at. If the lymphoma is found in just one site, radiation may be all that is required. If it is more widespread throughout the lymph nodes, chemotherapy with one or two medications is the rule in British Columbia. Low-grade lymphoma is more difficult to "cure" than a high-grade lymphoma, but it is treatable and people with it can live for years and years. Also, new treatments are now being investigated which look hopeful. My husband was diagnosed 4.5 years ago and is doing well. He is leading a normal life. He was 37 at diagnosis. Hang in there. Make a list of questions to ask your oncologist. You will become very knowledgeable in a short time. Good luck, Susan | _,,,–,,_ ,) /,`.-’`’ -, ;-;;’ Susan Adamson |,4- ) )-,_ ) / New Westminster

My son in law was exposed to agent orange and developed lymphona. His case after chemo and bone marrow transplant looks good. Now, two years later his strength and color are returning. One thing odd, he had gray hair and a gray beard. His hair which was straight is now curly and black: his beard is alaso curly and black. Now my sister in law has developped the lyphoma and she is under going treatment. 1986 I developed cancer in my lower jaw. After an operation (1986) there is now no trace of it. There is hope Take care Grant

Response:

: I was just informed of the results of a tissue biopsy…LYMPHOMA : was the diagnosis. : Do you have any information on treatment, this type of cancer, : prognosis, etc. What ever you can provide would be greatly appreciated. There are several good sites on the web. I humbly suggest my web site "Lymphoma Resource Pages" at http://users.aol.com/kittyba/lymphoma.html where I have info & links to other sites. If you have low grade lymphoma you have a for of Non-Hodgkin’s lymphoma. Keep this in mind when you search. Good luck, Mike — , , (il ).-” ((i).’ ((!.-’

Response:

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Cough, cough …

Question:

Feeling sorry for myself, this poor post-graduate scientist has had a nasty cough for weeks and went to see her GP today. After a bit of listening with the stethoscope, GP says – you have a chest infection – have some antibiotics. He’s given me Klaricid (clarithromycin) 250mg. Blister pack of 12 tablets, one tablet to be taken twice a day, so I have six days’ supply. Being a concientious sort, I always read the patient information leaflets in any medicines I am given. I get to the bit on the leaflet which is about taking your medicine. Here’s what it says:- " For chest infections, throat or sinus … The usual dose of clarithromycin for adults and children over 12 years is 250mg twice daily for seven days, …" Yet the blister pack contains only 12 tablets, the box the tablets came in clearly states 12 tablets in the pack, when the patient information leaflet clearly suggests there should be 14 tablets (2 tablets a day over seven days – even I can manage that level of mathematics). I’ve checked the blister pack – no spaces for missing tablets, I’ve rattled the box but find no spare tablets lurking What I want to know, is it some fiendish plot to shortchange patients of the full course of antibiotics, so there are some bugs still left which lead to resistance developing and the patient needing yet more antibiotics developed by the company and increase sales! Then again, I could have watched one too many episodes of the X-files Cheers, helen s Flush out that intestinal parasite and/or the waste product before sending a reply! Any speeliong mistake$ aR the resiult of my cats sitting on the keyboaRRRDdd

Response:

– Hide quoted text — Show quoted text – Feeling sorry for myself, this poor post-graduate scientist has had a nasty cough for weeks and went to see her GP today. After a bit of listening with the stethoscope, GP says – you have a chest infection – have some antibiotics. He’s given me Klaricid (clarithromycin) 250mg. Blister pack of 12 tablets, one tablet to be taken twice a day, so I have six days’ supply. Being a concientious sort, I always read the patient information leaflets in any medicines I am given. I get to the bit on the leaflet which is about taking your medicine. Here’s what it says:- " For chest infections, throat or sinus … The usual dose of clarithromycin for adults and children over 12 years is 250mg twice daily for seven days, …" Yet the blister pack contains only 12 tablets, the box the tablets came in clearly states 12 tablets in the pack, when the patient information leaflet clearly suggests there should be 14 tablets (2 tablets a day over seven days – even I can manage that level of mathematics). I’ve checked the blister pack – no spaces for missing tablets, I’ve rattled the box but find no spare tablets lurking What I want to know, is it some fiendish plot to shortchange patients of the full course of antibiotics, so there are some bugs still left which lead to resistance developing and the patient needing yet more

antibiotics developed by the company and increase sales! Then again, I could have watched one too many episodes of the X-files

could well be LOL sorry about the cough! didn’t we tell you to get better already? purrs! — lewe lewemi at yahoo dot se | cat pics: photos.yahoo.com/lewemi

Response:

Close, but no cigar. I think the real reason is to make patients buy 2 packages of pills, even if you only need 1 and two more pills. I bet you they don’t sell single pills… I personally like azythromicin because you only take 5 pills, two the first day and then 1 each day, for a total of 4 days. It works really well. — Victor M. Martinez http://www.che.utexas.edu/~martiv

Response:

What I want to know, is it some fiendish plot to shortchange patients of the full course of antibiotics, so there are some bugs still left which lead to resistance developing and the patient needing yet more antibiotics developed by the company and increase sales! Then again, I could have watched one too many episodes of the X-files Close, but no cigar. I think the real reason is to make patients buy 2 packages of pills, even if you only need 1 and two more pills. I bet you they don’t sell single pills… I personally like azythromicin because you only take 5 pills, two the first day and then 1 each day, for a total of 4 days. It works really well.

Hmm. Or maybe they split the difference between the adult and child dosage full course.

Response:

– Hide quoted text — Show quoted text – What I want to know, is it some fiendish plot to shortchange patients of the full course of antibiotics, so there are some bugs still left which lead to resistance developing and the patient needing yet more antibiotics developed by the company and increase sales! Then again, I could have watched one too many episodes of the X-files Close, but no cigar. I think the real reason is to make patients buy 2 packages of pills, even if you only need 1 and two more pills. I bet you they don’t sell single pills… I personally like azythromicin because you only take 5 pills, two the first day and then 1 each day, for a total of 4 days. It works really well. — Victor M. Martinez http://www.che.utexas.edu/~martiv

I love that Zythromicin! Finally an antibiotic that actually DID something. Karen

Response:

LOL! Maybe they just can’t count. They’re pharmacists, you know, not mathematicians. ;o) Purrs that you get well soon. — Marina

Response:

LOL! Maybe they just can’t count. They’re pharmacists, you know, not mathematicians. ;o) Purrs that you get well soon.

Thanks – since starting to take the pills, I now feel *worse* – I’m hoping it’s a "you’ll feel worse before you feel better" sort of thing, if you see what I mean. *hugs* with earscritches for the felines - and a mowsie for Frank from Waffles <:)))))~ Flush out that intestinal parasite and/or the waste product before sending a reply! Any speeliong mistake$ aR the resiult of my cats sitting on the keyboaRRRDdd

Response:

Hmm. Or maybe they split the difference between the adult and child dosage full course.

These antibiotics are not to be used on anyone under age of 12 and over 12 is same as adult doseage. I think in reality there is just a plain old cock-up! Cheers, helen s Flush out that intestinal parasite and/or the waste product before sending a reply! Any speeliong mistake$ aR the resiult of my cats sitting on the keyboaRRRDdd

Response:

Close, but no cigar. I think the real reason is to make patients buy 2 packages of pills, even if you only need 1 and two more pills. I bet you they don’t sell single pills…

Well, under the UK system (NHS) if the doc had prescribed me two packs of antibiotics at once, I’d have paid the same as a prescription for a single pack. I rang the surgery this morning & spoke to the person who dispenses the meds. She was amazed that a patient had actually read the patient info leaflet, then said she wasn’t aware of the discrepancy as she hadn’t read the leaflet … Cheers, helen s Flush out that intestinal parasite and/or the waste product before sending a reply! Any speeliong mistake$ aR the resiult of my cats sitting on the keyboaRRRDdd

Response:

could well be LOL sorry about the cough! didn’t we tell you to get better already? purrs!

Yes you did. I am bad person for not doing as I’m told Cheers, helen s Flush out that intestinal parasite and/or the waste product before sending a reply! Any speeliong mistake$ aR the resiult of my cats sitting on the keyboaRRRDdd

Response:

Antibiotics *will* make you feel worse before you can feel better. It’s a matter of the antibiotics taking your energy for bug fighting and not energy for you to feel good. Motherthing

Response:

leaflet … LOL! — lewe lewemi at yahoo dot se | cat pics: photos.yahoo.com/lewemi

Response:

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What else can I be doing to treat my depression, Anixeity, and OCD…???

Question:

Look into a product called Q-Gels (Co-Enzyme Q-10 and L-Carnitine), since you seem inclined toward such things – it is the one thing I’ve had people consistently tell me gave them energy; energy is what will take us from one "place" to another…. Get out and participate in life, even if it’s the smallest thing, start a conversation with a haircutter who’s doing your hair. I can’t stress enough that the solutions are not really found in bottles or people’s offices or in gyms – the real joy in life is in interaction with real people who see you (because you let them) as a real person. (disclaimer: the bottles/offices/gyms can certainly be what helps us enough energy to get up and interact). You express concern over sexual side effects in one thing I read, are you in a relationship? How’s that going? Gary

– Hide quoted text — Show quoted text – HI; Below is a list of everything I am doing to fight my depression, anixeity, and OCD. What else can I do to heal / cope faster? Diet: More towards vegetarian, and chicken Exercise: 3 X a week (Cardio and weight training) Meditation Sauna / Massage Chiropratic care on a Regular basis Thearpy Every other week with thearpy over the phone about twice a week. I keep trying to drink lots of Water I Listen to Hypnosis I keep a journal I write to and communicate with online support groups. These are the medications and suplments I am taking: Medication / Suplment List: AM: GNC Ultra Mega

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Long Term Sinus Problem

Question:

Looks like my post from Sunday showed up today, weird. Thom

Response:

JEd wrote:

I am in the UK and I have suffered with chronic sinusitis for about 7 years now. My symptoms include pressured headaches, face pain, and dizziness. This is on a daily basis and shows no sign of improving, the older I get. I have seen my doctor may times and tried various tablets and nasal sprays, and none have given any long term benefit. I have even tried acupuncture.

Try seeing another physician–in particular, I suggest seeing a specialist (ENT or otolaryngologist). I have found that very few general practitioners are skilled at treating chronic sinusitis. Ask the ENT to do a CT scan of your sinuses (if this hasn’t been done already), and a nasal endoscopy. These two tests will help elucidate just what is causing your sinusitis. If it turns out to be an anatomical blockage, then surgery is the way to go.

He has mentioned the possibility of surgery, but he stated that it is very painful and has a low success rate.

This is untrue. A major study was conducted just last year on the success of chronic sinusitis treatments and it concluded that endoscopic sinus surgery had a high success rate (about 85%), whereas antibiotics are known to have a much lower success rate. I had sinus surgery under general anesthesia, so i felt no pain. I was given Percocet to ease the post-operative pain (which was bad only for about 48 hours), and that helped a lot. I was back at work within a week of the surgery.

Does anyone have any remedies, herbal or otherwise that I could try or indeed any other suggestions?

In general: Whatever your symptoms, whenever a physician has been unable to help you after 6 months, it’s time to find another physician. — Steven D. Litvintchouk Email: s…@mitre.org Disclaimer: As far as I am aware, the opinions expressed herein are not those of my employer.

Response:

Hi JEd I too have been suffering from Chronic Sinus problem caused by a Infection that Docotors cannot get rid of. I am going to try a pain managment program called Felden Krais Technique, this is supposed to help one deal with sinus and facial pain. As for surgery, I have had two lots and it’s probably made it worse. If surgery is really, necessary, make sure the surgeon uses laser surgery. Mine did not and not I have a drainage hole in left sinus cavity that I have to always irriagte, as it gets too dry. Good luck Phil – Hide quoted text — Show quoted text -

I am in the UK and I have suffered with chronic sinusitis for about 7 years now. My symptoms include pressured headaches, face pain, and dizziness. This is on a daily basis and shows no sign of improving, the older I get. I have seen my doctor may times and tried various tablets and nasal sprays, and none have given any long term benefit. I have even tried acupuncture. He has mentioned the possibility of surgery, but he stated that it is very painful and has a low success rate. Does anyone have any remedies, herbal or otherwise that I could try or indeed any other suggestions? Anything to help – I would be extremely grateful. Yours hopefully, Mark E

Response:

Aaron Andrew Fox wrote:

Martin I think FESS has a fairly high success rate, although I don’t know the numbers. True, many people need it done more than once, but many others are virtually cured by it. I was — I haven’t had a serious infection since my surgery, just pressure and stuffiness every once in a while.

I had FESS after two year of absolute misery (did everything, irrigations etc). What it HASN’T do is helped my allergies (duh). FESS has made the irrigations more successful, and am off all nasal sprays. I take Benadryl and do the irrigations. Life has been miserable in the pollen belt MidWest.

The key variable in the success of FESS surgery — as with virtually any other surgery — is the experience of the surgeon. Make sure you have it done by someone trained in the most modern approaches, but also a doc who does FESS surgery a few times a week and has done it hundreds of times. Don’t be afrad to ask your surgeon about these things and to insist on getting someone experienced.

The doctor is everything in FESS surgery. I know folks who have had a good surgeon and had problems, but medicine still is more art than science. You want someone who is doing it a few times a week, and has done it a hundred times. You want a doctor that has seen and can handle problems that pop up in the OR. You don’t want Dr. Zippy, just from a weekend seminar, practicing on you My 2 cents worth Nanci

Response:

In article <6ler2q$81…@newsd-162.iap.bryant.webtv.net

,

piscata…@webtv.net says…

Like u said its all about what kind of surgery u have , and how much expierence the doctor has.. U had me going in the right direction, until u started talkin about the eyes , brain , death..

Sorry if this looks like a double post… I had posted a followup last night, but I don’t see it on my server or Dejanews. In case it shows up, I won’t repeat myself here as Aaron has addressed my concerns that you realize the dangers of continued chronic infection and do not just live with this. In the post you quoted, I was referring to the complications from sinusitis involving the eyes, brain, and even death, not surgery. That depends on the surgeon’s skill and experience, I could go on… Thom

Response:

In article <6ler2q$81…@newsd-162.iap.bryant.webtv.net

,

piscata…@webtv.net says…

Thom, U had me going in the right direction, until u started talkin about the eyes , brain , death..

I’m referring to an infection migrating from the sinuses to the eye or brain! I’m saying people do get into real trouble from sinusitis complications when its left improperly treated, sorry if that was not clear. It not just about feeling bad. When my orthopedist said I wouldn’t die if I didn’t have that knee surgery, I didn’t worry too much. This is different, I’ve never had an ENT tell me to just live with it. Yes, poor surgery by a doctor can "involve" those areas too, that’s why you get the best one you can find with no history of complications. I don’t know the statistics of continuing with an infection vs. the risk of surgery, but at some point, IMO, the risk of the infection spreading and the risk of continued antibiotic therapy has to exceed the risk of surgery. Maybe someone else in the group knows these stats. Especially considering the newer imaging techniques available, the risk of FESS is dropping. Believe me, I will not advise anyone to get surgery, I can only relate my experience. I know its easy for me to say, now that I’ve had the surgery, but my experience was much less trouble than I ever feared. If I could have lived the experience somehow first, and then decided, I would have done it long ago. I still would have sought the most experienced doctor in the newest techniques, etc. And I will also say again, at three weeks and a few days out, its still early to know the ultimate outcome. However, today I washed two cars, even polished and waxed one of them (wore a dust mask), worked in the garden and am getting ready for a nice evening with family on the deck with the grill fired up. No fatigue or dizziness and stopping to rest any more. My nose drips a little from the saline spray I use every hour, but I feel good and I plan to continue getting better. I just hope you don’t suffer needlessly, if in fact surgery would get you back to health. I think I suffered more than I needed to for a long time, but that’s my situation. Good luck in finding what works best for you, its all about making well informed decisions and your own experience with acting on those decisions. Thom

Response:

- Hide quoted text — Show quoted text -In article <3579018…@news2.mcmail.com

, "JEd" <jaedward…@hotmail.com wrote: I am in the UK and I have suffered with chronic sinusitis for about 7 years now. My symptoms include pressured headaches, face pain, and dizziness. This is on a daily basis and shows no sign of improving, the older I get. I have seen my doctor may times and tried various tablets and nasal sprays, and none have given any long term benefit. I have even tried acupuncture. He has mentioned the possibility of surgery, but he stated that it is very painful and has a low success rate. Does anyone have any remedies, herbal or otherwise that I could try or indeed any other suggestions? Anything to help – I would be extremely grateful. Yours hopefully, Mark E

In the hands of an experienced ENT surgeon, the effects of functional endoscopic sinus surgery (FESS) can be dramatic. I know because for years I was VERY ill with chronic sinus infections and waited too long to treatthe problem properly because of all the fears of surgery. Deciding to have the surgery was the best thing I could have done for my health. I had the surgery two years ago and have not had one sinus infection since the day they operated on me.

Response:

I am in the UK and I have suffered with chronic sinusitis for about 7 years now. My symptoms include pressured headaches, face pain, and dizziness. This is on a daily basis and shows no sign of improving, the older I get. I have seen my doctor may times and tried various tablets and nasal sprays, and none have given any long term benefit. I have even tried acupuncture. He has mentioned the possibility of surgery, but he stated that it is very painful and has a low success rate. Does anyone have any remedies, herbal or otherwise that I could try or indeed any other suggestions? Anything to help – I would be extremely grateful. Yours hopefully, Mark E

Response:

Mark I have had sinus problems about as long as you. I swear every morning when i get up i think i want to die because the pain is so severe. I just cannot hardly get out of bed and get going until about 1 oclock in the afternoon. You are not alone. Jeff

Response:

As Aaron says, this surgery in the hands of a doctor trained and experienced is very successful (my doc says 85%, 5% no change and around 10% repeat) and is mildly uncomfortable once the general anesthesia hangover wears off. There can be some very painful follow up, but we’re talking minutes. There is no substitute for experience, find someone who has been doing this for at least 10 years and a thousand successful procedures with NO complications. They are out there. And try to find a doctor that has access to the Instatrak image guided surgery system. This is worth traveling for. I am three weeks into recovery and can tell you it is nowhere near as painful and difficult to deal with as I had feared. It took me ten years of repeated acute infections treated poorly by my internist to finally see a real ENT (otolaryngologist) and an allergist to be properly diagnosed around 1993. After that, it was my own fear of surgery (no surgery is ever to be taken lightly) and attempts to find anything other than surgery to cure the problem. I think this is only natural, but sometimes misguided, behavior. The course of chronic sinus disease is a torturous one and in many cases (like mine) one can go through many machinations to cure it. For years I was in the "antibiotic management" phase. I’d get a nasty acute infection, get it treated with various antibiotics for one to six months, go back to the chronic stage (irrigating religiously and spraying nasal steroids to try to prevent the next one) feeling "ok" (what a laugh) but the next acute infection would always come. My ENT said I was almost in the lunatic fringe group of those avoiding surgery, but he said I’d eventually feel so bad, I’d come around. He was right. Unfortunately, sometimes mechanical intervention is the only route. When nothing else has worked and you’re sick and tired of being sick, and an excellent ENT has a very detailed CAT scan on the light box that proves his point, what’s one to do? And don’t forget the very real (albeit rare) threat of involvement of the eye, brain, death, etc. It does happen, especially when the sphenoid and frontal sinuses are involved. And, people do become allergic to antibiotics they take over and over (if not already), and they also do get colitis from a constant intake of antibiotics. You can’t take this stuff forever. Read the patient info that comes with the pills. I’m not a doctor, so I can’t say surgery is the only cure, only time will tell in my case, but I am finally very optimistic. Hey, martin in new jersey, with that kind of attitude, you’ll be suffering a lot longer. Sure, you’ve got your egotistical brain surgeons and cardiologists here and there, but most doctors do what they do because they care about people, IMHO. The money is secondary and I think most of them earn it. Thom

Response:

Category Categories: Seroquel Patient Info | No Comments »

Well!

Question:

On Sat, 8 Jun 2002 16:22:54 -0700, "Nancy" <fnew…@surfbest.net

wrote:

Have you & Dr. considered Neurontin?

Hi Nancy – not for this particular problem but when she started to recommend something last month I shut her up so I don’t know where she was going with the thought process. I was on Neurontin for a while for migraines – it didn’t help that. But it was a low dose and she’s not comfortable enough with the drug to prescribe anything higher.

OTOH, give the printer some Neurontin! I can d/l them OK but they don’t install right! @#$%!

sorry you’re having problems there. Much as I love Canon quality, their interface to my PC has always been flakey. Epson has been slightly more tolerable. gotta run, Thanks and take care,kcat

Response:

Wellll! <S

For Neurontin to do *anything* the dose has to be at least 900

mg. a day. It commonly comes in 300 mg. capsules, it does cause significant sedation at first so one usually starts with one at bedtime, after a week add one 6-7 hours earlier, after a week add one 6-7 hours earlier. For those who go higher, add another, adjusting the intervals to total 1200 per day. Then double up to 600 per dose. On the Neurontin list I’ve read of people taking as much as 4800 – 6000 per day! But I’m glad I don’t need to explore that right now! lol The patient info insert has most of this info, for your dr’s reading if you want to try it. I can only say that I was amazed at how much less my hands & feet hurt, my overall pain level is lessened. All the ‘electrical’ sorts of pain, the ‘jabs’, long period intermittent aches. I just always thought most of the day-to-day pain was fibro or osteo arthritis which has taken up residence in athletic injury sites. — Nancy F "KC" <kcdoc…@ghg.net

wrote in message

news:m2b7gus9p4hg162t1pkrefmj95j7de0sru@4ax.com… – Hide quoted text — Show quoted text -

On Sat, 8 Jun 2002 16:22:54 -0700, "Nancy" <fnew…@surfbest.net wrote: Have you & Dr. considered Neurontin? Hi Nancy – not for this particular problem but when she started to recommend something last month I shut her up so I don’t know where she was going with the thought process. I was on Neurontin for a while for migraines – it didn’t help that. But it was a low dose and she’s not comfortable enough with the drug to prescribe anything higher. OTOH, give the printer some Neurontin! I can d/l them OK but they don’t install right! @#$%! sorry you’re having problems there. Much as I love Canon quality, their interface to my PC has always been flakey. Epson has been slightly more tolerable. gotta run, Thanks and take care,kcat

Response:

Have you & Dr. considered Neurontin? Works great, quite a lot of sedation when starting but then smooths out. Labeled for an anti-convulsant, used for nerve pain a lot, also migraines. OTOH, give the printer some Neurontin! I can d/l them OK but they don’t install right! @#$%! — Nancy F "KC" <kcdoc…@ghg.net

wrote in message

news:d11nfu8n5lk9qf99ij37oa2j89a2h8hhr8@4ax.com… – Hide quoted text — Show quoted text -

I forgot to mention the burning and tingling in my feet to the doc. every day since my appt. I’ve gotten these lovely shooting pains to the arch or ball of my foot (not a spasm – feels like I’m being stabbed with needle). may have supported the neuropathy dx of the hands…

Response:

It sounds weird – but it works. Rub bottom of foot with ice cube. Also works on calf pain. "Beverley" <pottings…@sybercom.net

wrote in message

news:ufujvulvtk5c2f@corp.supernews.com… – Hide quoted text — Show quoted text -

I used to get that all the time as a kid. Felt awful!!! Right in the arch

of > my foot. Haven’t had it for years. Never figured out why. A real take your > breath away sharp quick stabbing pain. > Lots of sympathy from me! > Bev > "KC" <kcdoc…@ghg.net

wrote in message

> news:d11nfu8n5lk9qf99ij37oa2j89a2h8hhr8@4ax.com… > > I forgot to mention the burning and tingling in my feet to the doc. > > every day since my appt. I’ve gotten these lovely shooting pains to > > the arch or ball of my foot (not a spasm – feels like I’m being > > stabbed with needle). > > may have supported the neuropathy dx of the hands… > > ah well. i’ll be back there in 3 months. ““““ > > hope ya’ll are well. I’m going to attempt a download of a printer > > driver – again! > > everyone have a good day.

Response:

In article <adnpt722…@enews2.newsguy.com

, J Rogow

<JRo…@Newsguy.com

wrote It sounds weird – but it works. Rub bottom of foot with ice cube. Also works on calf pain.

Doesn’t it moo a lot? — Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps

For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus

For my other interests <URL:http://www.kitzbuhel.demon.co.uk

Response:

"Andy" <a…@kitzbuhel.demon.co.uk

wrote in message

news:+89gZ9AGJ4$8EwVU@kitzbuhel.demon.co.uk…

In article <adnpt722…@enews2.newsguy.com, J Rogow <JRo…@Newsguy.com wrote It sounds weird – but it works. Rub bottom of foot with ice cube. Also works on calf pain. Doesn’t it moo a lot?

What a COWardly comment!

Response:

On Thu, 6 Jun 2002 07:08:47 -0700, "J Rogow" <JRo…@Newsguy.com

wrote:

It sounds weird – but it works. Rub bottom of foot with ice cube. Also works on calf pain.

can I do that with having Raynaud’s? it’s very brief and it’s right in the ball of the foot – never had this before. Sometimes it aims for a toe and feels like a fire ant is biting me. (for those not initiated in the ways of Fire Ants – let’s just say there’s a big wallop in those little guys’ bites). it is fairly consistent in timing too – almost always at night and after I’ve been in bed for a few minutes. during the day it rarely happens. <shrug

Response:

"KC" <kcdoc…@ghg.net

wrote in message

news:jo6vfuk8r7b9ok74jvka4htqfddh14hbno@4ax.com… – Hide quoted text — Show quoted text -

On Thu, 6 Jun 2002 07:08:47 -0700, "J Rogow" <JRo…@Newsguy.com wrote: It sounds weird – but it works. Rub bottom of foot with ice cube. Also works on calf pain. can I do that with having Raynaud’s? it’s very brief and it’s right in the ball of the foot – never had this before. Sometimes it aims for a toe and feels like a fire ant is biting me. (for those not initiated in the ways of Fire Ants – let’s just say there’s a big wallop in those little guys’ bites). it is fairly consistent in timing too – almost always at night and after I’ve been in bed for a few minutes. during the day it rarely happens. <shrug

I have Reynard’s too, and it works for me with no after effect.

Response:

I used to get that all the time as a kid. Felt awful!!! Right in the arch of my foot. Haven’t had it for years. Never figured out why. A real take your breath away sharp quick stabbing pain. Lots of sympathy from me! Bev "KC" <kcdoc…@ghg.net

wrote in message

news:d11nfu8n5lk9qf99ij37oa2j89a2h8hhr8@4ax.com… – Hide quoted text — Show quoted text -

I forgot to mention the burning and tingling in my feet to the doc. every day since my appt. I’ve gotten these lovely shooting pains to the arch or ball of my foot (not a spasm – feels like I’m being stabbed with needle). may have supported the neuropathy dx of the hands… ah well. i’ll be back there in 3 months. ““““ hope ya’ll are well. I’m going to attempt a download of a printer driver – again! everyone have a good day.

Response:

I forgot to mention the burning and tingling in my feet to the doc. every day since my appt. I’ve gotten these lovely shooting pains to the arch or ball of my foot (not a spasm – feels like I’m being stabbed with needle). may have supported the neuropathy dx of the hands… ah well. i’ll be back there in 3 months. ““““ hope ya’ll are well. I’m going to attempt a download of a printer driver – again! everyone have a good day.

Response:

Category Categories: Seroquel Patient Info | No Comments »

GREG – PLEASE PROVIDE THE INFORMATION YOU PROMISED

Question:

Greg, you did not (below) promise to send your evidence as anonymous information to the newsgroup. Could you please rpovide the information you promised please. Thank you. Captain Crunch ——————- On Aug 27, "Gregory" <gcdrak…@aol.com

wrote in message

"Why this world makes no FUCKING sense": – Hide quoted text — Show quoted text -

1. I have a FRIEND who is a doctor who encouraged me to undergo a psychiatric examination. Her name is Dr. Kenna Pernethicot. Last Wednesday, I signed a release of information form allowing her to disclose my diagnosis to your email address captain.cru…@eudoramail.com. She will email you with the results of the battery of neuropsychological testing I went through at _____ hospital, where I was admitted on a 72-hour psychiatric hold, among which was the Y-BOCS (Yale-Brown Obsessive Compulsive Scale), a newer version. I scored a ZERO on that test, which means I don’t have OCD. Would you like more details? (I’m serious about this!) Remember, my other posts detailing OCD symptoms are fake. I’m still using sumatriptan to induce artificial symptoms. Would you like her email address?

PLEASE SEND OR POST ME THE EMAIL ADDRESS. THANK YOU

Would you like the email address of 5 people WHO KNOW ME IN PERSON (1, a psychiatric nurse) who can tell you that I don’t have OCD and that I’m

really a

grad student? Would you like more details? Would you like more proof?

PLEASE SEND OR POST ME THE CONTACT DETAILS. THANK YOU.

Response:

There will be no info coming from ‘Dr. Pernithicot’. Even the mormon genealogy site has no record of that family name. – Hide quoted text — Show quoted text -

Greg, you did not (below) promise to send your evidence as anonymous information to the newsgroup. Could you please rpovide the information you promised please. Thank you. Captain Crunch ——————- On Aug 27, "Gregory" <gcdrak…@aol.com wrote in message "Why this world makes no FUCKING sense": 1. I have a FRIEND who is a doctor who encouraged me to undergo a psychiatric examination. Her name is Dr. Kenna Pernethicot. Last Wednesday, I signed a release of information form allowing her to disclose my diagnosis to your email address captain.cru…@eudoramail.com. She will email you with the results of the battery of neuropsychological testing I went through at _____ hospital, where I was admitted on a 72-hour psychiatric hold, among which was the Y-BOCS (Yale-Brown Obsessive Compulsive Scale), a newer version. I scored a ZERO on that test, which means I don’t have OCD. Would you like more details? (I’m serious about this!) Remember, my other posts detailing OCD symptoms are fake. I’m still using sumatriptan to induce artificial symptoms. Would you like her email address? PLEASE SEND OR POST ME THE EMAIL ADDRESS. THANK YOU Would you like the email address of 5 people WHO KNOW ME IN PERSON (1, a psychiatric nurse) who can tell you that I don’t have OCD and that I’m really a grad student? Would you like more details? Would you like more proof? PLEASE SEND OR POST ME THE CONTACT DETAILS. THANK YOU.

Response:

Or Pernethicot!

Response:

"Ichydog" <ichy…@aol.com

wrote: Or Pernethicot!

Ichydog, I don’t think we are going to be very surprised at what you have found out!

Response:

Lisa, I find it amusing that you would scour an ancient site in order to prove that my doctor is fake and therefore I can’t prove to the Cap’n that I don’t have OCD. However, he has shown in some recent posts that he already *knows* I don’t have OCD, therefore it is no longer my responsibility to obtain the proof. Also, he NEVER informed YOU that he changed his mind so suddenly – guess he thought I should squirm first? <VBG

See the Cap’n’s new *diagnoses* below: He wrote:

" And so you have Pure-O obsessions in the way you have presented yourself here: as being obsessed with OCD even though you do not have it. " " Your obsession is not to do with you interest in undertaking medical work (as it is in the case of practising OCD doctors) but you go so far as to try to fake OCD symptoms. " " My worry is that at some point Greg is going to go and interact with someone who does have OCD. That could be quite a downward slide for the OCD sufferer. I fear for them. " " His desire to emulate OCD or to pretend to do so is particularly disturbing. What sort of person wants to pretend to be mentally ill (unless it is someone before the courts who needs to use his mental condition as part of his defense)? " Uh do you still need proof? I don’t think so… Greg "Ichydog" <Ichy…@aol.com

wrote in message

<20010904145548.26264.00004…@mb-fy.aol.com

– Hide quoted text — Show quoted text ->There will be no info coming from ‘Dr. Pernithicot’. Even the mormon >genealogy >site has no record of that family name. >>Greg, you did not (below) promise to send your evidence as anonymous >>information to the newsgroup. >>Could you please rpovide the information you promised please. Thank you. >>Captain Crunch >>——————- >>On Aug 27, "Gregory" <gcdrak…@aol.com

wrote in message

>>"Why this world makes no FUCKING sense": >>> 1. I have a FRIEND who is a doctor who encouraged me to >>> undergo a psychiatric > examination. Her name is Dr. Kenna >>> Pernethicot. Last Wednesday, I signed a > release of information >>> form allowing her to disclose my diagnosis to your email >>> address captain.cru…@eudoramail.com. She will email you >>> with the results of > the battery of neuropsychological testing I went >>> through at _____ hospital, where I was admitted on a 72-hour >>> psychiatric hold, among which was the Y-BOCS >>> (Yale-Brown Obsessive Compulsive Scale), a newer version. >>> I scored a ZERO on that test, which means I don’t have OCD. >>> Would you like more details? (I’m serious about this!) Remember, >>> my other posts detailing OCD symptoms are fake. I’m still using >>> sumatriptan to induce artificial symptoms. >>> Would you like her email address? >>PLEASE SEND OR POST ME THE EMAIL ADDRESS. THANK YOU >>> Would you like the email address of 5 people WHO KNOW ME IN PERSON (1, a >>> psychiatric nurse) who can tell you that I don’t have OCD and that I’m >>really a >>> grad student? >>> Would you like more details? >>> Would you like more proof? >>PLEASE SEND OR POST ME THE CONTACT DETAILS. THANK YOU.

Response:

- Hide quoted text — Show quoted text -"Gregory" <gcdrak…@aol.com

wrote in message: Lisa, I find it amusing that you would scour an ancient site in order to prove

that

my doctor is fake and therefore I can’t prove to the Cap’n that I don’t

have

OCD. However, he has shown in some recent posts that he already *knows* I don’t have OCD, therefore it is no longer my responsibility to obtain the proof. Also, he NEVER informed YOU that he changed his mind so suddenly –

guess

he thought I should squirm first? <VBG See the Cap’n’s new *diagnoses* below: He wrote: " And so you have Pure-O obsessions in the way you have presented yourself here: as being obsessed with OCD even though you do not have it. "

The part here which says "you do not have it" is me inidicating what your own belief is. I can spell it out for you: you are obsessed with OCD even though you claim not to have any trace of it.

" Your obsession is not to do with you interest in undertaking medical work

(as

it is in the case of practising OCD doctors) but you go so far as to try to fake OCD symptoms. "

Let me explain once again: Your OCD is manifest in you trying to fake symptoms of a psychiatric illness (in this case OCD).

" My worry is that at some point Greg is going to go and interact with

someone

who does have OCD. That could be quite a downward slide for the OCD sufferer. I fear for them. "

Let me explain yet again to you (from your lack of comprehension one would never belive that you had tried to study creative English writing): If someone has clinically-troubling OCD and you turn up to them with your own illness which contains obsessive views about "helping OCDers", then I would be very worried for that other person.

" His desire to emulate OCD or to pretend to do so is particularly disturbing. What sort of person wants to pretend to be mentally ill

(unless

it is someone before the courts who needs to use his mental condition as

part

of his defense)? "

Oh dear, Greg. Do I really need to spell all this out for you. I asked "what sort of person?" rhetorically and I had hoped that the answer was self-evident: the sort of person is someone who is obsessed. ——– So please do not try to distort my words in your quotations. The fact is that you believe you do not have a trace of OCD and the truth is that you do have some of it. Another truth is that your claimed doc is a fake and is unable to sustain your (highly dysfunctional) attempts to prove conclusively that you do not have OCD. Now, can you please send the information you offered to email me? Thank you. Captain.

Response:

Lisa, MY PSYCH NURSE’S EMAIL ADDRESS: Kenna is a great nurse. She has all the info you need. She _is_ very busy so please keep your questions short. kpernethi…@planetaccess.com Greg

Response:

Yep, she’s busy posting here under the name "Gregory". I guess she just happened to open her e-mail account. For a nurse or doctor to legally give out any information, you have to sign a waiver for each person that is receiving this info. A dr., I mean, nurse or whatever she is now, can’t just give out patient info over e-mail. The federal govermant passed a law 2 years against this. It seems patient data was being intercepted. You may or may not have OCD, but you are definitely a compulsive liar. DM "Gregory" <gcdrak…@aol.com

wrote in message

news:20010909030822.04061.00000578@mb-cu.aol.com… – Hide quoted text — Show quoted text -

Lisa, MY PSYCH NURSE’S EMAIL ADDRESS: Kenna is a great nurse. She has all the info you need. She _is_ very busy

so

please keep your questions short. kpernethi…@planetaccess.com Greg

Response:

Gregory blathered a while back:

1. I have a FRIEND who is a doctor who encouraged me to undergo a

psychiatric

examination. Her name is Dr. Kenna Pernethicot. Last Wednesday, I signed

a

release of information form allowing her to disclose my diagnosis to your

email

address….

More recently Gregory changed his story:

MY PSYCH NURSE’S EMAIL ADDRESS: Kenna is a great nurse. She has all the info you need. She _is_ very busy so please keep your questions short. kpernethi…@planetaccess.com Greg

Lisa ~just taking a minute to shoot some goldfish

Response:

Greg, you said in your previous posting that you were going to get her to contact me. Can you ask her to contact me? Thank you. Captain Crunch ———— On 27 Aug, Greg wrote:

1. I have a FRIEND who is a doctor who encouraged me to undergo a psychiatric examination. Her name is Dr. Kenna Pernethicot. Last Wednesday, I signed a release of information form allowing her to disclose my diagnosis to your email address captain.cru…@eudoramail.com. She will email you with the results of the battery of neuropsychological testing I went through at _____ hospital, where I was admitted on a 72-hour psychiatric hold, among which was the Y-BOCS (Yale-Brown Obsessive Compulsive Scale), a newer version.

————— – Hide quoted text — Show quoted text -"Gregory" <gcdrak…@aol.com

wrote: MY PSYCH NURSE’S EMAIL ADDRESS: Kenna is a great nurse. She has all the info you need. She _is_ very busy

so

please keep your questions short. kpernethi…@planetaccess.com

Response:

I have to agree with DM here, no nurse or doctor is going to bother answering e-mails from a bunch of OCD patients wanting "proof" about another patient. Not ethical, besides most are too busy to be dealing with this sort of nonsense. Ida "DigitalMonk" <yz…@austin.rr.com

wrote in message

news:UvIm7.237006$g_3.50285058@typhoon.austin.rr.com… – Hide quoted text — Show quoted text -

Yep, she’s busy posting here under the name "Gregory". I guess she just happened to open her e-mail account. For a nurse or doctor to legally

give

out any information, you have to sign a waiver for each person that is receiving this info. A dr., I mean, nurse or whatever she is now, can’t just give out patient info over e-mail. The federal govermant passed a

law > 2 years against this. It seems patient data was being intercepted. > You may or may not have OCD, but you are definitely a compulsive liar. > DM > "Gregory" <gcdrak…@aol.com

wrote in message

> news:20010909030822.04061.00000578@mb-cu.aol.com… > > Lisa, > > MY PSYCH NURSE’S EMAIL ADDRESS: > > Kenna is a great nurse. She has all the info you need. She _is_ very busy

so please keep your questions short. kpernethi…@planetaccess.com Greg

Response:

On Sun, 9 Sep 2001 09:33:04 -0400, "Ida Kern" <clooney…@REMOVETHISmindspring.com

wrote: I have to agree with DM here, no nurse or doctor is going to bother answering e-mails from a bunch of OCD patients wanting "proof" about another patient. Not ethical, besides most are too busy to be dealing with this sort of nonsense.

Besides, isn’t wrong to give out your doc’s email address like that? It is for some pdocs, you could be violating another code of ethics here Greg. Besides, anything we send would be moot anyway, confidentiality agreements and all. Some of them aren’t even allowed to admit to us that yes you are a patient or that no you are not. They can’t tell us anything! -Heron I’m not a doctor, just a fellow patient. HTHY! http://web.infoave.net/~rkanderson/aimeitis.htm "I dreamed that the world was crumbling down we sat on my back porch and watched it And in my head I heard the sound like 15 strangers dancing." – Matchbox 20, "Busted"

Response:

Well observed, Ichydog. Good point. I think we all know that Greg is lying through his teeth. The most amazing thing is that Greg actually seems to believe that he can dupe us with this hoax. The Captain "Ichydog" <ichy…@aol.com

wrote in message

news:20010909084055.15489.00000809@mb-fy.aol.com… – Hide quoted text — Show quoted text -

Gregory blathered a while back: 1. I have a FRIEND who is a doctor who encouraged me to undergo a psychiatric examination. Her name is Dr. Kenna Pernethicot. Last Wednesday, I

signed

a release of information form allowing her to disclose my diagnosis to

your

email address…. More recently Gregory changed his story: MY PSYCH NURSE’S EMAIL ADDRESS: Kenna is a great nurse. She has all the info you need. She _is_ very

busy

so please keep your questions short. kpernethi…@planetaccess.com Greg Lisa ~just taking a minute to shoot some goldfish

Response:

Category Categories: Seroquel Patient Info | No Comments »

testosterone replacement

Question:

I am contemplating testosterone replacement primarily for low libido. I am always concerned about adding hormones of any kind. I would like to hear from those of you who may have done research or have tried or are trying the replacement, about whether the risks are worth the benefits. TIA Mallery

Response:

TITLE: Short-term effects of topical testosterone in vulvar lichen sclerosus. (NB: This is a skin condition in the genital area.) AUTHORS: Joura EA; Zeisler H; Bancher-Todesca D; Sator MO; Schneider B; Gitsch G AUTHOR AFFILIATION: Department of Gynecology and Obstetrics, University of Vienna Medical School-AKH, Austria. SOURCE: Obstet Gynecol 1997 Feb;89(2):297-9 CITATION IDS: PMID: 9015039 UI: 97167350 ABSTRACT: OBJECTIVE: To evaluate the systemic and therapeutic effect of topical testosterone treatment in vulvar lichen sclerosus. METHODS: This prospective clinical, single-arm study included ten postmenopausal women with vulvar lichen sclerosus. Testosterone propionate (0.04 g daily) was administered topically for 4 weeks. Serum androgens (testosterone, free testosterone, androstenedione, dehydroepiandrosterone sulfate) were determined before and after 4 weeks of treatment, and vulvodynia was evaluated by a horizontal visual analogue scale. RESULTS: Serum levels of total testosterone increased in all patients (P < .01) and exceeded normal range in eight of ten women. Vulvodynia improved in nine of ten patients (paired t test: P < .01). Four of ten patients showed clinical signs of hyperandrogenism (enlargement of the clitoris, alterations of the voice, increase in libido) after 4 weeks of treatment. The only patient without subjective improvement had elevated basal serum androgen levels and showed clinical signs of hyperandrogenism before therapy. CONCLUSION: Topical testosterone is effective in normoandrogenic women with lichen sclerosus. Androgen status should be evaluated before treatment, and dosage should be individualized to avoid virilization and metabolic side effects. Because there is a marked systemic effect, clinical controls and a follow-up with evaluation of serum testosterone levels are recommended. Other steroids should be included in therapeutic decisions. MAIN MESH HEADINGS: Lichen Sclerosus et Atrophicus/*drug therapy Testosterone/*administration & dosage Vulvar Diseases/*drug therapy ADDITIONAL MESH HEADINGS: Administration, Topical Aged Aged, 80 and over Female Human Middle Age Prospective Studies Time Factors 1997/02 1997/01 00:00 PUBLICATION TYPES: CLINICAL TRIAL JOURNAL ARTICLE CAS REGISTRY NUMBERS: 57-85-2 (Testosterone) LANGUAGES: Eng ———————————————————————— ——– In article <8tantd$ji…@nnrp1.deja.com

,

– Hide quoted text — Show quoted text - asd5…@altavista.com wrote: > In article <svhjh339g9h…@corp.supernews.com

,

> "Ken Edelston" <ke…@acadia.net> wrote: > > I am contemplating testosterone replacement primarily for low > libido. I am > > always concerned about adding hormones of any kind. I would like to > hear > > from those of you who may have done research or have tried or are > trying the > > replacement, about whether the risks are worth the benefits. TIA > Mallery > You can do research on this controversial topic on Medline at the > http://www.nih.gov website. Just type in the key-words "libido" > and "testosterone" and choose women and midlife age ranges to see what

will turn up. I posted few days ago a study that was for a genital skin condition that was treated with topical testosterone and they claimed 4 out of the 10 women had increased libido along with other masculization effect. 6 out of 10 did not have this reaction to the drug treatment. The topical testosterone was applied for about 4-6 weeks daily and there was no placebo control for this study …as I recall. It is important when looking at libido enhancement studies to see what factors they look for when they reach a conclusion about a drug’s effect. Sometimes all it is is having more erotic thoughts, or sometimes it is increased numbers of sexual contact and sometimes it

increased orga*m. So be sure to learn what they call "success" before you decide that a study has some answers. There is really not enough known in this area for any predictible recommendation. It would be in the news by now and repeated in other studies if there were predictible success I am sure. I hope you will consider some non-drug therapeutic counseling in

this

specific area as well as the issues are so complex. Sometimes all that is needed is changing the "rules" and reconfiguring the expectations. We age. And it may not be just a woman’s issue at this time in our lives. Partners play an equal role in any successful intimate communication. (Stating the obvious, I know). I will see if I can pull up a few of the studies to repost here. But best if you poke around on your own. This is one more of these one-

size

does NOT fit all areas due to underlying causative factors, non-

medical

relationship issues and efficacy of drugs to treat something as

complex

as libido. Joan Sent via Deja.com http://www.deja.com/ Before you buy.

Sent via Deja.com http://www.deja.com/ Before you buy.

Response:

In article <svhjh339g9h…@corp.supernews.com

,

"Ken Edelston" <ke…@acadia.net

wrote: I am contemplating testosterone replacement primarily for low

libido. I am

always concerned about adding hormones of any kind. I would like to

hear

from those of you who may have done research or have tried or are

trying the

replacement, about whether the risks are worth the benefits. TIA

Mallery You can do research on this controversial topic on Medline at the http://www.nih.gov website. Just type in the key-words "libido" and "testosterone" and choose women and midlife age ranges to see what will turn up. I posted few days ago a study that was for a genital skin condition that was treated with topical testosterone and they claimed 4 out of the 10 women had increased libido along with other masculization effect. 6 out of 10 did not have this reaction to the drug treatment. The topical testosterone was applied for about 4-6 weeks daily and there was no placebo control for this study …as I recall. It is important when looking at libido enhancement studies to see what factors they look for when they reach a conclusion about a drug’s effect. Sometimes all it is is having more erotic thoughts, or sometimes it is increased numbers of sexual contact and sometimes it is increased orga*m. So be sure to learn what they call "success" before you decide that a study has some answers. There is really not enough known in this area for any predictible recommendation. It would be in the news by now and repeated in other studies if there were predictible success I am sure. I hope you will consider some non-drug therapeutic counseling in this specific area as well as the issues are so complex. Sometimes all that is needed is changing the "rules" and reconfiguring the expectations. We age. And it may not be just a woman’s issue at this time in our lives. Partners play an equal role in any successful intimate communication. (Stating the obvious, I know). I will see if I can pull up a few of the studies to repost here. But best if you poke around on your own. This is one more of these one-size does NOT fit all areas due to underlying causative factors, non-medical relationship issues and efficacy of drugs to treat something as complex as libido. Joan Sent via Deja.com http://www.deja.com/ Before you buy.

Response:

My libido had always been pretty low – but then I had testosterone prescribed as part of a set of pills the doc was giving me to try to jump-start me into having periods again – had a D&C and didn’t have periods for almost a year after that. It gave me *real insight* into what it feels like to have a serious libido – I was *so* horny – unfortunately I didn’t have a significant other at the time and was much too puritanical then to actually *do* anything about just getting laid – I *was* looking for love but didn’t find anybody I even really liked in that period. I don’t know what the risks are – but the potential benefit is high. Lust is *very* pleasurable – even if you don’t act on it. MsKitty, who is now daydreaming away

Response:

MsKitty834 wrote:

My libido had always been pretty low – but then I had testosterone prescribed as part of a set of pills the doc was giving me to try to jump-start me into having periods again – had a D&C and didn’t have periods for almost a year after that. It gave me *real insight* into what it feels like to have a serious libido – I was *so* horny – unfortunately I didn’t have a significant other at the time and was much too puritanical then to actually *do* anything about just getting laid – I *was* looking for love but didn’t find anybody I even really liked in that period. I don’t know what the risks are – but the potential benefit is high.

The risks – some of which are substantial – can be read at http://rxlist.com search for "testosterone" and you’ll get several results, representing different forms of this androgen. The FAQ link on the right only gets you to the patient info choose the link under "Generic name" to get to the full physician information, including side effects, drug interactions, warnings and contraindications. The less serious side effects (in women) fall under the general category of "virilization" – things like growth of facial hair, deepening of the voice and development of male pattern baldness; if the drug is not stopped when these effects are first noted, they may be irreversible. Potentially more serious effects include edema, increased serum cholesterol and liver damage.

Lust is *very* pleasurable – even if you don’t act on it.

Of course it is, but I’d want to make sure the pleasure was worth the potential pain. –Pat Kight kig…@peak.org

Response:

- Hide quoted text — Show quoted text -"Eva D. Struction" wrote:

Pat Kight <kig…@ucs.orst.edu wrote in message news:39FDF595.F8680A99@ucs.orst.edu… MsKitty834 wrote: My libido had always been pretty low – but then I had testosterone prescribed as part of a set of pills the doc was giving me to try to jump-start me into having periods again – had a D&C and didn’t have periods for almost a year after that. It gave me *real insight* into what it feels like to have a serious libido – I was *so* horny – unfortunately I didn’t have a significant other at the time and was much too puritanical then to actually *do* anything about just getting laid – I *was* looking for love but didn’t find anybody I even really liked in that period. I don’t know what the risks are – but the potential benefit is high. The risks – some of which are substantial – can be read at http://rxlist.com search for "testosterone" and you’ll get several results, representing different forms of this androgen……… ————— Oh, did she mean the risks of *testosterone*? I thought she meant the risks of having sex with an insignificant other!

I suspect most of us are well aware of *those* risks! –Pat Kight kig…@peak.org

Response:

From: "Eva D. Struction" EvaDSt…@att.net Date: 10/30/00 3:02 PM Pacific Standard Time Oh, did she mean the risks of *testosterone*? I thought she meant the risks of having sex with an insignificant other!

LOL….never heard that term…good one! Sharon..*.eat your fruits and veggies and exercise daily*

Response:

Eva writes:

sex with an insignificant other!

*splork* Regards, Laura Blanchard lblanch…@aol.com http://members.aol.com/lblanch000/ http://menopause.tripod.com (Land o’Links — click the cormorant for Menopause & Beyond)

Response:

Laura Blanchard <lblanch…@aol.com

wrote in message

news:20001030210439.10411.00000629@ng-fn1.aol.com…

Eva writes: sex with an insignificant other! *splork* Regards, Laura Blanchard

Question: Was it a "one-night stand"? Answer: It was an insignificant encounter. Cathy — "Decades gliding by like Indians, time is cheap." Paul Simon ("Ren

Category Categories: Seroquel Patient Info | No Comments »

Anyone try Aygestin?

Question:

I’m a 47 year old peri-menopausal woman who’s had almost continuous bleeding since January. Actually the weird bleeding episodes started three years ago. Had a work up done and the dr. feels the problem is basicly hormonal, though I do have fibroids. I’ve just started on a progestin called Aygestin. Has anyone else been on this drug ? I’ve heard it could raise blood pressure and blood sugar. I already have blood pressure problems and on medication for it. The other question I have is how long does it take for FSH levels to reach menopause levels if you’re still in low levels? My FSH is only 6.5 and I’m afraid I’ll not reach menopause till I’m 56, thats a long time to cope with abnormal bleeding. Any imput on this? Mona

Response:

Mona writes:

I’m a 47 year old peri-menopausal woman who’s had almost continuous bleeding since January. Actually the weird bleeding episodes started three years ago.

Hateful, isn’t it? I had a siege of bleeding and am our self-appointed Queen of Clots, although I sometimes think the title more properly belongs to Pam Dyer-Bennet. However, my claim to fame is that I accumulated my bleeding tips and hints and parked them at http://members.aol.com/vlhb002/ I don’t know anything about Aygestin, although I took continuous Provera for a year. The patient info sheet I got with it says that it may slightly increase my risk for a whole collection of things I’d rather avoid, including high blood pressure, but it didn’t raise mine any. Was your doctor aware of your blood pressure problems when s/he prescribed it? Regards, Laura lblanch…@aol.com

Response:

In article <19990320131103.18778.00000…@ng-da1.aol.com

, Mona1999

<mona1…@aol.com

writes I’m a 47 year old peri-menopausal woman who’s had almost continuous bleeding since January. Actually the weird bleeding episodes started three years ago. Had a work up done and the dr. feels the problem is basicly hormonal, though I do have fibroids. I’ve just started on a progestin called Aygestin. Has anyone else been on this drug ? I’ve heard it could raise blood pressure and blood sugar. I already have blood pressure problems and on medication for it.

Does whoever prescribed Aygestin know this? I haven’t heard it as a side-effect of the more common Provera.

The other question I have is how long does it take for FSH levels to reach menopause levels if you’re still in low levels? My FSH is only 6.5 and I’m afraid I’ll not reach menopause till I’m 56, thats a long time to cope with abnormal bleeding. Any imput on this?

No idea, I take no notice of FSH levels As an ex-bleeder <touch wood

all I can say is that it didn’t last all

that long once I commenced HRT..about 6 months to get back to acceptable flow. But I don’t have fibroids. I cut down on dosage as soon as I could and quit all medication at Christmas. So far, so good, in fact I’ve just been a week late for the first time in donkeys’ years. Hopefully someone else can give you more input about Aygestin and share some experience of bleeding with added fibroids. Joanna

Response:

lblanch…@aol.com (Lblanch000) writes:

Mona writes: Hateful, isn’t it? I had a siege of bleeding and am our self-appointed Queen of Clots, although I sometimes think the title more properly belongs to Pam Dyer-Bennet.

Nah. I might be the Chief Bleeder (probably not, though), but while clots were definitely a part of it, they were not quite at the royal level.

However, my claim to fame is that I accumulated my bleeding tips and hints and parked them at http://members.aol.com/vlhb002/

And very much appreciated it is, too. — "Moreover, fantasticality does a good deal better than sham psychology." – Virginia Woolf ———————————————————– Pamela Dean Dyer-Bennet p…@ddb.com

Response:

Category Categories: Seroquel Patient Info | No Comments »

Weight gain inevitable?

Question:

On 13 Jun 1998 09:09:43 GMT, foggyt…@aol.com (FoggyTown) wrote: – Hide quoted text — Show quoted text -

And when things don’t make sense like "why is she on a drug intended for women who are a full year past menopause" suggest that your lady ask her doctor why he/she would have prescribed such a thing. Keep asking until the answers make sense. Easier said than done, I’m afraid. In England doctors have the advantage of being treated almost reverentially by their patients. The old "I’m the doctor and I know what’s good for you." crap goes a long way over here. Question his diagnosis or treatment and you either get a patronizing response or, if you’re really vopcal, told to see some other MD. The malpractice bug hasn’t bitten very much over here so MD’s don’t feel the same pressure to get it right. Also, when you get a prescription filled, you don’t usually get the little manufacturer’s information insert because the pills are dumped into a generic bottle and all you get is the name of the drug, dosage size and when to take it. And 99% of people wouldn’t even think of asking for it. My SO didn’t.

I haven’t noticed this attitude from British doctors in 20 years. Perhaps the one your SO is visiting is over 60 and of the old school. If she is attending a typical health centre where there are several GPs it may behove her to make an appointment to see a different doctor, perhaps a woman. I really don’t understand how HRT tablets could have been dumped in a bottle. Yes, this happens with some generic drugs such as penicillin. HRT comes in blister packs, boxed, and with the manufacturer’s leaflet, at least this has applied to all of the makes I have seen. Women are usually given lots of helpful leaflets about the menopause when they first go along with the problem. Granted these are aimed at the average person who may not be very well educated. My eldest son is soon to qualify as a doctor. I have several friends in the profession. They all strive to get ir right, not because of malpractice suits, but because they take they are responsible people who take their oath seriously. I think your remark was unfair. However, GPs are not experts in all areas of medicine. Al older doctor would have been trained before the days of HRT. He may not have had time or inclination to keep abreast of the issues. Obviously if a patient presents with a serious gynaecological problem, she will be referred to a specialist. This would not apply in the case of hot flushes and a couple of missed periods. Joanna

Response:

In article <3583BD01.5DCDC…@erols.com

, Terri <vl-hb…@erols.com wrote:

(snip)

Dr. Susan Love’s Hormone Book: Making Informed Choices About Menopause "The Menopause Industry" by Sandra Coney And: Better Bones; Better Bodies" by Dr. Susan Brown Also, if you can tell me how to get those books in England I’ll be happy to get them. Try your local library.

If you are comfortable transacting business over the Internet, try www.amazon.com They have both books, and they ship internationally. –Pat Kight kig…@peak.org

Response:

Susan Love’s book is published in England as _The Hormone Dilemma_ and is available in paperback for L8.99 online from Blackwell’s at http://www.blackwell.co.uk/ Sandra Coney’s book is also available at the same price from the same source. Blackwell’s, for anyone’s info, is a very well-known academic bookseller based in Oxford. For years, U.S. scholars needing books from England had open accounts at Blackwell’s. Regards, vlhb…@aol.com

Response:

Lianne wrote:

The only solution I’ve figured out for myself is to forget about weight and emphasize maintaining good health.

This is excellent advice for anyone in the world except a bride-to-be. Still, it would be good if Foggy’s lady could take it to heart. The less she worries about her weight, the happier she’s likely to be — and we all know the positive correlation between level of happiness and level of libido for many of us. Regards, vlhb…@aol.com

Response:

This is excellent advice for anyone in the world except a bride-to-be. Still, it would be good if Foggy’s lady could take it to heart. The less she worries about her weight, the happier she’s likely to be — and we all know the positive correlation between level of happiness and level of libido for many of us. Regards, vlhb…@aol.com

Anyone out there is welcome to try to convince her. She’s always had a thing about her weight, basically the fact that she has a podgy tummy. It probably isn’t fat so much as it is the fact that her uterus is reversed (?) and sits inside her funny. That and poor muscle tone. But the more I’ve read and the more she and I discuss it the more I come to feel that her loss of libido may actually be more stress-related than it is hormonal. I think it may be a late onset guilt-trip involving her kids, her soon-to-be-ex hubby, etc. Perhaps she can’t at the moment bring herself to "validate" what she feels she’s done to them. I don’t know – just a hunch. On another matter, if Prempro is so bad why hasn’t it been addressed by the alleged watchdogs of everyone’s health: FDA, AMA, etc., etc.? Aren’t there any "independent" research bodies (as opposed to individuals) working with menopause? FoggyTown

Response:

On Sun, 14 Jun 1998 09:24:01 -0400, "fiona" <fiona-medai…@erols.com

wrote:

FoggyTown wrote in message Also, if you can tell me how to get those books in England I’ll be happy to get them.

…

If you can’t get such books locally, these sources should be able to help. The Internet seems to have made the world available to the most isolated places (although I never before thought of England as being isolated).

When possible it would be helpful if we’d give the ISBN for books we recommend. I know that it’s easier for people in other countries to find them if they have the ISBN. I believe that the booklist at Tishy’s web page has the ISBNs for all of them. (If not, we should send them to her so she can update her list.) Here’s the link to the booklist: http://www.oxford.net/~tishy/booktabl.html Lianne To reply by e-mail, remove "seesig." from my address. No spam, no announcements, no commercial e-mail, no mailing lists.

Response:

- Hide quoted text — Show quoted text -

FoggyTown wrote in message <1998061411553201.HAA13…@ladder03.news.aol.com… <<snip Dr. Susan Love’s Hormone Book: Making Informed Choices About Menopause "The Menopause Industry" by Sandra Coney And: Better Bones; Better Bodies" by Dr. Susan Brown <<snip Also, if you can tell me how to get those books in England I’ll be happy to get them. Sandra Coney is an Australian author. Doesn’t England allow you to buy books from Australia or the US? Have you visited the web site www.Amazon.com ? Or http://www.barnesandnoble.com/index.asp?userid=5QKZ11BTVE? Both books are easily available. If you can’t get such books locally, these sources should be able to help. The Internet seems to have made the world available to the most isolated places (although I never before thought of England as being isolated). fiona

Go to www.amazon.com. Its the largest bookstore in the world. They mail within 24 hours on most books and within 2-3 days on others. I use them extensively, never had a problem giving them my credit card. My first book was delivered to my door in less than 24 hours of odering. Amazon is in the US and it would take longer to get to GB, but I am sure it would be an easy way to get a book you can not find locally. Just thought this might help. Anee:) "YOU!!!!! Out of the gene pool!!!!"

Response:

On 12 Jun 1998 19:25:19 GMT, foggyt…@aol.com (FoggyTown) wrote:

I think what concerns her and I most is the fact that she’s gaining weight even though she is actually eating less – and she’s not eating empty calories either.

This is so typical of perimenopause. We don’t know exactly what the mechanism that causes this is, but it seems to be hormonal. The only solution I’ve figured out for myself is to forget about weight and emphasize maintaining good health. I’ve cut out the empty calories almost completely, and eat a lot of vegetables (particularly green leafy ones), and whole grain foods. I have an ongoing battle with my natural inclination towards sedentariness, but believe in (and try to do) excercise for the health value of it, in spite of the fact that it doesn’t cause weight loss at this time in my life. Lianne To reply by e-mail, remove "seesig." from my address. No spam, no announcements, no commercial e-mail, no mailing lists.

Response:

- Hide quoted text — Show quoted text -ti…@cheerful.com wrote:

On Sun, 14 Jun 1998 09:15:41 -0400, "fiona" <fiona-medai…@erols.com wrote: If any American women aren’t given their patient info slips with their medication, they should feel free to ask for this. When I, a Canadian, was first prescribed Didronel I was given a 2 page print out with cautions and warnings highlighted in yellow. The pharmacist also read them to me and made sure I understood them. Frankly I wondered if I really wanted to take this stuff but still being in my taking-ads-at-face-value stage, I did. Later I wished I hadn’t but I couldn’t say I hadn’t been warned. Pat (Crone) http://www.oxford.net/~tishy includes unoffical asm website newbies entrance, men’s entrance, "soapbox", physical and nonphysical aspects of meno, how to evaluate info, links to other meno and medical sites, Men-o-Pause story., direct link to dejanews (current asm and filter)

The PDR (Phsician’s Desk Reference) in the US, the CPS (Compendium of Pharmaceutical Suppliers) in Canada, and similar books by other official names in other countries list all prescription drugs sold in that country. They are updated every year and addenda are published every three months. Every public library in Canada and the US has the latest versions of these books. So if you aren’t happy with what the pharmacist tells you or you want more info go to the library. If you want to discuss it with your health care provider just photocopy the relevant pages and mark the areas you have questions about. No one needs to be a helpless taker of pills they don’t understand or they aren’t comfortable with. Terri

Response:

FoggyTown wrote in message

<1998061411553201.HAA13…@ladder03.news.aol.com

…

<<snip

Dr. Susan Love’s Hormone Book: Making Informed Choices About Menopause "The Menopause Industry" by Sandra Coney And: Better Bones; Better Bodies" by Dr. Susan Brown

<<snip

Also, if you can tell me how to get those books in England I’ll be happy to

get

them.

Sandra Coney is an Australian author. Doesn’t England allow you to buy books from Australia or the US? Have you visited the web site www.Amazon.com ? Or http://www.barnesandnoble.com/index.asp?userid=5QKZ11BTVE? Both books are easily available. If you can’t get such books locally, these sources should be able to help. The Internet seems to have made the world available to the most isolated places (although I never before thought of England as being isolated). fiona

Response:

How about if you two get some of the good menopause books and stop jerking each other (and us) around with all of this drug and meno misinformation and misunderstanding? I’ll say it again: Dr. Susan Love’s Hormone Book: Making Informed Choices About Menopause "The Menopause Industry" by Sandra Coney And: Better Bones; Better Bodies" by Dr. Susan Brown shelly

Sorry. Wasn’t aware that arriving at asm in need of others’views was considered "jerking" people around. Guess I’ll have to watch that in future. Shame on me! What could I have been thinking? Also, if you can tell me how to get those books in England I’ll be happy to get them.

Response:

- Hide quoted text — Show quoted text -FoggyTown wrote:

How about if you two get some of the good menopause books and stop jerking each other (and us) around with all of this drug and meno misinformation and misunderstanding? I’ll say it again: Dr. Susan Love’s Hormone Book: Making Informed Choices About Menopause "The Menopause Industry" by Sandra Coney And: Better Bones; Better Bodies" by Dr. Susan Brown shelly Sorry. Wasn’t aware that arriving at asm in need of others’views was considered "jerking" people around. Guess I’ll have to watch that in future. Shame on me! What could I have been thinking? Also, if you can tell me how to get those books in England I’ll be happy to get them.

Try your local library. Terri

Response:

In the US any one can go to a pharmacy and ask the pharmacist for and obtain the patient info slip for a medication. I have done this. Many of the pharmacies where I live now have a conference area where one can request to talk with the pharmacist. I wanted the insert for Premarin to refer to for this group. I take Premarin and didn’t have the official slip that comes with the medication from W-A. Many pharmacists now have their own information slips which are included with the pills and not the official one. I went to the window there and asked if I might have the official one and was given not only the patient info, but also the physician’s prescribing info which comes from W-A. If any American women aren’t given their patient info slips with their medication, they should feel free to ask for this. fiona – Hide quoted text — Show quoted text -Sthurston wrote in message <358570cc.4094…@news.direct.ca

… I cannot recall ever getting a manufacturer’s insert with any medication for myself or for any clients, who are on massive amounts of medications for a variety of disorders. I purchased a CPS because I felt I could not rely on the pharmacy providing this infor. Sheryl

Response:

On 13 Jun 1998 09:09:43 GMT, foggyt…@aol.com (FoggyTown) wrote:

Also, when you get a prescription filled, you don’t usually get the little manufacturer’s information insert because the pills are dumped into a generic bottle and all you get is the name of the drug, dosage size and when to take it. And 99% of people wouldn’t even think of asking for it. My SO didn’t. FoggyTown

I cannot recall ever getting a manufacturer’s insert with any medication for myself or for any clients, who are on massive amounts of medications for a variety of disorders. I purchased a CPS because I felt I could not rely on the pharmacy providing this infor. Sheryl

Response:

In article <1998061215453600.LAA01…@ladder03.news.aol.com

,

foggyt…@aol.com (FoggyTown) wrote:

[snip] The question is: is weight gain one possible side-effect of HRT or menopause or both? If it does occur, can dieting accomplish anything or is menopause-related weight gain unrelated to caloric intake? Is it perhaps a symptom of early menopause which levels off or recedes later on?

Weight gain or loss is a possible side effect of HRT. Lots of people gain weight in perimenopause (the time, which can be as long as ten years, of hormonal changes leading up to actual menopause). I was having anovulatory periods, which meant I had plenty of estrogen but no progesterone because my cycle wasn’t working. I gained a fair amount of weight on my own estrogen. When I took progesterone alone to correct the situation, I lost weight. I don’t think standard dieting can accomplish anything, and in fact I don’t think it ever can; I’m an expert in failed diets. What your SO might want to concentrate on is eating healthily — you know, fresh fruits and vegetables, whole grains as the main components of the diet, not leaving out the occasional indulgence if it’s comforting — and on getting some exercise. My weight, according to various doctors’ scales (I gave up weighing myself ten years ago and have never regretted it) didn’t change much when I got a great deal of exercise one year in perimenopause, but my clothing sizes changed. I snipped a brief discussion in your message about water retention, but that can also happen. The HRT is going to mask what’s going on in her body underneath, but one thing that can happen in perimenopause is lengthened times of PMS, and sometimes getting PMS for the first time. I thought for the past month that I had gained enough weight I should probably get some new bras and jeans, but it was just an ungodly long bout of PMS, including bloating, and now that I’m having one of the worst periods of my entire life (one’s body appears to forget how to do this, to work very hard at remembering, and then to become really, really intent on it; geez), everything fits again.

It’s a big concern to her (though not to me because I know our relationship

can

cope with a little extra poundage) and any advice or experiences from similarly-affected others would be appreciated.

If she can possibly stop worrying about the numbers on the scale and get some comfortable but beautiful clothes it will help a lot. The reason I only needed new bras and jeans, or thought I did, was that everything else I have is very loose and adjustable. Good luck. — Pamela Dean Dyer-Bennet p…@ddb.com —–== Posted via Deja News, The Leader in Internet Discussion ==—– http://www.dejanews.com/ Now offering spam-free web-based newsreading

Response:

On 13 Jun 1998, FoggyTown wrote:

Further: Apparently my partner’s hormone levels were drastically low and there were indications that osteoparosis was a concern as well. Supposedly her situation was advanced enough to warrant the use of a drug intended for wiomen a year past menopause. I now learn that her testosterone level was about 0 as well, although that isn’t being replaced at the moment. The premique is 0.625 conjugated estrogen and 5mg progesterone once daily. FoggyTown

Please read up on osteoporosis and its present marketing frenzy. It is critical you understand this condition in its proper context and not as a drug taking hook. Your girlfriend is taking the equivalent of Prempro which from what I have read here is one of the industries worst ever experiments on women. It has caused more awful reactions than any other drug reported. It does not ever pretend to be mimicing anything in the body. It was created as a convenience for -doctors- who found out that many women were throwing out the Provera part of HRT and just taking the estrogen part unopposed, which can easily lead to uterine cancers in a very high percentage of women. The MDs did not want to be sued for negligent patient management so the drug industry came up with this ungodly drug combination. Plus, are you aware that the reason they tried to test low-dose unopposed estrogen drugs on women is because they found the progesterone part of the HRT formula was -bad- for the bones? What is going on with this woman’s doctor? How about if you two get some of the good menopause books and stop jerking each other (and us) around with all of this drug and meno misinformation and misunderstanding? I’ll say it again: Dr. Susan Love’s Hormone Book: Making Informed Choices About Menopause "The Menopause Industry" by Sandra Coney And: Better Bones; Better Bodies" by Dr. Susan Brown shelly

Response:

Further: Apparently my partner’s hormone levels were drastically low and there were indications that osteoparosis was a concern as well. Supposedly her situation was advanced enough to warrant the use of a drug intended for wiomen a year past menopause. I now learn that her testosterone level was about 0 as well, although that isn’t being replaced at the moment. The premique is 0.625 conjugated estrogen and 5mg progesterone once daily. FoggyTown

Response:

FoggyTown wrote:

And when things don’t make sense like "why is she on a drug intended for women who are a full year past menopause" suggest that your lady ask her doctor why he/she would have prescribed such a thing. Keep asking until the answers make sense. Easier said than done, I’m afraid. In England doctors have the advantage of being treated almost reverentially by their patients. The old "I’m the doctor and I know what’s good for you." crap goes a long way over here. Question his diagnosis or treatment and you either get a patronizing response or, if you’re really vopcal, told to see some other MD.

In either case, it’s a good idea to do just that – see another doctor. Since the patient pays the bills the patient calls the shots. And that’s just as true in England where you have National Health Insurance as it is in Canada as it is in the US.

The malpractice bug hasn’t bitten very much over here so MD’s don’t feel the same pressure to get it right.

Most of them don’t know much about menopause. And I think it a little unfair to suggest that fear of being sued motivates them to "get it right." I think many are sincere enough in their desire to help. It’s their knowledge that’s so poor.

Also, when you get a prescription filled, you don’t usually get the little manufacturer’s information insert because the pills are dumped into a generic bottle and all you get is the name of the drug, dosage size and when to take it.

I don’t know what the laws are in England. I do know that in the US and in Canada there are patient information sheets mandated by government regulatory bodies which mandate that these be given out each time a prescription for that drug is filled. In any case you need to look things up in libraries, on the internet etc. Don’t be a passive consumer of health care and don’t let you SO be one either. The patient is in charge and makes the decisions. Terri – Hide quoted text — Show quoted text -

And 99% of people wouldn’t even think of asking for it. My SO didn’t. FoggyTown

Response:

And when things don’t make sense like "why is she on a drug intended for women who are a full year past menopause" suggest that your lady ask her doctor why he/she would have prescribed such a thing. Keep asking until the answers make sense.

Easier said than done, I’m afraid. In England doctors have the advantage of being treated almost reverentially by their patients. The old "I’m the doctor and I know what’s good for you." crap goes a long way over here. Question his diagnosis or treatment and you either get a patronizing response or, if you’re really vopcal, told to see some other MD. The malpractice bug hasn’t bitten very much over here so MD’s don’t feel the same pressure to get it right. Also, when you get a prescription filled, you don’t usually get the little manufacturer’s information insert because the pills are dumped into a generic bottle and all you get is the name of the drug, dosage size and when to take it. And 99% of people wouldn’t even think of asking for it. My SO didn’t. FoggyTown

Response:

On 12 Jun 1998 17:32:50 GMT, Karen Kay <ka…@wordwrite.com

wrote: Were her periods supposed to return? If she’s on a combination pill that she takes daily, she won’t be having period. If she’s not taking it daily, then two weeks is too soon to tell if her periods will return–the hormones probably reset her monthly clock.

(snip) Karen, I was on a combination of 2 pills a day of estrogen and progestin (don’t remember their names now) but I took 1 of each every day and I had periods every 2 weeks. This went on for about a year until another doc. changed the prescription. Karen Marshall

Response:

Unfortunately most of our info is N. American and drugs while similar (or even identical)often have different names. These two drugs sound very similar to Prempro ("no" period) and Premphase (cyclical with period).

What I don’t understand is how she has been prescribed a drug which, apparently, is designed for women who are "at least" one year POST menopausal. Maybe it is a multi-usage drug. FoggyTown

Response:

FoggyTown wrote:

Unfortunately most of our info is N. American and drugs while similar (or even identical)often have different names. These two drugs sound very similar to Prempro ("no" period) and Premphase (cyclical with period). What I don’t understand is how she has been prescribed a drug which, apparently, is designed for women who are "at least" one year POST menopausal. Maybe it is a multi-usage drug. FoggyTown

Welcome to the world of doctors using drugs for off-label use. This seems to be especially true of drugs prescribed for "menopause" or maybe it just seems that way to those of us on asm. If your lady is taking the British equivalent of prempro then she is on an unholy combination of hormones that creates an environment never duplicated naturally. What the effects of such a hormonal environment might be in a woman who is not yet menopausal is a big unknown. One half of the drug , the progestin part, has never been studied or approved for long term use in anything but hamsters. The use of the two drugs together on a continuous basis is very recent and no one knows what the long term effects might be. Keep on looking for information for yourself. And keep asking questions. And when things don’t make sense like "why is she on a drug intended for women who are a full year past menopause" suggest that your lady ask her doctor why he/she would have prescribed such a thing. Keep asking until the answers make sense. Terri

Response:

Further to earlier posting I found out a bit about premique on the net. "This gives period free HRT. For women at least one year menopausal." This doesn’t sound right at all. There’s another one called Premique Cycle. "A Conjugated Oestrogens & MPA – Monthly Bleed HRT. It has all the benefits of PPC with less side effects." But my SO says she’s taking Premique – nothing about Cycle. Frankly, this is a bit worrying. She has barely entered menopause let alone one year post menopausal. FoggyTown

Response:

Were her periods supposed to return? If she’s on a combination pill that she takes daily, she won’t be having period. If she’s not taking it daily, then two weeks is too soon to tell if her periods will return–the hormones probably reset her monthly clock.

She is taking the dosage daily.

Weight gain is normal and probably can’t be affected by diet or exercise levels until her hormones even out. (Which they may never do if she remains on HRT.) Weight gain could be related to her loss of libido, too, in that she may feel less attractive.

I think what concerns her and I most is the fact that she’s gaining weight even though she is actually eating less – and she’s not eating empty calories either. FoggyTown

Response:

Well, I’ll try again. I still think there are some in asm who have valuable knowledge to impart and I want to hear it. So here’s a specific question on a specific topic with (I think) relevant and necessary background provided. My SO is 46. She was sterized about 8 years ago. (No hysto, just the procedure that ties the tubes.) Five months ago her periods became erratic and then ceased entirely. She went through two or three weeks of sleeplessness caused mainly by hot sweats (day and night) and really suffered from it. MD made usual tests and announced that, as suspected, she was starting the menopause. He prescribed a low-level dosage of a drug called "premique" which is a combination of progesterone and estrogen. She’s been on this for two weeks now. The hot sweats have stopped, at least for the moment. Her periods have not returned. Since starting the medication she has been gaining weight even though, since she anticipated this might happen, she has actually been dieting. She’s gained about 8 lbs in two weeks. I suggested it might be water retention which she said could be possible but she also said her urination pattern hasn’t changed: same frequency and apparent quantity. She’s small to begin with (5′0" and 105 lbs) and I don’t want her to weaken herself by semi-starvation when her system needs all the strenght it can get at this point. The question is: is weight gain one possible side-effect of HRT or menopause or both? If it does occur, can dieting accomplish anything or is menopause-related weight gain unrelated to caloric intake? Is it perhaps a symptom of early menopause which levels off or recedes later on? It’s a big concern to her (though not to me because I know our relationship can cope with a little extra poundage) and any advice or experiences from similarly-affected others would be appreciated. FoggyTown

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