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Suggestions for needed BP & UP related NEW usenet groups

Question:

Then there is the aspect, if each med acts differently for every person, how the <bleep did they get on the market for a specific ailment in the first place? – Hide quoted text — Show quoted text – Asking what other peoples experience is on any psychotropic meds is a waste of time….as everyone reacts differently….. not necessarily.  if you are on a med and are having some kind of adverse side effect and talk to others who are having the same side effect, then odds are it’s common and should just be noted.  if you are on one med and looking into another but are concerned abuot some aspects of it, talking to others who have been on it can give you a broad and basic idea of what it could be like for you..note i said could be like.  sure all this could be discussed with your doc, but we all know that some docs aren’t worth their spit….so talking to others and finding out what other reactions others are having can sometimes give the information needed to make the determination on whether a second or third medical opinion is needed…does that make sense? bright blessings da wench

Response:

You meant this one hooked to the person yammering about them acting different for each person, right? – Hide quoted text — Show quoted text – Then there is the aspect, if each med acts differently for every person, how the <bleep did they get on the market for a specific ailment in the first place? Yeah and if each person reacts so different then what is the point of doing clinical trials.

Response:

Asking what other peoples experience is on any psychotropic meds is a waste of time….as everyone reacts differently…..

not necessarily.  if you are on a med and are having some kind of adverse side effect and talk to others who are having the same side effect, then odds are it’s common and should just be noted.  if you are on one med and looking into another but are concerned abuot some aspects of it, talking to others who have been on it can give you a broad and basic idea of what it could be like for you..note i said could be like.  sure all this could be discussed with your doc, but we all know that some docs aren’t worth their spit….so talking to others and finding out what other reactions others are having can sometimes give the information needed to make the determination on whether a second or third medical opinion is needed…does that make sense? bright blessings da wench

Response:

My experince has been positive Only when the relationship with the doc was positive. That was four-five-six years ago before corporate dollar started putting a cap on time investment per client and drug company ramped up on sticking there hand in docs pocket to push whatever. Examples: I got stuck with some sort of steroid nose spray just because I said my sinuses don’t feel right. the zyprexa incident. I am looking for some sort of interview template listing questions I should ask the doc before we even dive into the issues part this next time. Thing that helps me is laughing a whole bunch at with and for every chance I get. They should do a study on the healing effects of laughter. I never felt ‘less-than-human’ while on BP meds, whether they worked or not, unless they affected me in an adverse and negative space manner. Maybe I’m lucky from starting out before any visits to the head doctor in days gone by looking things up and preparing prior to the visits. Part of me is guessing there is somewhat of a sense of powerlessness (actually this was explained as the most common side-effect of psychoactive meds) when one is not ‘involved’ in their own recovery and healing beyond trips to the pharmacy. That’s the main reason I keep harping on getting in there ‘with’ the doc on which way things go during therapy. The dealing with issues thing is as much or more important than which meds to use and how. Brain is powerful tool. With exercise, it can do a lot of this work all by itself if given the right food, as in nutrition and practice. Lately, the practice and nutrition is leaving room for improvement here at MadGello Central, but dang, when it’s working, meds just get in the way. I really kinda just plain like the me that has grown out of the former rack of muck. And I don’t hate me when it’s not going so well. The big change was when I stopped hurting myself and other people when frustrated with things going haywire. It makes a Big Difference having a decent attitude toward things in general. I keep hoping a praying these nanobot chemical imbalance analyzer gizmos that can squirt out the right combination of whichever chemical or nutrient is needed in the proper areas at the proper time for equalizing the present problem get to market soon.

Response:

– Hide quoted text — Show quoted text – OK… fair enough…. I have experience with:  Lithium, Zoloft, Wellbutrin, Carbamazapine, Clonidine, Depakote, Nortriptyline, Risperdal, Prozac, Buspar, Lorazapam, Ritalin, Klonopin, Dexedrine <and I’m sure I forgot a few  Lithium has saved my son, and Depakote has saved my husband. Barbie Doll My horse has me mounted due to being barraged with promed speak when I can’t afford to have docs make mistakes and put me in suicidal mode after taking one pill.  It is self-preservation that put me in this position. I have not been on meds since 1996. My income has tripled in that time. I have the best and most fun job I’ve had in my entire life. The people I work with are totally supportive of my mood shifts since I brought open and honest communication about them into work with me. Like I said, Lithium for a year and a half gave me a calm base to start from, as Keith mentioned. I’m considering getting back on that program now that the depression that went un-noticed for nearly a year gave way to an unpleasant (compared to other more fun and productive manic episodes in the past four years) manic phase. I came here for guidance not preaching. I’m not saying you are preaching. I’m saying the ones here that are, make it extremely difficult to have a simple conversation about what my options are. Research I can find on my own. Personal experince with the state of the art in BP meds is decidedly lacking in all the conversations I’m getting stuck in here. I start new topics and I get preconceived notion blasts about my being in a nonmedicated state at present. I put up flags of all sorts asking for a general truce on the Fact that people can make up their own minds and learn from other people’s experience all at the same time. My horse is very small. I am even smaller.   ;-) the knight in shining armor thing was over as quickly as it was finished. there was a reason for it and it is done. I passed some messages to a few other Trolls. Not they don’t bother me any more. At least some parts worked. Now, I need to find out what meds are at the forefront of BP work and which ones have minimal side-effects. I really don’t want to get caught in the "Which is worse, tremors and itchy under the skin I can’t scratch or learning how to modify my brain chemistry with diet and good exercise? .. .  practice with dealing with people by doing so or covering it all over with two shades of grey for emotional rainbow?" things like that.

Response:

I knew that.   <wink I wasn’t real worried about my reaction about your reaction, just wanted to make sure you understood it was <slightly in jest. I have about ten seconds reading info on how usenet is structured, so I appreciate the tweak here and there so I get it down accurately before I go waste a bunch of time making a newsgroup for one. That was also s’posed to be phunny.   ;-) I’m learning better how to weed out what bugs me, slowly. . . Lot less manic tonight from it, that’s for sure. – Hide quoted text — Show quoted text – Sorry.. I went back an looked at your message and I think I over reacted. I was more kidding about it,  sweetness. I don’t have any clue on how the usenet thing works up in the stratosphere. It doesn’t look it’ll head that way anyways. I forgot the smilie and the thanks part, my bad….  I thanked the person that advised me of this and I used their advice.

Response:

Asking what other peoples experience is on any psychotropic meds is a waste of time….as everyone reacts differently….. The only way you can find out, or have any real idea of how a med works on you…is to try it….. It is not really necessary to look for the latest meds….as the older ones work fine on some people…with minimal side effects….if you have not tried them, why go for the more expensive newer meds…unless your insurance company pays for all of them….. I am also unmedicated…not because I want to be, but because no meds have worked on me for longer then a month…and have been trying since 82….so have tried just about everything… so know that with experience…<g…can learn what you have to, to survive….not live….survive….am glad that you have been able to do more then that….. Those people that are anti-unmedicated just feel that they are weak, because they have to take meds….so feel that those who do not, are stronger then them…..which is not true…. almost anything is better then having to learn to live with this thing unmedicated…..for most people….in my case it took me over eight years to learn how to handle…and still am just surviving…not living….during that time spent periods of up to nine months, continuously, in hospital….with innumerable periods of two to four weeks…. Just some thoughts….sno – Hide quoted text — Show quoted text – OK… fair enough…. I have experience with:  Lithium, Zoloft, Wellbutrin, Carbamazapine, Clonidine, Depakote, Nortriptyline, Risperdal, Prozac, Buspar, Lorazapam, Ritalin, Klonopin, Dexedrine <and I’m sure I forgot a few  Lithium has saved my son, and Depakote has saved my husband. Barbie Doll My horse has me mounted due to being barraged with promed speak when I can’t afford to have docs make mistakes and put me in suicidal mode after taking one pill.  It is self-preservation that put me in this position. I have not been on meds since 1996. My income has tripled in that time. I have the best and most fun job I’ve had in my entire life. The people I work with are totally supportive of my mood shifts since I brought open and honest communication about them into work with me. Like I said, Lithium for a year and a half gave me a calm base to start from, as Keith mentioned. I’m considering getting back on that program now that the depression that went un-noticed for nearly a year gave way to an unpleasant (compared to other more fun and productive manic episodes in the past four years) manic phase. I came here for guidance not preaching. I’m not saying you are preaching. I’m saying the ones here that are, make it extremely difficult to have a simple conversation about what my options are. Research I can find on my own. Personal experince with the state of the art in BP meds is decidedly lacking in all the conversations I’m getting stuck in here. I start new topics and I get preconceived notion blasts about my being in a nonmedicated state at present. I put up flags of all sorts asking for a general truce on the Fact that people can make up their own minds and learn from other people’s experience all at the same time. My horse is very small. I am even smaller.   ;-) the knight in shining armor thing was over as quickly as it was finished. there was a reason for it and it is done. I passed some messages to a few other Trolls. Not they don’t bother me any more. At least some parts worked. Now, I need to find out what meds are at the forefront of BP work and which ones have minimal side-effects. I really don’t want to get caught in the "Which is worse, tremors and itchy under the skin I can’t scratch or learning how to modify my brain chemistry with diet and good exercise? .. .  practice with dealing with people by doing so or covering it all over with two shades of grey for emotional rainbow?" things like that.

Response:

One point for Madgello though if you want to start a new ng don’t put manic before depression in the name

Where would alt.support.manic fit in said hierarchy? Jimi says it, "Manic Depression", not "Depression Manic".  ;-) I think the ng gods would buy it just from that argument alone.

Response:

I was more kidding about it,  sweetness. I don’t have any clue on how the usenet thing works up in the stratosphere. It doesn’t look it’ll head that way anyways. I forgot the smilie and the thanks part, my bad…. – Hide quoted text — Show quoted text –  I thanked the person that advised me of this and I used their advice.

Response:

OK… fair enough…. I have experience with:  Lithium, Zoloft, Wellbutrin, Carbamazapine, Clonidine, Depakote, Nortriptyline, Risperdal, Prozac, Buspar, Lorazapam, Ritalin, Klonopin, Dexedrine <and I’m sure I forgot a few  Lithium has saved my son, and Depakote has saved my husband. Barbie Doll – Hide quoted text — Show quoted text – My horse has me mounted due to being barraged with promed speak when I can’t afford to have docs make mistakes and put me in suicidal mode after taking one pill.  It is self-preservation that put me in this position. I have not been on meds since 1996. My income has tripled in that time. I have the best and most fun job I’ve had in my entire life. The people I work with are totally supportive of my mood shifts since I brought open and honest communication about them into work with me. Like I said, Lithium for a year and a half gave me a calm base to start from, as Keith mentioned. I’m considering getting back on that program now that the depression that went un-noticed for nearly a year gave way to an unpleasant (compared to other more fun and productive manic episodes in the past four years) manic phase. I came here for guidance not preaching. I’m not saying you are preaching. I’m saying the ones here that are, make it extremely difficult to have a simple conversation about what my options are. Research I can find on my own. Personal experince with the state of the art in BP meds is decidedly lacking in all the conversations I’m getting stuck in here. I start new topics and I get preconceived notion blasts about my being in a nonmedicated state at present. I put up flags of all sorts asking for a general truce on the Fact that people can make up their own minds and learn from other people’s experience all at the same time. My horse is very small. I am even smaller.   ;-) the knight in shining armor thing was over as quickly as it was finished. there was a reason for it and it is done. I passed some messages to a few other Trolls. Not they don’t bother me any more. At least some parts worked. Now, I need to find out what meds are at the forefront of BP work and which ones have minimal side-effects. I really don’t want to get caught in the "Which is worse, tremors and itchy under the skin I can’t scratch or learning how to modify my brain chemistry with diet and good exercise? .. .  practice with dealing with people by doing so or covering it all over with two shades of grey for emotional rainbow?" things like that.

Response:

Are you pro or anti meds? or a tweener? just kidding. I put it up for a vote. you enjoy the bickering over meds or no meds in here?

– Hide quoted text — Show quoted text – Just maybe you’re putting too much emphasis on "on line"??  If you think there is a need for other groups… go start your own. Just my 2 pennies worth……. Barbie Doll See article on how the process of creating new usenet groups works here:

Response:

See article on how the process of creating new usenet groups works here: http://www5.zdnet.com/devhead/stories/articles/0,4413,2205938,00.html

I have more resources if you’d like some links. Suggestions: "alt.whatever" is for alternate veiwpoints, whatever they may be, from whatever perspective (foul language allowed) "soc.whatever" is for gentle people that just want to talk about it (foul language not allowed)

This would be considered a vanity ng and would not meet the criteria. alt.vent.spleen soc.vent  (no need for foul language without the spleen) needed for obvious reasons suggested # 1 priority for new group creation

Ngs already exist for this purpose–tons of them–the bieggest being alt.flame.  You should look at all the ngs that are already available to you. – Hide quoted text — Show quoted text -alt.support.manic.depression.success.stories soc. ditto for success stories related to any combination of manic depression, manic and/or depression, meds and/or no meds suggested # 1 priority for new BP/UP group creation alt.support.manic.depression.survivors soc.ditto alt.support.manic.survivors soc.ditto alt.support.depression.survivors soc.ditto for BP/UP survivors that are no longer medicated, may or may not have been medicated in the past suggested # 1 priority for new BP group creation list alt.support.depression.manic.medication  (to conform with existing usenet tree structure & follow current naming convention) soc.ditto BP on meds suggested # 1 priority for new group creation alt.support.manic.medication soc.ditto for manic UP on meds suggested # 1 priority for new group creation

I would suggest you do some research before you suggest new news groups.  The number one thing you must prove is that there are already a LOT of ppl talking about this subject–this means research in deja.com.  The traffic on asdm, ssdm and asdmm is not significant enough to break out even one of the groups you propose.  Please go to alt.config and see what Jay Denheim does–he will delete any new ng that does not fully meet the criteria.  This is an effort to try to get a handle on all the ngs created just for fun, never intending to actually use them. Your subjects are too narrow–there are not enough ppl talking about it on the net.  Also, there are already several ngs which are more general in nature, they are either dead ngs or very slow–which means you will not be able to justify another ng that is even more specifc. My search of ngs that would discuss treatment in general revealed the following groups: alt.support.depression.medication (active ng) soc.support.depression.treatment (very very slow) alt.recovery.depression (dead ng) alt.support.depression.recovery (active) alt.support.depression.recovery.sanctuary (active) I realize these ngs are all for depression–I did not survey the sample msgs to see if they also discuss bipolar.  However, depression is talked about MUCH more than bipolar.   I know this from the research I did last summer to create asdmm. If you did create even one of these ngs, I doubt you would get enough traffic to be worthwhile.  Why not start a private email list?  or a bulletin board?  I think you would have better attendence. In any case, this is just the first step in researching if ppl are talking about bipolar treatment/medication at all. Are you able to send the necessary control messages?  You must have software (such as forte agent) and permisson from your news server. If you want any more free advice from me, please email me, as I probably wont be reading this ng for a few days. <g I did not read any of the responses–I’m trying to get a project out and keep two other ngs running. Nancy to email me, remove the Z. administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated

Response:

Just maybe you’re putting too much emphasis on "on line"??  If you think there is a need for other groups… go start your own. Just my 2 pennies worth……. Barbie Doll

– Hide quoted text — Show quoted text – See article on how the process of creating new usenet groups works here:

Response:

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