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Well, regarding my husband.  We had a nice long TALK and I think he is back on track!  He did not have a problem understanding this whole thing until just recently.  He even helped with my Father when he claimed all was okay.  I think he is just scared that he can’t fix this problem for his son. Our Ped. G I gave us a couple of good books and I have marked some areas for my husband to read.  He also spoke with Matthew ( our son) and explained what he was thinking was way off track for what is best for him. Thanks, Lisa

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…… And my husband just started to kick around a new idea of just stopping all of our sons med’s to see if he is actually fine.

Just a quick note. It it important to remember that can be dangerous to put people on and off antibiotics. This is the perfect way to invite bacteria to develop antibiotic resistance. Read the following. http://www.sciam.com/1998/0398issue/0398levy.html Alan.

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And my husband just started to kick around a new idea of just stopping all of

our sons med’s to see if he is actually fine. Make him sit down and read about this disease.

I totally agree with Jan.  It’s bad enough we have to try and live with this thing, but to have someone in the same household in denial.  Have him follow his son around for a few days and see what it is really like to have to live in the bathroom.  Not to mention the pain and how tired the little guy must be. I’m lucky to be an adult with this disease. I don’t have to go to school every day and try and keep up with the other kids. Give that boy a hug. Sue in Utah

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And my husband just started to kick around a new idea of just stopping all of our sons med’s to see if he is actually fine.

Make him sit down and read about this disease. Suggest he talk to a counselor. If he continues in denial, he’s going to end up making your son feel guilty for "acting sick" or something.  He really needs to get a grip. Jan…  

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Yes, no doubt deseases are complex. So are the commercial and other interests of those that do research and fund it. Ponderous things change direction slowly. And that no doubt includes the medical, academic and pharmacutical industry.

That must be the reason why it took such a long time for Viagra to become established, eh? — Wayne Marsh – Minneapolis, Minnesota, USA

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That must be the reason why it took such a long time for Viagra to become established, eh?

Think it was difficult to get participants for that study, hmmm?  LOL Actually my son’s friend owned the men’s  clinics where the trials were done, and he’s told some pretty entertaining stories.  :) Anyone heard about women using it? Jan…  

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Our son took two different meds plus he is still taking prevacid for the stomach.

What two other meds did he take?  Hope he is doing better now, poor little guy. Jan…  

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Hello, He took Biaxin and Cefzil for the stomach bacteria and ulcers.  We are just in our third month of all of this and he seems to be holding up better than the rest of us. My Dad is in denial of his grandsons health problems and seems to think he will outgrow them!  And my husband just started to kick around a new idea of just stopping all of our sons med’s to see if he is actually fine. I am having a difficult time dealing with my husbands sudden denial!! Lisa

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Yes, no doubt deseases are complex. So are the commercial and other interests of those that do research and fund it. Ponderous things change direction slowly. And that no doubt includes the medical, academic and pharmacutical industry. Which in my part of the world have a substantial interconnection. We also have the problem of some people making big bucks of the way things are right now. Considering that humans can rationalize any course of action when it effects their ‘vital’ intersts it is a wonder anything ever changes. Best wishes. *** Posted from RemarQ – http://www.remarq.com – Discussions Start Here ™ ***

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I have heard about another interesting little bacteria recently. They have called it nanobacter sanguiniria. Seems it is about two tenths of a micron in diameter, is resistant to gamma radiation, has an outer coat of calcium phosphate. Is being investigated as a cause of kidney stones (Does it provide condensation nuclei for the deposition of calcium phosphate?). Also under investigation as a cause of cancer. What I heard was the little bugger was resistant to everything but long term tetracycline therapy. I’m trusting my memory on this one too. I heard this on the radio. Source: A lady researcher named Fish at the University of Toronto, Ontario, Canada. You might want to keep your eye on this one. It is also under consideration as a cause of arthritis. What else, if anything? *** Posted from RemarQ – http://www.remarq.com – Discussions Start Here ™ ***

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My 6 y.o. son was diagnosed with H-Phylori when he was diag. with UC and Crohns.  His G.I. thinks it was probably doing damage long before his UC started to act up due to the amount of ulcers and bleeding is his stomach. Thank goodness they did the upper and lower scopes and biopsied his entire digestive track. Our son took two different meds plus he is still taking prevacid for the stomach.  He is done now with the other two meds and should be done with the prevacid in a few days. Lisa Sotl

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Interestingly, it took the doc about 15 years to convince his colleagues that H Pylori was causing ulcers.  A little resistance from the medical community,

That is actually pretty quick. We’re talking Kuhnian paradigm shift here. hmmm?  Geeesh…  And  the M Para connection is running into the same kind of resistance.

Looks to me like the reverse. People are working really hard to see if there is anything to do it. But they have a ways to go (if it pans out).

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If I remember correctly it is helicobacter pylori. Think it was discovered to be the cause of stomach ulcers by a couple of Australian physicians. I think they used a combination of two or more antibiotics to treat the disease. Seems to me that if stomach ulcers turns out to have a microbrial cause can the rest of the gut problems be far behind? Odds are that most physicains do not know about H pylori, after all the information has only existed for about 20 years. *** Posted from RemarQ – http://www.remarq.com – Discussions Start Here ™ ***

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Dear Bert,         Yes, I agree that finding a microbial casue isn’t far behind.  We already have lots of evidence (check Alan Kennedy’s web site listing HUNDREDS of papers linking CD to the M. para.).  He has done excellent work and I hope that many of us will read it.  I am already passing the info to one of the top docs in the world on CD, Dr. Present.  He was behind the studies on 6 MP and Remicade and continues with other drugs. I am currently taking the human antibody for  anti-TNF.  That’s a long story tell you later.          Apparently, my doc told me just a couple of weeks ago that Austrailian reserchers have the "cure".  I really haven’t heard much about it. There is speculation of the use of chemo drugs.  I would like to know more if anyone else has any info on this.  Of course there is always the IRMAT (I think that is the name for it) therapy using an antibiotic cocktail which has been shown to be reasonable successful in achieving remission.  It too has it’s problems like scaring and stricturing.  I hope that the CCFA would fund some of these other therapies that are geared toward the root case and not at the symptoms.  Here is the web site for Alan Kennedy:         http://www.iol.ie/~alank/CROHNS/welcome.htm —-Michael

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Odds are that most physicains do not know about H pylori, after all the information has only existed for about 20 years.

Interestingly, it took the doc about 15 years to convince his colleagues that H Pylori was causing ulcers.  A little resistance from the medical community, hmmm?  Geeesh…  And  the M Para connection is running into the same kind of resistance. Jan…  

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       Yes, I agree that finding a microbial casue isn’t far behind.  We already have lots of evidence (check Alan Kennedy’s web site listing HUNDREDS of papers linking CD to the M. para.).  He has done excellent

There appears to be only about 50 papers, and some of the articles argue *against* it as the cause.         Apparently, my doc told me just a couple of weeks ago that Austrailian reserchers have the "cure".  I really haven’t heard much about it. There

Cures in medicine are rare because diseases are complex. Crohn’s is a good example of that.

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What is H-phylori and what is treatment?

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The "bug" that causes ulcers.  Treated with anti-biotics. Rick… – Hide quoted text — Show quoted text – What is H-phylori and what is treatment?

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