Question:

 wow, JH, your experience sounds awful!  I can understand your  anxiety, and the wish for some kind of diagnosis!  Most of us have been through something like  that. But, what I hear your doctors saying is not that there is nothing wrong with  you, but that they don’t know what it is.  In most ways, it does not sound like MS to  me — but   there sure are a lot of neurological problems out there which are  similar. I hope you find more sympathetic doctors soon; I HOPE YOU DO NOT have MS, but rather something that has a better cure rate.  Please keep us informed, Marilyn dictating, so you may see some pretty strange recognition errors – Hide quoted text — Show quoted text -JHolder339 wrote:

Today, I had the worst case of jitters and nervousness that I have ever experienced in my life. Trembling hands and jerky-twisting wrist motions

Response:

Today, I had the worst case of jitters and nervousness that I have ever experienced in my life. Trembling hands and jerky-twisting wrist motions illustrate just how bad this weakness is. I’ve talked to MS headquarters and point blank asked what in the world is going on they said "we don’t know what is the matter with you". I related to them symptoms of the violent shaking of my arms whenever I did some push-ups; or the vibrating which was quite apparent when I did stomach crunches. Even when I tried to lift my legs from lying flat on my back…after about 15 seconds the tired muscles began to shake. This is not natural. I’ve never been so weak in all my life. My symptoms came on pretty much all at once (starting October 4, 1998). My first Neuro gave me the standard song and dance: "you do not have MS at this time" (November 1998); the same neuron (rhymes with moron)  three weeks later said, "I find nothing to explain to me what you are experiencing" and on top of that he said that I had a "less than 30%" chance of having MS. He still would not give me a MRI or anything invasive until I had a second opinion. I traveled to Birmingham, AL (February 3, 1998) to visit Dr. Shin Oh at the UAB Neurology Clinic. He gave me a Evoked Potential – turned out normal – and sent me home setting up a MRI testing date of February 11 in my home town of Florence, AL. I had a MRI brain scan. The radiologist’s typed report – which he sent to Birmingham –  stated," I find no abnormalities that suggests the possibility of Multiple Sclerosis." This was supposed to "set my fears at ease." Ever since that day I have had ups and downs. But none to compare to today (Feb. 23). I usually take some antioxidants and grape seed extract mineral suppliment called OPC-3. This had been helping with the fatigue I was experiencing. Then for dinner I would have some sort of meat protein (chicken, fish meat )that calmed the hunger nerves and helped balance my blood sugar level. But today I can’t find relief no matter what I do. Daily, my body twitches all over at different places (not deep tendons but shallow). Now, at night I’m beginning to get twitches that are growing in intensity. Still, I don’t have the kind that last 10 -30 seconds. Also, I have experienced stammering and stuttering a few times when my mouth was filling with lots of saliva – I should say however, this symptom happens whether or not my tongue or stammering is involved. My stuttering started back in April or May of 98. Stress and intimidation brought it about. I won’t get in it, but as the saying goes "the only ones who can hurt you are those you are closest to. I have had no numbness, no tingling, no eye problem, and with somewhat balance and walking difficulties. Coordination problems are there to the extent that my piano playing and typing are affected sometimes for the worst. But never in any extreme way. It’s just that my rhythm is closely tied in with whatever is happening to me. I need to get answers so I’ll know how to combat my situation. So far the medical doctors have said nothing is wrong with me. But – like all of you – I’m seeking the answer for my "symptoms". If my doctor had said "you’re fine" and "it will go away in 6 months"  - that would’ve satisfied me. But that’s not the case. I need to bring it into the light so I can deal with it. Anyone care to comment on what I just said?  I appreciate it. I need to talk with somebody about whether this is MS or ALS or some other neuromuscular disease. Should I be scouting another forum for more pin-point observations? JH

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